"This book explores the tensions between the disability rights groups advocating on behalf of people with intellectual, cognitive, and psychiatric disorders including autism and allied advocacy groups representing parents with children in those communities. These groups diverge over issues like independence and recovery, and in their cultural and political capital"--
"This book explores the tensions between the disability rights groups advocating on behalf of people with intellectual, cognitive, and psychiatric disorders including autism and allied advocacy groups representing parents with children in those communities. These groups diverge over issues like independence and recovery, and in their cultural and political capital"--
Allison C. Carey is a Professor in the Department of Sociology and Anthropology at Shippensburg University. She is the author of On the Margins of Citizenship: Intellectual Disability and Civil Rights in Twentieth-Century America (Temple) and co-editor of Disability Incarcerated: Disability and Imprisonment in the United States and Canada and of Disability and Community. Pamela Block is a Professor of Anthropology at Western University. She is co-editor of Occupying Disability: Critical Approaches to Community, Justice, and Decolonizing Disability. Richard K. Scotch is Professor of Sociology and Public Policy at the University of Texas, Dallas. He is the author of From Good Will to Civil Rights: Transforming Federal Disability Policy (Temple), co-author of Disability Protests: Contentious Politics, 1970–1999, and co-editor of Disability and Community.
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TABLE OF CONTENTS Acknowledgements 1 Chapter 1 Introduction 4 Part I: Disability Activist Communities 42 Chapter 2 Intellectual Disability and Parent Activism 43 Chapter 3 Psychiatric Diagnosis, Disability, and Parent Activism
82 Chapter 4 Autistic Identity and Parent Activism 114 Chapter 5 Physical Disability and Parent Activism 147 Part II: Cross-Disability Analysis 179 Chapter 6 Timing: Factors Affecting the Emergence of Parent Led Organizations 180 Chapter 7 Frames and Positions within the Field of Disability Activism 203 Chapter 8 Social Movement Strategies and Public Policy 248 Chapter 9 Narratives of Rights 270 Chapter 10 Parents, Children, and Advocacy across Life Transitions
316 Chapter 11 Conclusion 340 Appendix A: A Note on Methods 358 Endnotes 360 Bibliography 386
TABLE OF CONTENTS Acknowledgements 1 Chapter 1 Introduction 4 Part I: Disability Activist Communities 42 Chapter 2 Intellectual Disability and Parent Activism 43 Chapter 3 Psychiatric Diagnosis, Disability, and Parent Activism
82 Chapter 4 Autistic Identity and Parent Activism 114 Chapter 5 Physical Disability and Parent Activism 147 Part II: Cross-Disability Analysis 179 Chapter 6 Timing: Factors Affecting the Emergence of Parent Led Organizations 180 Chapter 7 Frames and Positions within the Field of Disability Activism 203 Chapter 8 Social Movement Strategies and Public Policy 248 Chapter 9 Narratives of Rights 270 Chapter 10 Parents, Children, and Advocacy across Life Transitions
316 Chapter 11 Conclusion 340 Appendix A: A Note on Methods 358 Endnotes 360 Bibliography 386
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