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The focus of this dissertation was to gain a better
understanding of autism, and its effects on family
life. The research gives a rich, qualitative account
of what it is like to live with autism using first
hand accounts as data, and what and how families are
learning in the process. Using a phenomenological
framework, this study was comprised of interview and
observational data collected at the homes of six
families with an autistic child. The data were
analyzed using qualitative software (NVivo) and
themes began to emerge. The themes were used to
answer the question: What is the experience of
living with an autistic child, and what does that
experience mean? Knowledge was added to the current
literature on autism in the areas of spousal
support, expectation adjustment, finding joy in
the little things, avoidance, grieving, anxiety
about the future, support systems, social
withdrawal, divide and conquer, anger,embarrassment,
sadness, intensity, living in the present, and
ambiguity.
understanding of autism, and its effects on family
life. The research gives a rich, qualitative account
of what it is like to live with autism using first
hand accounts as data, and what and how families are
learning in the process. Using a phenomenological
framework, this study was comprised of interview and
observational data collected at the homes of six
families with an autistic child. The data were
analyzed using qualitative software (NVivo) and
themes began to emerge. The themes were used to
answer the question: What is the experience of
living with an autistic child, and what does that
experience mean? Knowledge was added to the current
literature on autism in the areas of spousal
support, expectation adjustment, finding joy in
the little things, avoidance, grieving, anxiety
about the future, support systems, social
withdrawal, divide and conquer, anger,embarrassment,
sadness, intensity, living in the present, and
ambiguity.