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The relationship between the research subject and
the doctor has always been fundamental to medical
research. Since the 1990s, important changes have
been taking place in relation to the biomedical use
of human tissue sample collections or biobanks.
This book explores the changing relationship between
the sources and users of tissue samples gained from
research subjects by examining the contexts under
which these samples and the information that is
extracted from and connected to them, are acquired,
circulated and exchanged in Finland. The research
explores how individual rights, particularly
informed consent and autonomy, are being re-
configured in relation to the production of
scientific knowledge in tissue economies. The
research shows how interpretations of informed
consent and autonomy have become divergent, and
examines the elements and processes that have
contributed to these differences.
the doctor has always been fundamental to medical
research. Since the 1990s, important changes have
been taking place in relation to the biomedical use
of human tissue sample collections or biobanks.
This book explores the changing relationship between
the sources and users of tissue samples gained from
research subjects by examining the contexts under
which these samples and the information that is
extracted from and connected to them, are acquired,
circulated and exchanged in Finland. The research
explores how individual rights, particularly
informed consent and autonomy, are being re-
configured in relation to the production of
scientific knowledge in tissue economies. The
research shows how interpretations of informed
consent and autonomy have become divergent, and
examines the elements and processes that have
contributed to these differences.