Andelka M Phillips

Buying Your Self on the Internet

Wrap Contracts and Personal Genomics

• Broschiertes Buch

Produktbeschreibung

Considering ordering a genetic test online? Did you stop to read the fine print? Most of us never consider the contracts we enter into online. We click 'Agree' and move on - not necessarily realising the implications of that click, and others. This book provides an introduction to the world of personal genomics (also known as direct-to-consumer genetic testing or DTC). It examines the rise of the DTC genetic testing industry and its use of electronic 'wrap' (typically clickwrap and browsewrap) contracts. It explores the different types of tests available, with the issues that this industry raises for law and society. It concludes with a call for improved regulation of the industry. Key Features - Uses the example of the DTC industry's reliance on wrap contracts as its dominant means of governance to highlight the challenges that disruptive technologies pose for societies and regulation - Provides an overview of the different types of tests available and explores the issues raised by each type of test - including discussion of consumer protection and privacy issues in this context - Provides a summary and review of 71 wrap contracts used by DTC companies that provide tests for health purposes - Suggests that a number of terms commonly included are challengeable on the basis of unfairness - Explores broader issues with online contracting and consumer behaviour - Sets an agenda for improving regulation and the online contracting environment Andelka M. Phillips is Senior Lecturer at Te Piringa, Faculty of Law, the University of Waikato, New Zealand, and a Research Associate at the University of Oxford's Centre for Health, Law and Emerging Technologies (HeLEX). Cover image: (c) iStockphoto.com Cover design: Bekah Mackenzie and Stuart Dalziel [EUP logo] edinburghuniversitypress.com ISBN 978-1-4744-2259-8 Barcode

Produktdetails

• Future Law
• Verlag: Edinburgh University Press
• Seitenzahl: 320
• Erscheinungstermin: 31. Mai 2021
• Englisch
• Abmessung: 154mm x 232mm x 23mm
• Gewicht: 516g
• ISBN-13: 9781474484305
• ISBN-10: 1474484301
• Artikelnr.: 61432756

Autorenporträt

Andelka M. Phillips is a Senior Lecturer in Law, Science and Technology at TC Beirne School of Law, University of Queensland, Australia. She is a writer and academic whose research interests lie in the areas of Information Technology Law and Health and Medical Law. She was formerly the Ussher Assistant Professor in Information Technology Law at Trinity College Dublin and the Convenor of Trinity College Dublin Law School's Technology, Law and Society Research Group.

Inhaltsangabe

Table of Statutes
Table of Cases
1. Direct-To-Consumer Genetic Testing and Regulating Disruptive Technology
1. Introduction
2. Aims of This Book
3. Guidance for Readers
4. What Is Personal Genomics or Direct-to-Consumer Genetic Testing?
5. Summary of How DTC Services Operate
6. Bringing Disruptive Technology to the Public
7. Data Deluge
8. Methodology
9. How Should the DTC Industry Be Regulated? The Policy Response to Date
10. Sources of Law Which Might Be Applicable to DTC in the UK and EU
11. What Can Go Wrong?
12. Conclusion
2. The Science behind that Click of the Mouse
1. Introduction
2. The Nature of Genetic Information and Genetic Exceptionalism
3. Recent Advances in Genetic and Genomic Science
4. Conclusion
3. The Rise of Personal Genomics - Overview of the Direct-to-Consumer Genetic
Testing Industry
1. Introduction
2. Overview of the DTC Industry
3. Health Tests
4. Ancestry Testing
5. Genetic Relatedness Testing
6. Testing for Athletic Ability
7. Testing for Child Talent and Testing of Children
8. Surreptitious ('Infidelity') Testing
9. Match Making Testing
10. Conclusion
4. Privacy, Data Protection, and Security in the Context of Direct-to-Consumer
Genetic Testing Services
1. Introduction
2. General Data Protection Regulation (GDPR)
3. The UK's Data Protection Legislation
4. Privacy Policies and Notices and Website Design
5. US Privacy Law
6. Canadian Genetic Privacy Law
7. Secondary Use of Genetic Databases - the Golden State Killer and
Beyond
8. Indigenous Peoples and Data Sovereignty
9. Privacy Best Practices for Consumer Genetics Testing Services (July
2018)
10. Conclusion
5. Clicking Away Rights in DNA: A Review of DTC Contracts
1. Introduction
2. Challenging Unfair Terms in DTC Contracts
3. Conclusion
6. Future Directions for DTC Governance
1. Note for Readers Interested in Purchasing DTC Tests
2. Suggestions for Reform
3. Final Thoughts
Bibliography