Can You Help Me?: Inside the Turbulent World of Huntington Disease shares the surprising, insightful, challenging, and even encouraging, stories of patients and their families who live with Huntington Disease. Having seen patients for more than 40 years, Dr Thomas Bird, a pioneer neurogeneticist, adds a human touch to this genetic brain disease that devastates persons during mid-life when they can least afford it
Can You Help Me?: Inside the Turbulent World of Huntington Disease shares the surprising, insightful, challenging, and even encouraging, stories of patients and their families who live with Huntington Disease. Having seen patients for more than 40 years, Dr Thomas Bird, a pioneer neurogeneticist, adds a human touch to this genetic brain disease that devastates persons during mid-life when they can least afford itHinweis: Dieser Artikel kann nur an eine deutsche Lieferadresse ausgeliefert werden.
Dr. Thomas Bird is a Professor of Neurology and Medical Genetics at the University of Washington who has been a pioneer in the field of Clinical Neurogenetics. He has received numerous national awards for his research on hereditary diseases of the nervous system including Alzheimer and Huntington diseases and established the first clinic for adults with neurogenetic diseases in the United States.
Inhaltsangabe
Dedication Preface 1. Introduction 2. Comparing Huntington Disease to Other Brain Diseases 3. Genetic Counseling and the Genetic Testing Conundrum Part I - Interacting with the Legal and Mental Health Care System 4. Can You Help Me? 5. It Was Awful 6. The Asylum 7. Meeting Huntington Disease Patients at Western State 8. I Don't Know Why I Did It 9. Carkeek Park 10. Please Call the Coroner Part II - Coping Strategies 11. Enjoy the Moment 12. High Five 13. Let's Try a Magnet 14. "I Don't Agree" 15. The Greatest Generation and Productive Lifestyles 16. Princess in Pink Part III - Marriage, Family, and Finances 17. For Better, For Worse 18. In Sickness and in Health 19. Money Problems 20. Staying Employed 21. We Just Want to Have a Child 22. The Judge Said "Are You Sure You Want to Do This?" 23. The Thanksgiving Visitor 24. Family Opposites 25. A Second Wedding Part IV - Embarrassment, Injury, Neglect, and Delusions 26. Excuse Me Madam and I Am Not Drunk 27. Broken Bones 28. A Bump on the Head 29. Impulse Control 30. Reservation Blues 31. Is This Negligence? 32. Delusions, Hallucinations, and Diabolical Possession 33. The Downward Spiral 34. A Visit to Willow Park V -Summing Up 35. Summing Up: "Can you help me?" Acknowledgments Appendix: The Genetic Test for HD
Dedication Preface 1. Introduction 2. Comparing Huntington Disease to Other Brain Diseases 3. Genetic Counseling and the Genetic Testing Conundrum Part I - Interacting with the Legal and Mental Health Care System 4. Can You Help Me? 5. It Was Awful 6. The Asylum 7. Meeting Huntington Disease Patients at Western State 8. I Don't Know Why I Did It 9. Carkeek Park 10. Please Call the Coroner Part II - Coping Strategies 11. Enjoy the Moment 12. High Five 13. Let's Try a Magnet 14. "I Don't Agree" 15. The Greatest Generation and Productive Lifestyles 16. Princess in Pink Part III - Marriage, Family, and Finances 17. For Better, For Worse 18. In Sickness and in Health 19. Money Problems 20. Staying Employed 21. We Just Want to Have a Child 22. The Judge Said "Are You Sure You Want to Do This?" 23. The Thanksgiving Visitor 24. Family Opposites 25. A Second Wedding Part IV - Embarrassment, Injury, Neglect, and Delusions 26. Excuse Me Madam and I Am Not Drunk 27. Broken Bones 28. A Bump on the Head 29. Impulse Control 30. Reservation Blues 31. Is This Negligence? 32. Delusions, Hallucinations, and Diabolical Possession 33. The Downward Spiral 34. A Visit to Willow Park V -Summing Up 35. Summing Up: "Can you help me?" Acknowledgments Appendix: The Genetic Test for HD
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