Examines the ethical, legal, and regulatory challenges presented as genomics become commonplace, easily available consumer products.Hinweis: Dieser Artikel kann nur an eine deutsche Lieferadresse ausgeliefert werden.
Part I. Consumer genetic technologies: Rights, liabilities, and other obligations introduction: I. Glenn Cohen; 1. Liability implications of direct-to-consumer genetic testing Gary E. Marchant, Mark Barnes, Ellen W. Clayton and Susan M. Wolf; 2. Consuming genetics as a life insurance consumer Anya E. R. Prince; 3. In favor of an action for genetic conversion Jessica L. Roberts; 4. Direct to consumer genomics and personal health data Jorge L. Contreras; 5. Governance in the Era of CRISPR and DIY-Bio: Regulatory guidance of human genome editing at the national and global levels Scott J. Schweikart; Part II. Privacy in the age of consumer genetics introduction: Nita A. Farahany; 6. Non-Invasive prenatal genome sequencing: Ethical and policy post-birth implications Vardit Ravitsky; 7. The myth of "Anonymous" gamete donation in the age of direct-to- consumer genetic testing Seema Mohapatra; 8. Improving commercial genetic data sharing policy Kayte Spector-Bagdady; 9. Genetic Paparazzi Yaniv Heled and Liza Vertinsky; Part III. Tinkering with ourselves: The law and ethics of DIY genomics introduction: Henry T. Greely; 10. Programming our genomes, programming ourselves: The moral and regulatory challenge of regulating Do-It-Yourself gene editing Barbara J. Evans; 11. Governing non-traditional gene editing Maxwell J. Mehlman and Ronald A. Conlon; 12. Finding a regulatory balance for genetic biohacking Patricia J. Zettler, Christi J. Guerrini and Jacob S. Sherkow; Part IV. Consumer genetics and identity Introduction: Carmel Shachar; 13. Generational failures of law and ethics: Rape, mormon orthodoxy, and the revelatory power of Ancestry DNA Kif Augustine-Adams; 14. Precision medicine and the resurgence of race in genomic medicine Jonathan Kahn; 15. Losing our minds? Direct-to-Consumer genetic testing and Alzheimer's disease Emily Largent; 16. Investigative genetic genealogy and the problem of familial forensic identification Natalie Ram; Part V. The impact of genetic information introduction: Melissa Uveges; 17. An ethical framework for genetic counseling in the genomic era Leila Jamal, Will Schupmann and Benjamin E. Berkman; 18. Physician-Mediated elective whole genome sequencing tests: Impacts on informed consent Emily Qian, Magalie Leduc, Rebecca Hodges, Bryan Cosca, Ryan Durigan, Laurie McCright, Doug Flood and Birgit Funke; 19. Privacy best practices for Direct-to-Consumer genetic testing services: Are industry efforts at self-regulation sufficient? James W. Hazel; 20. Regulatory and medical aspects of DTC genetic testing Catherine M. Sharkey, Xiaohan Wu, Michael F. Walsh and Kenneth Offit.
Part I. Consumer genetic technologies: Rights, liabilities, and other obligations introduction: I. Glenn Cohen; 1. Liability implications of direct-to-consumer genetic testing Gary E. Marchant, Mark Barnes, Ellen W. Clayton and Susan M. Wolf; 2. Consuming genetics as a life insurance consumer Anya E. R. Prince; 3. In favor of an action for genetic conversion Jessica L. Roberts; 4. Direct to consumer genomics and personal health data Jorge L. Contreras; 5. Governance in the Era of CRISPR and DIY-Bio: Regulatory guidance of human genome editing at the national and global levels Scott J. Schweikart; Part II. Privacy in the age of consumer genetics introduction: Nita A. Farahany; 6. Non-Invasive prenatal genome sequencing: Ethical and policy post-birth implications Vardit Ravitsky; 7. The myth of "Anonymous" gamete donation in the age of direct-to- consumer genetic testing Seema Mohapatra; 8. Improving commercial genetic data sharing policy Kayte Spector-Bagdady; 9. Genetic Paparazzi Yaniv Heled and Liza Vertinsky; Part III. Tinkering with ourselves: The law and ethics of DIY genomics introduction: Henry T. Greely; 10. Programming our genomes, programming ourselves: The moral and regulatory challenge of regulating Do-It-Yourself gene editing Barbara J. Evans; 11. Governing non-traditional gene editing Maxwell J. Mehlman and Ronald A. Conlon; 12. Finding a regulatory balance for genetic biohacking Patricia J. Zettler, Christi J. Guerrini and Jacob S. Sherkow; Part IV. Consumer genetics and identity Introduction: Carmel Shachar; 13. Generational failures of law and ethics: Rape, mormon orthodoxy, and the revelatory power of Ancestry DNA Kif Augustine-Adams; 14. Precision medicine and the resurgence of race in genomic medicine Jonathan Kahn; 15. Losing our minds? Direct-to-Consumer genetic testing and Alzheimer's disease Emily Largent; 16. Investigative genetic genealogy and the problem of familial forensic identification Natalie Ram; Part V. The impact of genetic information introduction: Melissa Uveges; 17. An ethical framework for genetic counseling in the genomic era Leila Jamal, Will Schupmann and Benjamin E. Berkman; 18. Physician-Mediated elective whole genome sequencing tests: Impacts on informed consent Emily Qian, Magalie Leduc, Rebecca Hodges, Bryan Cosca, Ryan Durigan, Laurie McCright, Doug Flood and Birgit Funke; 19. Privacy best practices for Direct-to-Consumer genetic testing services: Are industry efforts at self-regulation sufficient? James W. Hazel; 20. Regulatory and medical aspects of DTC genetic testing Catherine M. Sharkey, Xiaohan Wu, Michael F. Walsh and Kenneth Offit.
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