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In this collection of poetry Mandie dissects the vulnerabilities of her own journey with Fabry disease while raising her children with the same disease. Each poem takes an in depth look at what it's like to live inside a rare disease that limits her and her children while not appearing to be ill.

Produktbeschreibung
In this collection of poetry Mandie dissects the vulnerabilities of her own journey with Fabry disease while raising her children with the same disease. Each poem takes an in depth look at what it's like to live inside a rare disease that limits her and her children while not appearing to be ill.