Julie Casson traces her husband Nigelâ s extraordinary journey from diagnosis of motor neurone disease to his successful death at Dignitas in Zurich. A rare and intimate account of one manâ s ultimate triumph over suffering.
Julie Casson traces her husband Nigelâ s extraordinary journey from diagnosis of motor neurone disease to his successful death at Dignitas in Zurich. A rare and intimate account of one manâ s ultimate triumph over suffering.
Julie Casson is a debut author. She is a mum, grandma and great-grandma and lives in Scarborough, North Yorkshire with her beloved miniature schnauzer Bodger.Julie spent twenty-three years working in Further Education. Starting out as a teacher, her career evolved into management. She holds an MA in management from the University of York.Her career ended unexpectedly in 2007, when her husband, Nigel, was diagnosed with motor neurone disease. Julie became Nigel's primary carer. Nigel's positivity, humour and pragmatism throughout his illness, and his determination to take control of his death, are the inspiration for this memoir.In 2011, she started a blog, posting light-hearted commentary on everyday existence and specific accounts of Nigel's experience, which she later developed into this book. She completed a creative writing course at the University of York.Julie is a supporter of the Motor Neurone Disease Association and member of Dignity in Dying. Her greatest wish is that Nigel's story contributes to changing the law on assisted dying in the UK.
Inhaltsangabe
1. Looking Back 3 2. Death’s Calling Card 6 3. Brenda and Methuselah 15 4. Tests, Tests and More Tests 23 5. The End of ‘Normal.’ 32 6. Life with MND Begins 44 7. Breaking the News 53 8. The Wailing Weeks 67 9. Spain 81 10. The Bucket List 85 11. Where Hope Dies 91 12. Not Ready for This 98 13. Our Spanish Love Affair 103 14. Two Steps Ahead 112 15. MND Declares War 122 16. Don’t Forget Me 126 17. Cost More Than our First House 132 18. Starting to Die 137 19. 22 July 2011 147 20. Every Day is a Bonus 157 21. Don’t Laugh at my Cock 164 22. Toileting Matters 179 23. When the Laughter Stops 191 24. It’s All About Control 203 25. Apply to Die 210 26. The Provisional Green Light 226 27. Last Christmas 238 28. The Recce 247 29. Appointment with Death 264 30. Twenty-five Days Left to Live 283 31. The Goodbyes 295 32. The Hotel and the Doctor 303 33. One More Day 314 34. Nigel’s Cure 328 35. Nigel’s Last Goodbye 345 Acknowledgements 356
1. Looking Back 3 2. Death’s Calling Card 6 3. Brenda and Methuselah 15 4. Tests, Tests and More Tests 23 5. The End of ‘Normal.’ 32 6. Life with MND Begins 44 7. Breaking the News 53 8. The Wailing Weeks 67 9. Spain 81 10. The Bucket List 85 11. Where Hope Dies 91 12. Not Ready for This 98 13. Our Spanish Love Affair 103 14. Two Steps Ahead 112 15. MND Declares War 122 16. Don’t Forget Me 126 17. Cost More Than our First House 132 18. Starting to Die 137 19. 22 July 2011 147 20. Every Day is a Bonus 157 21. Don’t Laugh at my Cock 164 22. Toileting Matters 179 23. When the Laughter Stops 191 24. It’s All About Control 203 25. Apply to Die 210 26. The Provisional Green Light 226 27. Last Christmas 238 28. The Recce 247 29. Appointment with Death 264 30. Twenty-five Days Left to Live 283 31. The Goodbyes 295 32. The Hotel and the Doctor 303 33. One More Day 314 34. Nigel’s Cure 328 35. Nigel’s Last Goodbye 345 Acknowledgements 356
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