Dismantling the Disability - Pieper, Erin K
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A desire to belong in a world that poses challenge after challenge has driven Erin K. Pieper to have to be more patient than she ever thought would be necessary. To have to be understanding, and to not only accept but integrate physical limitations as part of her everyday life. Twelve years after her initial diagnosis of a rare and little-known disease called Friedreich's Ataxia, Erin shares her struggles in navigating the world not only with this degenerative disease, but also while being a single mother. Erin shares her life story while unveiling her vulnerable and kind heart. She shares the…mehr

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Produktbeschreibung
A desire to belong in a world that poses challenge after challenge has driven Erin K. Pieper to have to be more patient than she ever thought would be necessary. To have to be understanding, and to not only accept but integrate physical limitations as part of her everyday life. Twelve years after her initial diagnosis of a rare and little-known disease called Friedreich's Ataxia, Erin shares her struggles in navigating the world not only with this degenerative disease, but also while being a single mother. Erin shares her life story while unveiling her vulnerable and kind heart. She shares the raw and honest truth of her struggles while systematically informing us all on such a rare disease, giving voice to the voiceless. While she educates, she emotes. She advocates. Her memoir evokes such empathy for the disabled community as well as single, struggling mothers everywhere. You'll laugh. You'll cry. And you'll surely open your mind to new and creative possibilities for how the world could be, if we made it more accessible to the least able-bodied among us.
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Autorenporträt
Erin Pieper is a single mom who advocates for finding a treatment for Friedreich's Ataxia (FA), a rare disease she is faced with. She volunteers as an Ambassador for FARA (Friedreich's Ataxia Research Alliance) on their blogging team. She writes about individuals who are introducing themselves to the FA community, as well as on different fundraising events and their outcomes. Erin has participated in many fundraising events, near and far, and has taken part in more than five research drug trials at the University of South Florida, in hopes of finding a treatment for FA. She is the designer of FAn, a t-shirt campaign that advocates that the purchaser and /or wearer is a fan of spreading awareness and support for those diagnosed with FA. Get yours to show support here: https://www.bonfire.com/store/fan/She spends a lot of her time overcoming the struggles of FA, in order to be as involved of a mom as possible, and make the world a kinder place. Erin would love for you to comment about this book on your favorite social media platform, connect via call or text, or come on over to her place for a chat!Visit her blog: www.mywobblyworld.com(Or at least be friends on the socials so we can stalk each other.)Facebook: Erin PieperInstagram: @peepr