Using interview data this book provides unique insights and makes recommendations about the governance of biobanking in the future.Hinweis: Dieser Artikel kann nur an eine deutsche Lieferadresse ausgeliefert werden.
Jane Kaye, Susan M C Gibbons, Catherine Heeney, Michael Parker and Andrew Smart
Inhaltsangabe
Part I Setting the Scene 1. From an Idea to a Project Jane Kaye, Susan MC Gibbons, Catherine Heeney, Michael Parker and Andrew Smart 2. Embedding Biobanks in a Changing Context Jane Kaye Part II Key Legal and Sociological Findings 3. Mapping the Regulatory Space Susan MC Gibbons 4. Dynamic Networks of Practice Catherine Heeney 5. Governance in Practice: Patterns of Awareness and Engagement Susan MC Gibbons and Andrew Smart 6. General Attitudes to Governance Susan MC Gibbons and Andrew Smart 7. Attitudes to Particular Laws and Governing Bodies Susan MC Gibbons and Andrew Smart 8. Preferences for Governance Susan MC Gibbons and Andrew Smart 9. Enacting Governance-The Case of Access Catherine Heeney and Andrew Smart Part III Reflections, Ramifications and Recommendations 10. Reflections on Practice and Governance Jane Kaye 11. Ethics and the Governance of Biobanks Catherine Heeney and Michael Parker 12. Conclusions Jane Kaye, Susan MC Gibbons, Catherine Heeney, Michael Parker and Andrew Smart
Part I Setting the Scene 1. From an Idea to a Project Jane Kaye, Susan MC Gibbons, Catherine Heeney, Michael Parker and Andrew Smart 2. Embedding Biobanks in a Changing Context Jane Kaye Part II Key Legal and Sociological Findings 3. Mapping the Regulatory Space Susan MC Gibbons 4. Dynamic Networks of Practice Catherine Heeney 5. Governance in Practice: Patterns of Awareness and Engagement Susan MC Gibbons and Andrew Smart 6. General Attitudes to Governance Susan MC Gibbons and Andrew Smart 7. Attitudes to Particular Laws and Governing Bodies Susan MC Gibbons and Andrew Smart 8. Preferences for Governance Susan MC Gibbons and Andrew Smart 9. Enacting Governance-The Case of Access Catherine Heeney and Andrew Smart Part III Reflections, Ramifications and Recommendations 10. Reflections on Practice and Governance Jane Kaye 11. Ethics and the Governance of Biobanks Catherine Heeney and Michael Parker 12. Conclusions Jane Kaye, Susan MC Gibbons, Catherine Heeney, Michael Parker and Andrew Smart
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