Harnessing the Wind
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In a conversation with Anthony's homebound teacher, we discussed the nuances of maneuvering a sailboat. She explained how she didn't understand the technological workings of the boat, but she could just "feel" what she needed to do in order to control the boat. My mind made an immediate connection to educating a child with Chronic Fatigue Syndrome. As with a sailboat, many books and articles can be read. You can understand the technical terms without knowing how you'll respond should a crisis arise. You can't see the wind, you have to feel it and respond to what you feel.Â...
In a conversation with Anthony's homebound teacher, we discussed the nuances of maneuvering a sailboat. She explained how she didn't understand the technological workings of the boat, but she could just "feel" what she needed to do in order to control the boat. My mind made an immediate connection to educating a child with Chronic Fatigue Syndrome. As with a sailboat, many books and articles can be read. You can understand the technical terms without knowing how you'll respond should a crisis arise. You can't see the wind, you have to feel it and respond to what you feel. Once a crisis does arise, will you freeze up or will you automatically respond. If you respond to your instinct and feelings, more than likely, you will avoid capsizing and ride the waves created by the wind and currents. You keep your eye on the horizon, waiting for the wind to bring you safely back to land. My son and I have traveled on this journey with his Chronic Fatigue Syndrome in this same way. We have kept our God-given instinct as our guide. We sometimes take "water in the boat", but we continue to bail (sometimes frantically) the water back into the sea from which it came. We have hope as we watch the horizon. We have dreams of setting our feet on firm land. No matter what, we are committed to traveling this journey together. We are determined to complete our course. In Harnessing the Wind, we share the physical battles Anthony faced. We share the struggles we faced with physicians, family, educators, friends and insurance companies. We share these things so others realize that they're not being singled out. We share these things hoping to spare others the "stormy seas" we had to struggle through. We want to encourage you to continue. We also want professionals, friends and family to understand that you can either become waves to block our passage or harbors for us to replenish our strength. The final part of the book add
