Health-Related Disorders in Children and Adolescents
A Guidebook for Educators and Service Providers
Herausgeber: Perfect, Michelle; Bray, Melissa; Riccio, Cynthia
Health-Related Disorders in Children and Adolescents
A Guidebook for Educators and Service Providers
Herausgeber: Perfect, Michelle; Bray, Melissa; Riccio, Cynthia
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This book discusses how school professionals can be care team partners for the more than 15 million school-aged children experiencing medical conditions.
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This book discusses how school professionals can be care team partners for the more than 15 million school-aged children experiencing medical conditions.
Produktdetails
- Produktdetails
- Verlag: American Psychological Association (APA)
- 2nd edition
- Seitenzahl: 577
- Erscheinungstermin: 22. August 2023
- Englisch
- Abmessung: 251mm x 177mm x 31mm
- Gewicht: 1078g
- ISBN-13: 9781433836350
- ISBN-10: 1433836351
- Artikelnr.: 65605413
- Verlag: American Psychological Association (APA)
- 2nd edition
- Seitenzahl: 577
- Erscheinungstermin: 22. August 2023
- Englisch
- Abmessung: 251mm x 177mm x 31mm
- Gewicht: 1078g
- ISBN-13: 9781433836350
- ISBN-10: 1433836351
- Artikelnr.: 65605413
Edited by Michelle M. Perfect, Cynthia A. Riccio, and Melissa A. Bray
Series Foreword
Julia Ogg
Preface
LeAdelle Phelps as transcribed by Melissa Bray
Part I. Introduction
Chapter 1: Introduction to the Second Edition
Michelle M. Perfect, Cynthia A. Riccio & Melissa A. Bray
Chapter 2: Importance of Coordinated Care in Meeting the Needs of Children
and Families
Susan G. Forman, Melissa C. Fleuhr, Sade S. Porter & Jeffrey D. Shahidullah
Part II. Blood, Cardiovascular and Circulatory System Disorders
Chapter 3: Overview of Circulatory System Disorders
Jeff Bostwick, Clark R. Bray & Heather Kwolek
Chapter 4: Cardiac Disorders
Stewart W. Ehly & Noel Estrada-Hernandez
Chapter 5: Childhood Leukemia
Lea A. Theodore, Karen Cross, Lauren Gammie, Marlena Minkos, Danielle Stern
& Alyssa Perri Elias
Chapter 6: 22q11.2 Deletion Syndrome or DiGeorge Syndrome
Priscilla H. Duong & Hiroko Tanaka
Chapter 7: Hemophilia
Mickey Randolph & Ethan J. Schilling
Chapter 8: Human Immunodeficiency Virus
Tiffany Chenneville & Kamesha Gabbidon
Chapter 9: Noonan Syndrome
Suzanne Margiano, Lorette McWilliams, Johana deLeyer-Tiarks & Carissa
Scogin
Chapter 10: Sickle Cell and other Anemias
Linda W. Morse, Melanie C. Morse & Sarah E. Bills
Part III. Central Nervous System Disorders
Chapter 11: Overview of CNS Disorders
Ivette Merced
Chapter 12: Adrenoleukodystrophy
Harvey Switzky, James P. Van Haneghan & Abigail Baxter
Chapter 13: Agenesis of the Corpus Callosum
Krystal T. Simmons, Bianca S. Watkins & Sherine Presley
Chapter 14: Angelman Syndrome
Sara S. Frye & Allison Fairchild
Chapter 15: Autism
Christine L. Cole & Alana Telesford
Chapter 16: Cerebral Palsy
Sai Sudha Aravala, Adeline Bray & Karen Cross
Chapter 17: Cri-du-Chat
Phyllis S. Ohr
Chapter 18: Down Syndrome
Nicholas W. Gelbar
Chapter 19: Epilepsy
Megan Aros-O'Malley, David L. Wodrich & Randa Jarrar
Chapter 20: Hereditary Ataxia
Taylor-Kristen Myers
Chapter 21: Mitochondrial Disorders
Cynthia K. Lang, Alyssa A. Gonzalez & Cynthia A. Riccio
Chapter 22: PANDAS/PANS
Kandace M. Hoppin & Patricia Rice Doran
Chapter 23: Prader-Willi Syndrome
Moira Wendel & Julia Ogg
Chapter 24: Rett Syndrome
Nicholas W. Gelbar
Chapter 25: Spina Bifida
Fay Roseman & Agnes Shine
Chapter 26: Williams Syndrome
Carly B. Gilson, Terry Monkaba, Maria Mello & Robin Pegg
Part IV. Digestive System Disorders
Chapter 27: Overview of Digestive System Disorders
Cheryl Maykel, Lauren Gammie & Johanna deLeyer-Tiarks
Chapter 28: Celiac Disease
Emily M. Jimenez, Daphne J. Hill & Anita Sohn McCormick
Chapter 29: Hirschsprung's Disease
Craig L. Frisby
Chapter 30: Inflammatory Bowel Disease: Crohn's Disease and Ulcerative
Colitis
Stevie Puckett-Perez & Chelsea Vaughan
Chapter 31: Phenylketonuria
Julia Ogg & Daniel V. Strissel
Part V. Endocrine & Reproductive System Disorders
Chapter 32: Overview of Endocrine & Reproductive System Disorders
Cindy Chin, Graciela E. Silva & Mark Wheeler
Chapter 33: Conditions Associated with Growth
David E. Sandberg & Kristina I. Suorsa Johnson
Chapter 34: Congenital Adrenal Hyperplasia
Allison Fairchild & Madison Preece
Chapter 35: Klinefelter Syndrome
Kristina I. Suorsa Johnson & David E. Sandberg
Chapter 36: Thyroid Disorders
Samantha Coyle & Brooke Stettler
Chapter 37: Turner Syndrome
Kristina I. Suorsa Johnson & David E. Sandberg
Chapter 38: Type 1 Diabetes
Natalie A. Larez & Michelle M. Perfect
Chapter 39: Type 2 Diabetes
Stihlyn Chamberlain & Savina Maria Bello
Part VI. Respiratory System Disorders
Chapter 40: Overview of Respiratory System Disorders
Melissa A. Bray, Cheryl Maykel, Lea Theodore & Justina Petrullo
Chapter 41: Asthma
Cheryl Maykel, Melissa A. Bray, Meghan Long & Lauren Gammie
Chapter 42: Cystic Fibrosis
Jeanette Smith Phoenix & Keiko Aoyagi
Chapter 43: Cytomegalovirus
Maryann Santos
Chapter 44: Sarcoidosis
Adeline Bray, Sar Aravala & Craig Schramm
Part VII. Musculoskeletal Disorders
Chapter 45: Overview of Musculoskeletal Disorders
Sai Aravala, Adeline Bray, Evagelia B. Lolis & Alyssa M. Bunyea
Chapter 46: Achondroplasia
Cynthia A. Riccio & Anita Sohn McCormick
Chapter 47: Charcot Marie Tooth Disease
Jennifer Tucker & Meghan Nickels
Chapter 48: Juvenile Idiopathic Arthritis
Rebecca J. Tipton & Eric L. Robinson
Chapter 49: Marfan Syndrome
Brittany A. Dale & David E. McIntosh
Chapter 50: Muscular Dystrophies
Jennifer Tucker & Megan Jeune
Chapter 51: Osteogenesis Imperfecta
Kelly N. Clark & Christine K. Malecki
Chapter 52: Sotos Syndrome
Kari A. Sassu, Aarti P. Bellara, Michelle Levine-Schmitt, Emily L. Winter,
Katherine R. Nelson, Alyssa M. Bunyea, Cindy C. Labbe, Elena S. Volfinzon,
& Adeline M. Bray
Part VIII. Mixed/Multisystem Disorders
Chapter 53: Overview of Multisystem Disorders
Cynthia A. Riccio
Chapter 54: CHARGE Syndrome
Timothy S. Hartshorne & Lillian J. Slavin
Chapter 55: Cornelia de Lange Syndrome
Emily M. Jimenez & Cynthia A. Riccio
Chapter 56: Fragile X Syndrome
Lea A. Theodore, Adeline M. Bray, Lydia Rumpf, Sai S. Aravala & Justina
Petrullo
Chapter 57: Lysosomal Storage Disorders
Allison Fairchild & Melina Islas
Chapter 58: Mucopolysaccharide Disorders
Carolyn Tureaud, Taylor Kristen-Myers & Michelle Perfect
Chapter 59: Neurofibromatosis
Elizabeth Perdue, Lindsey Carnes & Cynthia A. Riccio
Chapter 60: Pediatric Cancer
Lea A. Theodore, Melissa A. Bray, Lauren Gammie, Cassandra Odell, Larissa
Hoefler, Kerrilyn Surdi, Lydia Rumpf, & Alyssa Perri Elias
Chapter 61: Smith-Magenis Syndrome
James P. Van Haneghan, Abigail Baxter & Harvey N. Switzky
Chapter 62: Sturge-Weber Syndrome
Emily M. Jimenez & George W. Hynd
Chapter 63: Tuberous Sclerosis Complex
Cynthia A. Riccio & Huilin Linda Sun
Chapter 64: Conclusion: Looking Back and Forward
Melissa A. Bray, Michelle M. Perfect & Cynthia A. Riccio
Appendix: Checklist for Developing Plans for Students with Health-Related
Conditions
Index
About the Editors
Julia Ogg
Preface
LeAdelle Phelps as transcribed by Melissa Bray
Part I. Introduction
Chapter 1: Introduction to the Second Edition
Michelle M. Perfect, Cynthia A. Riccio & Melissa A. Bray
Chapter 2: Importance of Coordinated Care in Meeting the Needs of Children
and Families
Susan G. Forman, Melissa C. Fleuhr, Sade S. Porter & Jeffrey D. Shahidullah
Part II. Blood, Cardiovascular and Circulatory System Disorders
Chapter 3: Overview of Circulatory System Disorders
Jeff Bostwick, Clark R. Bray & Heather Kwolek
Chapter 4: Cardiac Disorders
Stewart W. Ehly & Noel Estrada-Hernandez
Chapter 5: Childhood Leukemia
Lea A. Theodore, Karen Cross, Lauren Gammie, Marlena Minkos, Danielle Stern
& Alyssa Perri Elias
Chapter 6: 22q11.2 Deletion Syndrome or DiGeorge Syndrome
Priscilla H. Duong & Hiroko Tanaka
Chapter 7: Hemophilia
Mickey Randolph & Ethan J. Schilling
Chapter 8: Human Immunodeficiency Virus
Tiffany Chenneville & Kamesha Gabbidon
Chapter 9: Noonan Syndrome
Suzanne Margiano, Lorette McWilliams, Johana deLeyer-Tiarks & Carissa
Scogin
Chapter 10: Sickle Cell and other Anemias
Linda W. Morse, Melanie C. Morse & Sarah E. Bills
Part III. Central Nervous System Disorders
Chapter 11: Overview of CNS Disorders
Ivette Merced
Chapter 12: Adrenoleukodystrophy
Harvey Switzky, James P. Van Haneghan & Abigail Baxter
Chapter 13: Agenesis of the Corpus Callosum
Krystal T. Simmons, Bianca S. Watkins & Sherine Presley
Chapter 14: Angelman Syndrome
Sara S. Frye & Allison Fairchild
Chapter 15: Autism
Christine L. Cole & Alana Telesford
Chapter 16: Cerebral Palsy
Sai Sudha Aravala, Adeline Bray & Karen Cross
Chapter 17: Cri-du-Chat
Phyllis S. Ohr
Chapter 18: Down Syndrome
Nicholas W. Gelbar
Chapter 19: Epilepsy
Megan Aros-O'Malley, David L. Wodrich & Randa Jarrar
Chapter 20: Hereditary Ataxia
Taylor-Kristen Myers
Chapter 21: Mitochondrial Disorders
Cynthia K. Lang, Alyssa A. Gonzalez & Cynthia A. Riccio
Chapter 22: PANDAS/PANS
Kandace M. Hoppin & Patricia Rice Doran
Chapter 23: Prader-Willi Syndrome
Moira Wendel & Julia Ogg
Chapter 24: Rett Syndrome
Nicholas W. Gelbar
Chapter 25: Spina Bifida
Fay Roseman & Agnes Shine
Chapter 26: Williams Syndrome
Carly B. Gilson, Terry Monkaba, Maria Mello & Robin Pegg
Part IV. Digestive System Disorders
Chapter 27: Overview of Digestive System Disorders
Cheryl Maykel, Lauren Gammie & Johanna deLeyer-Tiarks
Chapter 28: Celiac Disease
Emily M. Jimenez, Daphne J. Hill & Anita Sohn McCormick
Chapter 29: Hirschsprung's Disease
Craig L. Frisby
Chapter 30: Inflammatory Bowel Disease: Crohn's Disease and Ulcerative
Colitis
Stevie Puckett-Perez & Chelsea Vaughan
Chapter 31: Phenylketonuria
Julia Ogg & Daniel V. Strissel
Part V. Endocrine & Reproductive System Disorders
Chapter 32: Overview of Endocrine & Reproductive System Disorders
Cindy Chin, Graciela E. Silva & Mark Wheeler
Chapter 33: Conditions Associated with Growth
David E. Sandberg & Kristina I. Suorsa Johnson
Chapter 34: Congenital Adrenal Hyperplasia
Allison Fairchild & Madison Preece
Chapter 35: Klinefelter Syndrome
Kristina I. Suorsa Johnson & David E. Sandberg
Chapter 36: Thyroid Disorders
Samantha Coyle & Brooke Stettler
Chapter 37: Turner Syndrome
Kristina I. Suorsa Johnson & David E. Sandberg
Chapter 38: Type 1 Diabetes
Natalie A. Larez & Michelle M. Perfect
Chapter 39: Type 2 Diabetes
Stihlyn Chamberlain & Savina Maria Bello
Part VI. Respiratory System Disorders
Chapter 40: Overview of Respiratory System Disorders
Melissa A. Bray, Cheryl Maykel, Lea Theodore & Justina Petrullo
Chapter 41: Asthma
Cheryl Maykel, Melissa A. Bray, Meghan Long & Lauren Gammie
Chapter 42: Cystic Fibrosis
Jeanette Smith Phoenix & Keiko Aoyagi
Chapter 43: Cytomegalovirus
Maryann Santos
Chapter 44: Sarcoidosis
Adeline Bray, Sar Aravala & Craig Schramm
Part VII. Musculoskeletal Disorders
Chapter 45: Overview of Musculoskeletal Disorders
Sai Aravala, Adeline Bray, Evagelia B. Lolis & Alyssa M. Bunyea
Chapter 46: Achondroplasia
Cynthia A. Riccio & Anita Sohn McCormick
Chapter 47: Charcot Marie Tooth Disease
Jennifer Tucker & Meghan Nickels
Chapter 48: Juvenile Idiopathic Arthritis
Rebecca J. Tipton & Eric L. Robinson
Chapter 49: Marfan Syndrome
Brittany A. Dale & David E. McIntosh
Chapter 50: Muscular Dystrophies
Jennifer Tucker & Megan Jeune
Chapter 51: Osteogenesis Imperfecta
Kelly N. Clark & Christine K. Malecki
Chapter 52: Sotos Syndrome
Kari A. Sassu, Aarti P. Bellara, Michelle Levine-Schmitt, Emily L. Winter,
Katherine R. Nelson, Alyssa M. Bunyea, Cindy C. Labbe, Elena S. Volfinzon,
& Adeline M. Bray
Part VIII. Mixed/Multisystem Disorders
Chapter 53: Overview of Multisystem Disorders
Cynthia A. Riccio
Chapter 54: CHARGE Syndrome
Timothy S. Hartshorne & Lillian J. Slavin
Chapter 55: Cornelia de Lange Syndrome
Emily M. Jimenez & Cynthia A. Riccio
Chapter 56: Fragile X Syndrome
Lea A. Theodore, Adeline M. Bray, Lydia Rumpf, Sai S. Aravala & Justina
Petrullo
Chapter 57: Lysosomal Storage Disorders
Allison Fairchild & Melina Islas
Chapter 58: Mucopolysaccharide Disorders
Carolyn Tureaud, Taylor Kristen-Myers & Michelle Perfect
Chapter 59: Neurofibromatosis
Elizabeth Perdue, Lindsey Carnes & Cynthia A. Riccio
Chapter 60: Pediatric Cancer
Lea A. Theodore, Melissa A. Bray, Lauren Gammie, Cassandra Odell, Larissa
Hoefler, Kerrilyn Surdi, Lydia Rumpf, & Alyssa Perri Elias
Chapter 61: Smith-Magenis Syndrome
James P. Van Haneghan, Abigail Baxter & Harvey N. Switzky
Chapter 62: Sturge-Weber Syndrome
Emily M. Jimenez & George W. Hynd
Chapter 63: Tuberous Sclerosis Complex
Cynthia A. Riccio & Huilin Linda Sun
Chapter 64: Conclusion: Looking Back and Forward
Melissa A. Bray, Michelle M. Perfect & Cynthia A. Riccio
Appendix: Checklist for Developing Plans for Students with Health-Related
Conditions
Index
About the Editors
Series Foreword
Julia Ogg
Preface
LeAdelle Phelps as transcribed by Melissa Bray
Part I. Introduction
Chapter 1: Introduction to the Second Edition
Michelle M. Perfect, Cynthia A. Riccio & Melissa A. Bray
Chapter 2: Importance of Coordinated Care in Meeting the Needs of Children
and Families
Susan G. Forman, Melissa C. Fleuhr, Sade S. Porter & Jeffrey D. Shahidullah
Part II. Blood, Cardiovascular and Circulatory System Disorders
Chapter 3: Overview of Circulatory System Disorders
Jeff Bostwick, Clark R. Bray & Heather Kwolek
Chapter 4: Cardiac Disorders
Stewart W. Ehly & Noel Estrada-Hernandez
Chapter 5: Childhood Leukemia
Lea A. Theodore, Karen Cross, Lauren Gammie, Marlena Minkos, Danielle Stern
& Alyssa Perri Elias
Chapter 6: 22q11.2 Deletion Syndrome or DiGeorge Syndrome
Priscilla H. Duong & Hiroko Tanaka
Chapter 7: Hemophilia
Mickey Randolph & Ethan J. Schilling
Chapter 8: Human Immunodeficiency Virus
Tiffany Chenneville & Kamesha Gabbidon
Chapter 9: Noonan Syndrome
Suzanne Margiano, Lorette McWilliams, Johana deLeyer-Tiarks & Carissa
Scogin
Chapter 10: Sickle Cell and other Anemias
Linda W. Morse, Melanie C. Morse & Sarah E. Bills
Part III. Central Nervous System Disorders
Chapter 11: Overview of CNS Disorders
Ivette Merced
Chapter 12: Adrenoleukodystrophy
Harvey Switzky, James P. Van Haneghan & Abigail Baxter
Chapter 13: Agenesis of the Corpus Callosum
Krystal T. Simmons, Bianca S. Watkins & Sherine Presley
Chapter 14: Angelman Syndrome
Sara S. Frye & Allison Fairchild
Chapter 15: Autism
Christine L. Cole & Alana Telesford
Chapter 16: Cerebral Palsy
Sai Sudha Aravala, Adeline Bray & Karen Cross
Chapter 17: Cri-du-Chat
Phyllis S. Ohr
Chapter 18: Down Syndrome
Nicholas W. Gelbar
Chapter 19: Epilepsy
Megan Aros-O'Malley, David L. Wodrich & Randa Jarrar
Chapter 20: Hereditary Ataxia
Taylor-Kristen Myers
Chapter 21: Mitochondrial Disorders
Cynthia K. Lang, Alyssa A. Gonzalez & Cynthia A. Riccio
Chapter 22: PANDAS/PANS
Kandace M. Hoppin & Patricia Rice Doran
Chapter 23: Prader-Willi Syndrome
Moira Wendel & Julia Ogg
Chapter 24: Rett Syndrome
Nicholas W. Gelbar
Chapter 25: Spina Bifida
Fay Roseman & Agnes Shine
Chapter 26: Williams Syndrome
Carly B. Gilson, Terry Monkaba, Maria Mello & Robin Pegg
Part IV. Digestive System Disorders
Chapter 27: Overview of Digestive System Disorders
Cheryl Maykel, Lauren Gammie & Johanna deLeyer-Tiarks
Chapter 28: Celiac Disease
Emily M. Jimenez, Daphne J. Hill & Anita Sohn McCormick
Chapter 29: Hirschsprung's Disease
Craig L. Frisby
Chapter 30: Inflammatory Bowel Disease: Crohn's Disease and Ulcerative
Colitis
Stevie Puckett-Perez & Chelsea Vaughan
Chapter 31: Phenylketonuria
Julia Ogg & Daniel V. Strissel
Part V. Endocrine & Reproductive System Disorders
Chapter 32: Overview of Endocrine & Reproductive System Disorders
Cindy Chin, Graciela E. Silva & Mark Wheeler
Chapter 33: Conditions Associated with Growth
David E. Sandberg & Kristina I. Suorsa Johnson
Chapter 34: Congenital Adrenal Hyperplasia
Allison Fairchild & Madison Preece
Chapter 35: Klinefelter Syndrome
Kristina I. Suorsa Johnson & David E. Sandberg
Chapter 36: Thyroid Disorders
Samantha Coyle & Brooke Stettler
Chapter 37: Turner Syndrome
Kristina I. Suorsa Johnson & David E. Sandberg
Chapter 38: Type 1 Diabetes
Natalie A. Larez & Michelle M. Perfect
Chapter 39: Type 2 Diabetes
Stihlyn Chamberlain & Savina Maria Bello
Part VI. Respiratory System Disorders
Chapter 40: Overview of Respiratory System Disorders
Melissa A. Bray, Cheryl Maykel, Lea Theodore & Justina Petrullo
Chapter 41: Asthma
Cheryl Maykel, Melissa A. Bray, Meghan Long & Lauren Gammie
Chapter 42: Cystic Fibrosis
Jeanette Smith Phoenix & Keiko Aoyagi
Chapter 43: Cytomegalovirus
Maryann Santos
Chapter 44: Sarcoidosis
Adeline Bray, Sar Aravala & Craig Schramm
Part VII. Musculoskeletal Disorders
Chapter 45: Overview of Musculoskeletal Disorders
Sai Aravala, Adeline Bray, Evagelia B. Lolis & Alyssa M. Bunyea
Chapter 46: Achondroplasia
Cynthia A. Riccio & Anita Sohn McCormick
Chapter 47: Charcot Marie Tooth Disease
Jennifer Tucker & Meghan Nickels
Chapter 48: Juvenile Idiopathic Arthritis
Rebecca J. Tipton & Eric L. Robinson
Chapter 49: Marfan Syndrome
Brittany A. Dale & David E. McIntosh
Chapter 50: Muscular Dystrophies
Jennifer Tucker & Megan Jeune
Chapter 51: Osteogenesis Imperfecta
Kelly N. Clark & Christine K. Malecki
Chapter 52: Sotos Syndrome
Kari A. Sassu, Aarti P. Bellara, Michelle Levine-Schmitt, Emily L. Winter,
Katherine R. Nelson, Alyssa M. Bunyea, Cindy C. Labbe, Elena S. Volfinzon,
& Adeline M. Bray
Part VIII. Mixed/Multisystem Disorders
Chapter 53: Overview of Multisystem Disorders
Cynthia A. Riccio
Chapter 54: CHARGE Syndrome
Timothy S. Hartshorne & Lillian J. Slavin
Chapter 55: Cornelia de Lange Syndrome
Emily M. Jimenez & Cynthia A. Riccio
Chapter 56: Fragile X Syndrome
Lea A. Theodore, Adeline M. Bray, Lydia Rumpf, Sai S. Aravala & Justina
Petrullo
Chapter 57: Lysosomal Storage Disorders
Allison Fairchild & Melina Islas
Chapter 58: Mucopolysaccharide Disorders
Carolyn Tureaud, Taylor Kristen-Myers & Michelle Perfect
Chapter 59: Neurofibromatosis
Elizabeth Perdue, Lindsey Carnes & Cynthia A. Riccio
Chapter 60: Pediatric Cancer
Lea A. Theodore, Melissa A. Bray, Lauren Gammie, Cassandra Odell, Larissa
Hoefler, Kerrilyn Surdi, Lydia Rumpf, & Alyssa Perri Elias
Chapter 61: Smith-Magenis Syndrome
James P. Van Haneghan, Abigail Baxter & Harvey N. Switzky
Chapter 62: Sturge-Weber Syndrome
Emily M. Jimenez & George W. Hynd
Chapter 63: Tuberous Sclerosis Complex
Cynthia A. Riccio & Huilin Linda Sun
Chapter 64: Conclusion: Looking Back and Forward
Melissa A. Bray, Michelle M. Perfect & Cynthia A. Riccio
Appendix: Checklist for Developing Plans for Students with Health-Related
Conditions
Index
About the Editors
Julia Ogg
Preface
LeAdelle Phelps as transcribed by Melissa Bray
Part I. Introduction
Chapter 1: Introduction to the Second Edition
Michelle M. Perfect, Cynthia A. Riccio & Melissa A. Bray
Chapter 2: Importance of Coordinated Care in Meeting the Needs of Children
and Families
Susan G. Forman, Melissa C. Fleuhr, Sade S. Porter & Jeffrey D. Shahidullah
Part II. Blood, Cardiovascular and Circulatory System Disorders
Chapter 3: Overview of Circulatory System Disorders
Jeff Bostwick, Clark R. Bray & Heather Kwolek
Chapter 4: Cardiac Disorders
Stewart W. Ehly & Noel Estrada-Hernandez
Chapter 5: Childhood Leukemia
Lea A. Theodore, Karen Cross, Lauren Gammie, Marlena Minkos, Danielle Stern
& Alyssa Perri Elias
Chapter 6: 22q11.2 Deletion Syndrome or DiGeorge Syndrome
Priscilla H. Duong & Hiroko Tanaka
Chapter 7: Hemophilia
Mickey Randolph & Ethan J. Schilling
Chapter 8: Human Immunodeficiency Virus
Tiffany Chenneville & Kamesha Gabbidon
Chapter 9: Noonan Syndrome
Suzanne Margiano, Lorette McWilliams, Johana deLeyer-Tiarks & Carissa
Scogin
Chapter 10: Sickle Cell and other Anemias
Linda W. Morse, Melanie C. Morse & Sarah E. Bills
Part III. Central Nervous System Disorders
Chapter 11: Overview of CNS Disorders
Ivette Merced
Chapter 12: Adrenoleukodystrophy
Harvey Switzky, James P. Van Haneghan & Abigail Baxter
Chapter 13: Agenesis of the Corpus Callosum
Krystal T. Simmons, Bianca S. Watkins & Sherine Presley
Chapter 14: Angelman Syndrome
Sara S. Frye & Allison Fairchild
Chapter 15: Autism
Christine L. Cole & Alana Telesford
Chapter 16: Cerebral Palsy
Sai Sudha Aravala, Adeline Bray & Karen Cross
Chapter 17: Cri-du-Chat
Phyllis S. Ohr
Chapter 18: Down Syndrome
Nicholas W. Gelbar
Chapter 19: Epilepsy
Megan Aros-O'Malley, David L. Wodrich & Randa Jarrar
Chapter 20: Hereditary Ataxia
Taylor-Kristen Myers
Chapter 21: Mitochondrial Disorders
Cynthia K. Lang, Alyssa A. Gonzalez & Cynthia A. Riccio
Chapter 22: PANDAS/PANS
Kandace M. Hoppin & Patricia Rice Doran
Chapter 23: Prader-Willi Syndrome
Moira Wendel & Julia Ogg
Chapter 24: Rett Syndrome
Nicholas W. Gelbar
Chapter 25: Spina Bifida
Fay Roseman & Agnes Shine
Chapter 26: Williams Syndrome
Carly B. Gilson, Terry Monkaba, Maria Mello & Robin Pegg
Part IV. Digestive System Disorders
Chapter 27: Overview of Digestive System Disorders
Cheryl Maykel, Lauren Gammie & Johanna deLeyer-Tiarks
Chapter 28: Celiac Disease
Emily M. Jimenez, Daphne J. Hill & Anita Sohn McCormick
Chapter 29: Hirschsprung's Disease
Craig L. Frisby
Chapter 30: Inflammatory Bowel Disease: Crohn's Disease and Ulcerative
Colitis
Stevie Puckett-Perez & Chelsea Vaughan
Chapter 31: Phenylketonuria
Julia Ogg & Daniel V. Strissel
Part V. Endocrine & Reproductive System Disorders
Chapter 32: Overview of Endocrine & Reproductive System Disorders
Cindy Chin, Graciela E. Silva & Mark Wheeler
Chapter 33: Conditions Associated with Growth
David E. Sandberg & Kristina I. Suorsa Johnson
Chapter 34: Congenital Adrenal Hyperplasia
Allison Fairchild & Madison Preece
Chapter 35: Klinefelter Syndrome
Kristina I. Suorsa Johnson & David E. Sandberg
Chapter 36: Thyroid Disorders
Samantha Coyle & Brooke Stettler
Chapter 37: Turner Syndrome
Kristina I. Suorsa Johnson & David E. Sandberg
Chapter 38: Type 1 Diabetes
Natalie A. Larez & Michelle M. Perfect
Chapter 39: Type 2 Diabetes
Stihlyn Chamberlain & Savina Maria Bello
Part VI. Respiratory System Disorders
Chapter 40: Overview of Respiratory System Disorders
Melissa A. Bray, Cheryl Maykel, Lea Theodore & Justina Petrullo
Chapter 41: Asthma
Cheryl Maykel, Melissa A. Bray, Meghan Long & Lauren Gammie
Chapter 42: Cystic Fibrosis
Jeanette Smith Phoenix & Keiko Aoyagi
Chapter 43: Cytomegalovirus
Maryann Santos
Chapter 44: Sarcoidosis
Adeline Bray, Sar Aravala & Craig Schramm
Part VII. Musculoskeletal Disorders
Chapter 45: Overview of Musculoskeletal Disorders
Sai Aravala, Adeline Bray, Evagelia B. Lolis & Alyssa M. Bunyea
Chapter 46: Achondroplasia
Cynthia A. Riccio & Anita Sohn McCormick
Chapter 47: Charcot Marie Tooth Disease
Jennifer Tucker & Meghan Nickels
Chapter 48: Juvenile Idiopathic Arthritis
Rebecca J. Tipton & Eric L. Robinson
Chapter 49: Marfan Syndrome
Brittany A. Dale & David E. McIntosh
Chapter 50: Muscular Dystrophies
Jennifer Tucker & Megan Jeune
Chapter 51: Osteogenesis Imperfecta
Kelly N. Clark & Christine K. Malecki
Chapter 52: Sotos Syndrome
Kari A. Sassu, Aarti P. Bellara, Michelle Levine-Schmitt, Emily L. Winter,
Katherine R. Nelson, Alyssa M. Bunyea, Cindy C. Labbe, Elena S. Volfinzon,
& Adeline M. Bray
Part VIII. Mixed/Multisystem Disorders
Chapter 53: Overview of Multisystem Disorders
Cynthia A. Riccio
Chapter 54: CHARGE Syndrome
Timothy S. Hartshorne & Lillian J. Slavin
Chapter 55: Cornelia de Lange Syndrome
Emily M. Jimenez & Cynthia A. Riccio
Chapter 56: Fragile X Syndrome
Lea A. Theodore, Adeline M. Bray, Lydia Rumpf, Sai S. Aravala & Justina
Petrullo
Chapter 57: Lysosomal Storage Disorders
Allison Fairchild & Melina Islas
Chapter 58: Mucopolysaccharide Disorders
Carolyn Tureaud, Taylor Kristen-Myers & Michelle Perfect
Chapter 59: Neurofibromatosis
Elizabeth Perdue, Lindsey Carnes & Cynthia A. Riccio
Chapter 60: Pediatric Cancer
Lea A. Theodore, Melissa A. Bray, Lauren Gammie, Cassandra Odell, Larissa
Hoefler, Kerrilyn Surdi, Lydia Rumpf, & Alyssa Perri Elias
Chapter 61: Smith-Magenis Syndrome
James P. Van Haneghan, Abigail Baxter & Harvey N. Switzky
Chapter 62: Sturge-Weber Syndrome
Emily M. Jimenez & George W. Hynd
Chapter 63: Tuberous Sclerosis Complex
Cynthia A. Riccio & Huilin Linda Sun
Chapter 64: Conclusion: Looking Back and Forward
Melissa A. Bray, Michelle M. Perfect & Cynthia A. Riccio
Appendix: Checklist for Developing Plans for Students with Health-Related
Conditions
Index
About the Editors