This book provides an unique resource for registered nurses working in hospice palliative care at home and for the community, outside of acute care settings and also incorporates literature related to palliative care in acute health care settings, as part of the overall services and supports required. Very few resources exist which specifically address hospice palliative care in the home setting, despite the fact that most palliative care occurs outside acute care settings and is primarily supported by unpaid family caregivers. An overview of the concerns for individuals and families, as well…mehr
This book provides an unique resource for registered nurses working in hospice palliative care at home and for the community, outside of acute care settings and also incorporates literature related to palliative care in acute health care settings, as part of the overall services and supports required. Very few resources exist which specifically address hospice palliative care in the home setting, despite the fact that most palliative care occurs outside acute care settings and is primarily supported by unpaid family caregivers. An overview of the concerns for individuals and families, as well as specific nursing interventions, from all ages would be an excellent support for nursing students and practicing registered nurses alike. The book structure begins with a description of the goals and objectives of hospice palliative care and the nursing role in providing excellent supportive care. Chapters include research findings and specifically research completed bythe authors in the areas of pediatric palliative care, palliative care for those with dementia, and the needs of family caregivers in bereavement. Interventions developed by the editors are provided in this book, such as the "Finding Balance Intervention" for bereaved caregivers; the "Reclaiming Yourself" tool for bereaved spouses of partners with dementia; and The Keeping Hope Possible Toolkit for families of children with life threatening and life limiting illnesses. The development and application of these theory-based interventions are also highlighted. Videos and vignettes written by family caregivers about what was helpful for them, provide a patient-and family-centered approach. The book will benefit nursing students, educators and practicing registered nurses by providing information, theory, and evidence from research.
Lorraine Holtslander, RN, PhD, CHPCN(c) is a Professor in the College of Nursing at the University of Saskatchewan. Her clinical practice is in Palliative Home Care while the focus of her research is palliative care, grief and loss, and supporting family caregivers during bereavement. Shelley Peacock, RN, PhD is an Associate Professor with the College of Nursing, University of Saskatchewan in Saskatoon, Canada. Her clinical and research experience has been with older adults and their family carers; her current focus is within the context of dementia care and the experience of end-of-life care and bereavement. Jill Bally, RN, PhD is an Associate Professor in the College of Nursing, University of Saskatchewan. Her clinical practice and research is focused on the experiences of families of infants, children, and adolescents who are impacted by life limiting and life threatening illness.
Inhaltsangabe
Chapter 1. Overview of Hospice Palliative Care in a Community and Home Setting (theoretical and conceptual models, populations, ages, diseases, transitions, bereavement support).- Chapter 2. The Formal Caregiver Perspective.- Chapter 2. Global Perspectives from the UK.- Chapter 3. The Family Caregiver Perspective.- Chapter 3. Global Perspectives from Europe.- Chapter 4. Global Perspectives: Nigerian Context.- Chapter 5. Palliare (UK/Europe).- Chapter 6. Global Perspectives from Canada.- Chapter 7. Global Perspectives: New Zealand.- Chapter 8. Global Perspectives: US.- Chapter 9. Global Perspectives: Conclusions.- Chapters 10. Finding Balance.- Chapter 11. Keeping hope possible.- Chapter 12. Reclaiming Yourself.- Chapter 13. Living with Hope.- Chapter 14.COPE intervention for caregiver.- Chapter 15. Dementia.- Chapter 16. Heart Failure.- Chapter 17. Older Adults with Cancer.- Chapter 18. Long Term Care.- Chapter 19. Prisons.- Chapter 20. Pediatric Home Care.- Chapter 23. Looking ahead.
Chapter 1. Overview of Hospice Palliative Care in a Community and Home Setting (theoretical and conceptual models, populations, ages, diseases, transitions, bereavement support).- Chapter 2. The Formal Caregiver Perspective.- Chapter 2. Global Perspectives from the UK.- Chapter 3. The Family Caregiver Perspective.- Chapter 3. Global Perspectives from Europe.- Chapter 4. Global Perspectives: Nigerian Context.- Chapter 5. Palliare (UK/Europe).- Chapter 6. Global Perspectives from Canada.- Chapter 7. Global Perspectives: New Zealand.- Chapter 8. Global Perspectives: US.- Chapter 9. Global Perspectives: Conclusions.- Chapters 10. Finding Balance.- Chapter 11. Keeping hope possible.- Chapter 12. Reclaiming Yourself.- Chapter 13. Living with Hope.- Chapter 14.COPE intervention for caregiver.- Chapter 15. Dementia.- Chapter 16. Heart Failure.- Chapter 17. Older Adults with Cancer.- Chapter 18. Long Term Care.- Chapter 19. Prisons.- Chapter 20. Pediatric Home Care.- Chapter 23. Looking ahead.
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