Rachael Jones

I Like Your Bangs

• Broschiertes Buch

Produktbeschreibung

"If you're looking for a little 'bangspiration' of your own then look no further than these portraits taken at SXSW music festival. You might just find yourself reaching for the phone to call your stylist, or if you're really brave, reaching for the scissors..."

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Produktdetails

• Verlag: Sam Robinson Photography
• Seitenzahl: 98
• Erscheinungstermin: 6. März 2015
• Englisch
• Abmessung: 254mm x 178mm x 7mm
• Gewicht: 291g
• ISBN-13: 9780692400258
• ISBN-10: 0692400257
• Artikelnr.: 44579790

Autorenporträt

Rachael and both her children have XLH (X-linked Hypophosphatemia). Rachael personally understands the fear and uncertainty that come with a rare disease diagnosis. Even though she had known about XLH since she was a child, she felt helpless and worried when her own children were diagnosed. Thankfully she came across patient advocacy organizations, that connected her with both a medical community and a community of fellow XLH'ers. She went from feeling helpless and fearful to feeling supported and encouraged.Rachael wrote this book, in collaboration with her children, from a desire for other children andfamilies to feel encouraged as well. She hopes that children will connect with the characters inthis book and relate with the story of someone living with XLH. Most importantly, she desiresthat children and families receive a message of hope, leading to an understanding that someoneliving with XLH can still live a full and meaningful life.