Myra Bluebond-Langner

In the Shadow of Illness

Parents and Siblings of the Chronically Ill Child

• Broschiertes Buch

Produktbeschreibung

Suggests that understanding the impact of the illness lies not in identifying deficiencies, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. This book focuses on the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis.

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Produktdetails

• Verlag: Princeton University Press
• Seitenzahl: 322
• Erscheinungstermin: 19. Juni 2000
• Englisch
• Abmessung: 229mm x 152mm x 19mm
• Gewicht: 490g
• ISBN-13: 9780691050799
• ISBN-10: 0691050791
• Artikelnr.: 21842625

Autorenporträt

Myra Bluebond-Langner is professor emerita at University College London and Board of Governors Professor of Anthropology Emerita at Rutgers University. She is also the author of The Private Worlds of Dying Children (Princeton), winner of the Margaret Mead Award.

Inhaltsangabe

List of Tables ix
Preface xi
Acknowledgments xv
PART 1. INTRODUCTION 1
Chapter 1. The Impact of Cystic Fibrosis on Well Siblings 3
1. Approaches to the Study of Well Siblings 3
2. An Ethnographic Approach 10
3. A Framework for Analysis 12
PART 11. PORTRAITS IN WAITING: NINE FAMILIES 15
Introduction 17
Chapter 2. The Daleys 19
Chapter 3. The Shermans 26
Chapter 4. The Farringtons 39
Chapter 5. The Campbells 48
Chapter 6. The Reynoldses 59
Chapter 7. The Chases 74
Chapter 8. The Woodwards 90
Chapter 9. The Fosters 100
Chapter 10. The Baileys 122
PART III. CONTAINING THE INTRUSION 133
Chapter 11. Parents' Responses to the Care the Ill Child Requires and the
Concerns the Child's Condition Engenders 135
1. Issues and Strategies 137
2. Strategies, Normalcy, and Control 186
Chapter 12. Well Siblings' Views of Cystic Fibrosis and Their Ill Siblings'
Condition 197
1. Well Siblings' Views 197
2. Formation of Well Siblings' Views 212
Chapter 13. Well Siblings' Relationships with Parents and Ill Siblings 215
1. Resources and Communication 216
2. The Well Siblings' Position in the Family 260
Afterword: Meeting the Needs of the Well Sibling 265
1. General Guide lines for Clinical Intervention 266
2. Communication in the Family: The Case for "Shuttle Diplomacy" 267
Glossary 273
Works Cited 275
Index 295

Rezensionen

An important contribution to the ethnography of illness experience. . . .This book will be of great value to researchers and clinicians with interests in how families cope with chronic illness, life-threatening conditions, and genetic disorders.