Suggests that understanding the impact of the illness lies not in identifying deficiencies, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. This book focuses on the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis.
Suggests that understanding the impact of the illness lies not in identifying deficiencies, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. This book focuses on the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis.
List of Tables ix Preface xi Acknowledgments xv PART 1. INTRODUCTION 1 Chapter 1. The Impact of Cystic Fibrosis on Well Siblings 3 1. Approaches to the Study of Well Siblings 3 2. An Ethnographic Approach 10 3. A Framework for Analysis 12 PART 11. PORTRAITS IN WAITING: NINE FAMILIES 15 Introduction 17 Chapter 2. The Daleys 19 Chapter 3. The Shermans 26 Chapter 4. The Farringtons 39 Chapter 5. The Campbells 48 Chapter 6. The Reynoldses 59 Chapter 7. The Chases 74 Chapter 8. The Woodwards 90 Chapter 9. The Fosters 100 Chapter 10. The Baileys 122 PART III. CONTAINING THE INTRUSION 133 Chapter 11. Parents' Responses to the Care the Ill Child Requires and the Concerns the Child's Condition Engenders 135 1. Issues and Strategies 137 2. Strategies, Normalcy, and Control 186 Chapter 12. Well Siblings' Views of Cystic Fibrosis and Their Ill Siblings' Condition 197 1. Well Siblings' Views 197 2. Formation of Well Siblings' Views 212 Chapter 13. Well Siblings' Relationships with Parents and Ill Siblings 215 1. Resources and Communication 216 2. The Well Siblings' Position in the Family 260 Afterword: Meeting the Needs of the Well Sibling 265 1. General Guide lines for Clinical Intervention 266 2. Communication in the Family: The Case for "Shuttle Diplomacy" 267 Glossary 273 Works Cited 275 Index 295
List of Tables ix Preface xi Acknowledgments xv PART 1. INTRODUCTION 1 Chapter 1. The Impact of Cystic Fibrosis on Well Siblings 3 1. Approaches to the Study of Well Siblings 3 2. An Ethnographic Approach 10 3. A Framework for Analysis 12 PART 11. PORTRAITS IN WAITING: NINE FAMILIES 15 Introduction 17 Chapter 2. The Daleys 19 Chapter 3. The Shermans 26 Chapter 4. The Farringtons 39 Chapter 5. The Campbells 48 Chapter 6. The Reynoldses 59 Chapter 7. The Chases 74 Chapter 8. The Woodwards 90 Chapter 9. The Fosters 100 Chapter 10. The Baileys 122 PART III. CONTAINING THE INTRUSION 133 Chapter 11. Parents' Responses to the Care the Ill Child Requires and the Concerns the Child's Condition Engenders 135 1. Issues and Strategies 137 2. Strategies, Normalcy, and Control 186 Chapter 12. Well Siblings' Views of Cystic Fibrosis and Their Ill Siblings' Condition 197 1. Well Siblings' Views 197 2. Formation of Well Siblings' Views 212 Chapter 13. Well Siblings' Relationships with Parents and Ill Siblings 215 1. Resources and Communication 216 2. The Well Siblings' Position in the Family 260 Afterword: Meeting the Needs of the Well Sibling 265 1. General Guide lines for Clinical Intervention 266 2. Communication in the Family: The Case for "Shuttle Diplomacy" 267 Glossary 273 Works Cited 275 Index 295
Rezensionen
An important contribution to the ethnography of illness experience. . . .This book will be of great value to researchers and clinicians with interests in how families cope with chronic illness, life-threatening conditions, and genetic disorders.
Es gelten unsere Allgemeinen Geschäftsbedingungen: www.buecher.de/agb
Impressum
www.buecher.de ist ein Shop der buecher.de GmbH & Co. KG Bürgermeister-Wegele-Str. 12, 86167 Augsburg Amtsgericht Augsburg HRA 13309
