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Interdisciplinary Pediatric Palliative Care provides a uniquely integrated, comprehensive resource about palliative care for seriously ill children and their families. This second edition is founded on a wealth of evidence that reflects the innovations in pediatric palliative care science over the past 10 years, including initiatives in clinical care, research, and education. It is appropriate for all pediatric palliative clinicians (PPC), including physicians, nurses, psychosocial clinicians, chaplains, and many others. All subspecialists who deliver care to seriously ill children, will find this book a must-have for their work.…mehr
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Interdisciplinary Pediatric Palliative Care provides a uniquely integrated, comprehensive resource about palliative care for seriously ill children and their families. This second edition is founded on a wealth of evidence that reflects the innovations in pediatric palliative care science over the past 10 years, including initiatives in clinical care, research, and education. It is appropriate for all pediatric palliative clinicians (PPC), including physicians, nurses, psychosocial clinicians, chaplains, and many others. All subspecialists who deliver care to seriously ill children, will find this book a must-have for their work.
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Hinweis: Dieser Artikel kann nur an eine deutsche Lieferadresse ausgeliefert werden.
Produktdetails
- Produktdetails
- Verlag: Hurst & Co.
- 2nd edition
- Seitenzahl: 624
- Erscheinungstermin: 11. März 2022
- Englisch
- Abmessung: 282mm x 224mm x 38mm
- Gewicht: 2000g
- ISBN-13: 9780190090012
- ISBN-10: 0190090014
- Artikelnr.: 62645851
- Herstellerkennzeichnung
- Libri GmbH
- Europaallee 1
- 36244 Bad Hersfeld
- 06621 890
- Verlag: Hurst & Co.
- 2nd edition
- Seitenzahl: 624
- Erscheinungstermin: 11. März 2022
- Englisch
- Abmessung: 282mm x 224mm x 38mm
- Gewicht: 2000g
- ISBN-13: 9780190090012
- ISBN-10: 0190090014
- Artikelnr.: 62645851
- Herstellerkennzeichnung
- Libri GmbH
- Europaallee 1
- 36244 Bad Hersfeld
- 06621 890
Dr. Joanne Wolfe is the Chief of the Division of Pediatric Palliative Care in the Department of Psychosocial Oncology and Palliative Care at the Dana-Farber Cancer Institute (DFCI) and the Director of Palliative Care at Boston Children's Hospital (BCH) and is a Professor of Pediatrics at Harvard Medical School. In addition to providing clinical pediatric palliative care, Dr. Wolfe directs a research program focusing on easing suffering and promoting wellbeing in seriously ill children and their families and co-directs the Pediatric Palliative Care Research Network. Dr. Pamela S. Hinds is the Executive Director of the Department of Nursing Science, Professional Practice, and Quality, the William and Joanne Conway Endowed Chair in Nursing Research, and the Research Integrity Officer at Children's National Health System in Washington, D.C., and a Professor of Pediatrics at the George Washington University, School of Medicine and Health Sciences in Washington, D. C. She is adjunct professor for the University of Pennsylvania, School of Nursing, Johns Hopkins University, School of Nursing, the University of Maryland, College of Nursing, and the Fudan University of Shanghai, China. Barbara M. Sourkes is Professor of Pediatrics (Critical Care) and Psychiatry and Behavioral Sciences (by courtesy of the Lucile Salter Packard Children's Hospital) at Stanford University. She has been the Kriewall-Haehl Director of the Palliative Care Program since 2001.
* Section I Setting the Stage * Chapter 1 The Language of Pediatric Palliative Care * Joanne Wolfe
Pamela S. Hinds
and Barbara M. Sourkes * Chapter 2 The New and Changing Landscape of Children Receiving Pediatric Palliative Care in the US: An Evidence Base Emerges * Bryan Sisk
Kimberley Widger
and Chris Feudtner * Chapter 3 Children's Voices: The Experience of Patients and Their Siblings * Anna C. Muriel
Abby R. Rosenberg
Barbara M. Sourkes * Chapter 4 Settings of Care * Moshe Cohn
Emily Johnston
and Julia McBee * Chapter 5 Cultural Humility
Social Determinants
and Disparities in Pediatric Palliative Care * Danielle Jonas
Alexis Morvant
and Sara Munoz-Blanco * Chapter 6 Program Development * Tammy I. Kang
Daniel P. Mahoney
Meaghann S. Weaver
and Stacy S. Remke * Chapter 7 Interdisciplinary Education and Training * Katharine E. Brock
Jennifer Hwang
Marsha Joselow
Blyth Lord
Janet Duncan
and Deborah A. Lafond * Chapter 8 Quality in Pediatric Palliative Care * Conrad Williams IV
Amanda L. Thompson
and Kathie Kobler * Section II Relationships and Communication * Chapter 9 Relationships with Children and Ensuring Their Voices in Decision-Making * Karen Ron-Li Liaw
Becky Lois
Julia McBee
and Erin Collins * Chapter 10 Family Experience and Relationships * Kim Mooney-Doyle
Meghan L. Marsac
Elissa G. Miller
Janet A. Deatrick
and Melissa A. Alderfer * Chapter 11 Team Relationships * Michelle R. Brown
Jody Chrastek
and Kris Catrine * Chapter 12 Witness to Suffering: The Clinician Experience * Barbara M. Sourkes
Stephen Liben
and Danai Papadatou * Chapter 13 Practical Aspects of Palliative Care Communication * Lindsay Ragsdale
Tessie October
and Caitlin Scanlon * Chapter 14 Advance Care Planning Along the Care Continuum * Jonathan Mullin
Rachael Burgess
and Justin Baker * Chapter 15 Anticipatory Grief and Bereavement * Jennifer M. Snaman
Terrah Foster Akard
Sue E. Morris
and Lori Wiener * Chapter 16 Resolving Conflicts in Pediatric Palliative Care * Robert Macauley
Jody Chrastek
Amie Brandtjen
Harvey Cohen
and Thaddeus M. Pope * Section III Easing Suffering * Chapter 17 Psychological Symptoms * Chase Samsel
Kathleen Perko
Lori Wiener
and Maryland Pao * Chapter 18 Existential Distress and Suffering * Elisha Waldman and Mark Bartel * Chapter 19 Neurological Symptoms * Shih-Ning Liaw
Jenna E. Freitas
and Julie Hauer * Chapter 20 Pediatric Delirium in the Palliative Care Setting * Paula Tran
Jeffrey Moss
Eunice Koh
Katherine Ort
Richard J. Shaw
and Michelle Goldsmith * Chapter 21 Fatigue * Christina Ullrich
Shana Jacobs
and Pamela S. Hinds * Chapter 22 Sleep and Circadian Rhythms * Toluwalase A. Ajayi
Eric S. Zhou
and Valerie E. Rogers * Chapter 23 Prevention and Treatment of Pain in Children with Serious Illness * Stefan J. Friedrichsdorf
Lauren Heathcote
Michael Sangster
Donna Eull
and Amber Borucki * Chapter 24 Respiratory Symptoms * Rose Sharpe
Megan Jordan
Raymond Barfield
Sarah Gall
Margarita Bidegain
Kristen Lakis
Renee Bartle
and Emily Layok * Chapter 25 Gastrointestinal Symptoms * Kevin Madden and Margaret M. Mahon * Chapter 26 Dermatologic Conditions and Symptom Control * Kimberly A. Bower
Julie Good
Anke Reineke
Cristina Gordon
and Michele R. Burdette-Taylor * Chapter 27 Easing Distress When Death Is Near * Debra Lotstein and Rachel Rusch * Section IV Illness and Treatment Experience * Chapter 28 Prenatal and Neonatal Palliative Care * Christy Cummings
Anne Sullivan
Lauren Cramer
and Renee Boss * Chapter 29 Children with Complex Chronic Conditions * Jori Bogetz
Christopher A. Collura
and Christy Torkildson * Chapter 30 Advanced Heart Disease * Melissa K. Cousino
Chelsea Heneghan
and Elizabeth D. Blume * Chapter 31 Cystic Fibrosis and Other Childhood Lung Diseases * Elisabeth Potts Dellon
Jessica Goggin
and Elliot Rabinowitz * Chapter 32 Solid Organ Transplant * Timothy Klouda
Debra Boyer
Lynne Helfand
Michael McCown
Nicholas Purol
and Dawn Freiberger * Chapter 33 Oncological Illnesses * Sarah McCarthy
Kimberly A. Pyke-Grimm
and Angela M. Feraco * Chapter 34 Hematologic Symptoms * Barbara Speller-Brown
Jillian Campbell
Allistair Abraham
Priyal Patel
Lisa Humphrey
and Jennifer Webb * Chapter 35 Primary and Acquired Immune Deficiency Disorders * Wei Li Adeline Koay
Natella Rakhmanina
Megan Wilkins
Sarah Matthews
and Ami Doshi
Pamela S. Hinds
and Barbara M. Sourkes * Chapter 2 The New and Changing Landscape of Children Receiving Pediatric Palliative Care in the US: An Evidence Base Emerges * Bryan Sisk
Kimberley Widger
and Chris Feudtner * Chapter 3 Children's Voices: The Experience of Patients and Their Siblings * Anna C. Muriel
Abby R. Rosenberg
Barbara M. Sourkes * Chapter 4 Settings of Care * Moshe Cohn
Emily Johnston
and Julia McBee * Chapter 5 Cultural Humility
Social Determinants
and Disparities in Pediatric Palliative Care * Danielle Jonas
Alexis Morvant
and Sara Munoz-Blanco * Chapter 6 Program Development * Tammy I. Kang
Daniel P. Mahoney
Meaghann S. Weaver
and Stacy S. Remke * Chapter 7 Interdisciplinary Education and Training * Katharine E. Brock
Jennifer Hwang
Marsha Joselow
Blyth Lord
Janet Duncan
and Deborah A. Lafond * Chapter 8 Quality in Pediatric Palliative Care * Conrad Williams IV
Amanda L. Thompson
and Kathie Kobler * Section II Relationships and Communication * Chapter 9 Relationships with Children and Ensuring Their Voices in Decision-Making * Karen Ron-Li Liaw
Becky Lois
Julia McBee
and Erin Collins * Chapter 10 Family Experience and Relationships * Kim Mooney-Doyle
Meghan L. Marsac
Elissa G. Miller
Janet A. Deatrick
and Melissa A. Alderfer * Chapter 11 Team Relationships * Michelle R. Brown
Jody Chrastek
and Kris Catrine * Chapter 12 Witness to Suffering: The Clinician Experience * Barbara M. Sourkes
Stephen Liben
and Danai Papadatou * Chapter 13 Practical Aspects of Palliative Care Communication * Lindsay Ragsdale
Tessie October
and Caitlin Scanlon * Chapter 14 Advance Care Planning Along the Care Continuum * Jonathan Mullin
Rachael Burgess
and Justin Baker * Chapter 15 Anticipatory Grief and Bereavement * Jennifer M. Snaman
Terrah Foster Akard
Sue E. Morris
and Lori Wiener * Chapter 16 Resolving Conflicts in Pediatric Palliative Care * Robert Macauley
Jody Chrastek
Amie Brandtjen
Harvey Cohen
and Thaddeus M. Pope * Section III Easing Suffering * Chapter 17 Psychological Symptoms * Chase Samsel
Kathleen Perko
Lori Wiener
and Maryland Pao * Chapter 18 Existential Distress and Suffering * Elisha Waldman and Mark Bartel * Chapter 19 Neurological Symptoms * Shih-Ning Liaw
Jenna E. Freitas
and Julie Hauer * Chapter 20 Pediatric Delirium in the Palliative Care Setting * Paula Tran
Jeffrey Moss
Eunice Koh
Katherine Ort
Richard J. Shaw
and Michelle Goldsmith * Chapter 21 Fatigue * Christina Ullrich
Shana Jacobs
and Pamela S. Hinds * Chapter 22 Sleep and Circadian Rhythms * Toluwalase A. Ajayi
Eric S. Zhou
and Valerie E. Rogers * Chapter 23 Prevention and Treatment of Pain in Children with Serious Illness * Stefan J. Friedrichsdorf
Lauren Heathcote
Michael Sangster
Donna Eull
and Amber Borucki * Chapter 24 Respiratory Symptoms * Rose Sharpe
Megan Jordan
Raymond Barfield
Sarah Gall
Margarita Bidegain
Kristen Lakis
Renee Bartle
and Emily Layok * Chapter 25 Gastrointestinal Symptoms * Kevin Madden and Margaret M. Mahon * Chapter 26 Dermatologic Conditions and Symptom Control * Kimberly A. Bower
Julie Good
Anke Reineke
Cristina Gordon
and Michele R. Burdette-Taylor * Chapter 27 Easing Distress When Death Is Near * Debra Lotstein and Rachel Rusch * Section IV Illness and Treatment Experience * Chapter 28 Prenatal and Neonatal Palliative Care * Christy Cummings
Anne Sullivan
Lauren Cramer
and Renee Boss * Chapter 29 Children with Complex Chronic Conditions * Jori Bogetz
Christopher A. Collura
and Christy Torkildson * Chapter 30 Advanced Heart Disease * Melissa K. Cousino
Chelsea Heneghan
and Elizabeth D. Blume * Chapter 31 Cystic Fibrosis and Other Childhood Lung Diseases * Elisabeth Potts Dellon
Jessica Goggin
and Elliot Rabinowitz * Chapter 32 Solid Organ Transplant * Timothy Klouda
Debra Boyer
Lynne Helfand
Michael McCown
Nicholas Purol
and Dawn Freiberger * Chapter 33 Oncological Illnesses * Sarah McCarthy
Kimberly A. Pyke-Grimm
and Angela M. Feraco * Chapter 34 Hematologic Symptoms * Barbara Speller-Brown
Jillian Campbell
Allistair Abraham
Priyal Patel
Lisa Humphrey
and Jennifer Webb * Chapter 35 Primary and Acquired Immune Deficiency Disorders * Wei Li Adeline Koay
Natella Rakhmanina
Megan Wilkins
Sarah Matthews
and Ami Doshi
* Section I Setting the Stage * Chapter 1 The Language of Pediatric Palliative Care * Joanne Wolfe
Pamela S. Hinds
and Barbara M. Sourkes * Chapter 2 The New and Changing Landscape of Children Receiving Pediatric Palliative Care in the US: An Evidence Base Emerges * Bryan Sisk
Kimberley Widger
and Chris Feudtner * Chapter 3 Children's Voices: The Experience of Patients and Their Siblings * Anna C. Muriel
Abby R. Rosenberg
Barbara M. Sourkes * Chapter 4 Settings of Care * Moshe Cohn
Emily Johnston
and Julia McBee * Chapter 5 Cultural Humility
Social Determinants
and Disparities in Pediatric Palliative Care * Danielle Jonas
Alexis Morvant
and Sara Munoz-Blanco * Chapter 6 Program Development * Tammy I. Kang
Daniel P. Mahoney
Meaghann S. Weaver
and Stacy S. Remke * Chapter 7 Interdisciplinary Education and Training * Katharine E. Brock
Jennifer Hwang
Marsha Joselow
Blyth Lord
Janet Duncan
and Deborah A. Lafond * Chapter 8 Quality in Pediatric Palliative Care * Conrad Williams IV
Amanda L. Thompson
and Kathie Kobler * Section II Relationships and Communication * Chapter 9 Relationships with Children and Ensuring Their Voices in Decision-Making * Karen Ron-Li Liaw
Becky Lois
Julia McBee
and Erin Collins * Chapter 10 Family Experience and Relationships * Kim Mooney-Doyle
Meghan L. Marsac
Elissa G. Miller
Janet A. Deatrick
and Melissa A. Alderfer * Chapter 11 Team Relationships * Michelle R. Brown
Jody Chrastek
and Kris Catrine * Chapter 12 Witness to Suffering: The Clinician Experience * Barbara M. Sourkes
Stephen Liben
and Danai Papadatou * Chapter 13 Practical Aspects of Palliative Care Communication * Lindsay Ragsdale
Tessie October
and Caitlin Scanlon * Chapter 14 Advance Care Planning Along the Care Continuum * Jonathan Mullin
Rachael Burgess
and Justin Baker * Chapter 15 Anticipatory Grief and Bereavement * Jennifer M. Snaman
Terrah Foster Akard
Sue E. Morris
and Lori Wiener * Chapter 16 Resolving Conflicts in Pediatric Palliative Care * Robert Macauley
Jody Chrastek
Amie Brandtjen
Harvey Cohen
and Thaddeus M. Pope * Section III Easing Suffering * Chapter 17 Psychological Symptoms * Chase Samsel
Kathleen Perko
Lori Wiener
and Maryland Pao * Chapter 18 Existential Distress and Suffering * Elisha Waldman and Mark Bartel * Chapter 19 Neurological Symptoms * Shih-Ning Liaw
Jenna E. Freitas
and Julie Hauer * Chapter 20 Pediatric Delirium in the Palliative Care Setting * Paula Tran
Jeffrey Moss
Eunice Koh
Katherine Ort
Richard J. Shaw
and Michelle Goldsmith * Chapter 21 Fatigue * Christina Ullrich
Shana Jacobs
and Pamela S. Hinds * Chapter 22 Sleep and Circadian Rhythms * Toluwalase A. Ajayi
Eric S. Zhou
and Valerie E. Rogers * Chapter 23 Prevention and Treatment of Pain in Children with Serious Illness * Stefan J. Friedrichsdorf
Lauren Heathcote
Michael Sangster
Donna Eull
and Amber Borucki * Chapter 24 Respiratory Symptoms * Rose Sharpe
Megan Jordan
Raymond Barfield
Sarah Gall
Margarita Bidegain
Kristen Lakis
Renee Bartle
and Emily Layok * Chapter 25 Gastrointestinal Symptoms * Kevin Madden and Margaret M. Mahon * Chapter 26 Dermatologic Conditions and Symptom Control * Kimberly A. Bower
Julie Good
Anke Reineke
Cristina Gordon
and Michele R. Burdette-Taylor * Chapter 27 Easing Distress When Death Is Near * Debra Lotstein and Rachel Rusch * Section IV Illness and Treatment Experience * Chapter 28 Prenatal and Neonatal Palliative Care * Christy Cummings
Anne Sullivan
Lauren Cramer
and Renee Boss * Chapter 29 Children with Complex Chronic Conditions * Jori Bogetz
Christopher A. Collura
and Christy Torkildson * Chapter 30 Advanced Heart Disease * Melissa K. Cousino
Chelsea Heneghan
and Elizabeth D. Blume * Chapter 31 Cystic Fibrosis and Other Childhood Lung Diseases * Elisabeth Potts Dellon
Jessica Goggin
and Elliot Rabinowitz * Chapter 32 Solid Organ Transplant * Timothy Klouda
Debra Boyer
Lynne Helfand
Michael McCown
Nicholas Purol
and Dawn Freiberger * Chapter 33 Oncological Illnesses * Sarah McCarthy
Kimberly A. Pyke-Grimm
and Angela M. Feraco * Chapter 34 Hematologic Symptoms * Barbara Speller-Brown
Jillian Campbell
Allistair Abraham
Priyal Patel
Lisa Humphrey
and Jennifer Webb * Chapter 35 Primary and Acquired Immune Deficiency Disorders * Wei Li Adeline Koay
Natella Rakhmanina
Megan Wilkins
Sarah Matthews
and Ami Doshi
Pamela S. Hinds
and Barbara M. Sourkes * Chapter 2 The New and Changing Landscape of Children Receiving Pediatric Palliative Care in the US: An Evidence Base Emerges * Bryan Sisk
Kimberley Widger
and Chris Feudtner * Chapter 3 Children's Voices: The Experience of Patients and Their Siblings * Anna C. Muriel
Abby R. Rosenberg
Barbara M. Sourkes * Chapter 4 Settings of Care * Moshe Cohn
Emily Johnston
and Julia McBee * Chapter 5 Cultural Humility
Social Determinants
and Disparities in Pediatric Palliative Care * Danielle Jonas
Alexis Morvant
and Sara Munoz-Blanco * Chapter 6 Program Development * Tammy I. Kang
Daniel P. Mahoney
Meaghann S. Weaver
and Stacy S. Remke * Chapter 7 Interdisciplinary Education and Training * Katharine E. Brock
Jennifer Hwang
Marsha Joselow
Blyth Lord
Janet Duncan
and Deborah A. Lafond * Chapter 8 Quality in Pediatric Palliative Care * Conrad Williams IV
Amanda L. Thompson
and Kathie Kobler * Section II Relationships and Communication * Chapter 9 Relationships with Children and Ensuring Their Voices in Decision-Making * Karen Ron-Li Liaw
Becky Lois
Julia McBee
and Erin Collins * Chapter 10 Family Experience and Relationships * Kim Mooney-Doyle
Meghan L. Marsac
Elissa G. Miller
Janet A. Deatrick
and Melissa A. Alderfer * Chapter 11 Team Relationships * Michelle R. Brown
Jody Chrastek
and Kris Catrine * Chapter 12 Witness to Suffering: The Clinician Experience * Barbara M. Sourkes
Stephen Liben
and Danai Papadatou * Chapter 13 Practical Aspects of Palliative Care Communication * Lindsay Ragsdale
Tessie October
and Caitlin Scanlon * Chapter 14 Advance Care Planning Along the Care Continuum * Jonathan Mullin
Rachael Burgess
and Justin Baker * Chapter 15 Anticipatory Grief and Bereavement * Jennifer M. Snaman
Terrah Foster Akard
Sue E. Morris
and Lori Wiener * Chapter 16 Resolving Conflicts in Pediatric Palliative Care * Robert Macauley
Jody Chrastek
Amie Brandtjen
Harvey Cohen
and Thaddeus M. Pope * Section III Easing Suffering * Chapter 17 Psychological Symptoms * Chase Samsel
Kathleen Perko
Lori Wiener
and Maryland Pao * Chapter 18 Existential Distress and Suffering * Elisha Waldman and Mark Bartel * Chapter 19 Neurological Symptoms * Shih-Ning Liaw
Jenna E. Freitas
and Julie Hauer * Chapter 20 Pediatric Delirium in the Palliative Care Setting * Paula Tran
Jeffrey Moss
Eunice Koh
Katherine Ort
Richard J. Shaw
and Michelle Goldsmith * Chapter 21 Fatigue * Christina Ullrich
Shana Jacobs
and Pamela S. Hinds * Chapter 22 Sleep and Circadian Rhythms * Toluwalase A. Ajayi
Eric S. Zhou
and Valerie E. Rogers * Chapter 23 Prevention and Treatment of Pain in Children with Serious Illness * Stefan J. Friedrichsdorf
Lauren Heathcote
Michael Sangster
Donna Eull
and Amber Borucki * Chapter 24 Respiratory Symptoms * Rose Sharpe
Megan Jordan
Raymond Barfield
Sarah Gall
Margarita Bidegain
Kristen Lakis
Renee Bartle
and Emily Layok * Chapter 25 Gastrointestinal Symptoms * Kevin Madden and Margaret M. Mahon * Chapter 26 Dermatologic Conditions and Symptom Control * Kimberly A. Bower
Julie Good
Anke Reineke
Cristina Gordon
and Michele R. Burdette-Taylor * Chapter 27 Easing Distress When Death Is Near * Debra Lotstein and Rachel Rusch * Section IV Illness and Treatment Experience * Chapter 28 Prenatal and Neonatal Palliative Care * Christy Cummings
Anne Sullivan
Lauren Cramer
and Renee Boss * Chapter 29 Children with Complex Chronic Conditions * Jori Bogetz
Christopher A. Collura
and Christy Torkildson * Chapter 30 Advanced Heart Disease * Melissa K. Cousino
Chelsea Heneghan
and Elizabeth D. Blume * Chapter 31 Cystic Fibrosis and Other Childhood Lung Diseases * Elisabeth Potts Dellon
Jessica Goggin
and Elliot Rabinowitz * Chapter 32 Solid Organ Transplant * Timothy Klouda
Debra Boyer
Lynne Helfand
Michael McCown
Nicholas Purol
and Dawn Freiberger * Chapter 33 Oncological Illnesses * Sarah McCarthy
Kimberly A. Pyke-Grimm
and Angela M. Feraco * Chapter 34 Hematologic Symptoms * Barbara Speller-Brown
Jillian Campbell
Allistair Abraham
Priyal Patel
Lisa Humphrey
and Jennifer Webb * Chapter 35 Primary and Acquired Immune Deficiency Disorders * Wei Li Adeline Koay
Natella Rakhmanina
Megan Wilkins
Sarah Matthews
and Ami Doshi