Just Squeeze My Hand

A Caregiver's Experience with Frontotemporal Dementia

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This is a love story of a twenty-six-year marriage that was extended with a six-year slow death sentence due to the dreaded mental illness, Frontotemporal Dementia. Frontotemporal Dementia affects approximately 50,000-60,000 people (Knop, 2011 cure PSP). Frontotemporal Dementia can start in the forties age group, making it very difficult to diagnose. This story describes the challenges of a caregiver to initially know what the actual diagnosis was because it was a hard disease to diagnose. This story also describes this caregiver's steps in caring for his wife until her very last breath. The a...