Pat FittonListen to Me
Communicating the Needs of People with Profound Intellectual and Multiple Disabilities
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Pat Fitton's experience of profound and multiple disabilities comes from caring for her daughter Kathy, who died in 1991 at the age of twenty-seven. She has worked in several parents' groups to improve services and has campaigned to increase parental participation in planning procedures in social services and health. She has taught in inner London secondary schools since 1964 and has been involved with the integration into mainstream of children with a range of disabilities.
Acknowledgements. This Book is not... This Book is for... Foreword by Harry
Marsh. Introduction: Kathy. Part One: Learn About Me. 1. Diagnosis and
First Contact with Hospitals. Part Two: We Need to Communicate. 2. We Need
to Communicate. 3. Writing to People. 4. Telephoning. 5. Talking to People.
Part Three: Tell Them About Me. 6. The Care Book. 7. Diaries. 8.
Information Sheets. 9. Medication. Part Four: 10. In Nursery, School or
Centre. 11. Respite and Residential Services. 12. Independent Living
Arrangements. 13. Wheelchairs. 14. Mobility, Equipment and Adaptations. 15.
Benefits. Part Five: Doctors and Hospitals. 16. Your G.P. 17. In Casualty.
18. In Hospital. 19. Things Can Only Get Better... Part Six: 20. Leisure
Activities. 21. Families and Friends. 22. The Future - Wills, Trusts and
Guardians. Part Seven: Conclusion. 23. Who Cares for the Carers?
