Alexander Segall PhD

Missed and Dismissed Voices

Living with Hidden Chronic Health Problems

• Broschiertes Buch

Produktbeschreibung

Drawing on narrative accounts of illness, Missed and Dismissed Voices sheds light on the meaning and management of chronic health problems that are not visible to others.

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Produktdetails

• Verlag: University of Toronto Press
• Seitenzahl: 208
• Erscheinungstermin: 7. Juni 2023
• Englisch
• Abmessung: 229mm x 156mm x 14mm
• Gewicht: 324g
• ISBN-13: 9781487523404
• ISBN-10: 1487523408
• Artikelnr.: 67612707

Autorenporträt

By Alexander Segall, PhD

Inhaltsangabe

Acknowledgements
Preface
Part One: Illness and Identity
An Exploration
1. Understanding Our Sense of Healthiness
The Mystery of Good Health: Some Initial Observations
The Meaning of Good Health
Alternative Interpretations of Self-Rated Health
Health and Everyday Life
Wounded Storytellers: Personal Accounts of Health and Illness
The Healthy Self: Life Stories We Tell Others  
Collective Case Studies: Finding Common Voices in Illness Narratives
                                
2. Maintaining a Healthy Self-Identity
Learning to Live with Chronic Illness
Daily Pain: An Invisible but Constant Companion
The Decision to Disclose: Making Private Suffering Public
Striking a Balance between "Carrying on" and "Giving in"
Preserving One’s Personal Sense of Healthiness
                      
Part Two: Living with Medically Diagnosed Chronic Diseases
An Unrelenting Assault on the Body and Self
3. Chronic Disease as a Disruptive Life Event
Biographical Disruption: A Core Concept in the Study of Chronic Illness
Different Levels of Assault: Interruption, Intrusion, and Immersion
Visible and Invisible Aspects of Chronic Illness
The Burden of Invisibility
Challenges Facing These Wounded Storytellers: Being Heard   
4. Life Stories about the Invisible Impact of Chronic Disease: Some Missed
Voices
Introduction: The Chronic Diseases Selected
Case Study One - Diabetes
A Brief Description of the Disease
The Impact of Diabetes on Everyday Life
A Common Life Story: Jim’s Illness Narrative Account
Case Study Two - Inflammatory Bowel Disease (IBD)
A Brief Description of the Disease
The Impact of IBD on Everyday Life
A Common Life Story: Helen’s Illness Narrative Account
Shared Storylines: A Summary
      
Part Three: Living with Medically Unexplained Physical Symptoms
Discounted Stories of Sickness and Suffering
 
5. Contested Chronic Illnesses: Uncertainty and the Quest for Credibility
Understanding Sickness: The Presence of Disease and the Experience of
Illness
Hidden Health Problems that Are Not Only Invisible but Also Do Not Meet the
Medical Definition of Disease
Negotiating Contested Terrain: Dealing with Medically Unexplained Symptoms
Adopting the Sick Role: Contending with a Crisis of Credibility and Gaining
Legitimacy
Challenges Facing These Wounded Storytellers: Being Heard and Believed    
6. Life Stories about Uncertain and Invisible Chronic Illness: Some
Dismissed Voices
Introduction: The Chronic Conditions Selected
Case Study Three - Fibromyalgia
A Brief Description of the Illness
The Impact of Fibromyalgia on Everyday Life
A Common Life Story: Janet’s Illness Narrative Account
Case Study Four - Chronic Fatigue Syndrome
A Brief Description of the Illness
The Impact of Chronic Fatigue Syndrome on Everyday Life
A Common Life Story: Gail’s Illness Narrative Account
Shared Storylines: A Summary
Part Four: The Lifelong Pursuit of Healthiness
Meeting the Challenges
7. Making Sense of Sickness: Explanation and Adaptation
Self-Management of Hidden Chronic Health Problems
Ongoing Chronic Illness-Related Work, Everyday Life Work, and Biographical
Work  
Repairing a "Spoiled" Social Identity and Reconstructing a Healthy Self
Supportive Social Networks and the Health of Older Adults
Managing Chronic Illness in Later Life
                       
8. Health across the Life Course
A Life Course Perspective on Chronic Illness
Advancing Age and Declining Health: Double Jeopardy
Maintaining a Personal Sense of Healthiness as We Age: A Will to Health
Living Well with Hidden Chronic Health Problems: The Quality of Later Life
Healthy Aging: Some Concluding Thoughts
Notes  
References
Index