Approximately 5,000-6,000 people have motor neuron disease (MND) in the UK at any one time. It is a devastating disability that has a profound impact on people's lives. Addressing frequently asked questions about the disease, this book provides clear information on understanding the causes of the disease and how to gain support and symptom control.
Approximately 5,000-6,000 people have motor neuron disease (MND) in the UK at any one time. It is a devastating disability that has a profound impact on people's lives. Addressing frequently asked questions about the disease, this book provides clear information on understanding the causes of the disease and how to gain support and symptom control.
Kevin Talbot is an academic neurologist with a special interest in degenerative diseases of the nervous system, in particular motor neuron diseases. He qualified in medicine from the University of London and trained in Neurology in London and Oxford. He is currently an MRC Clinician Scientist Fellow. As Director of the Oxford MND Care Centre he leads a team which provides multidisciplinary care for patients with MND. He has developed Oxford as a centre for research into the cause and treatment of motor neuron diseases. His laboratory research is focussed on using genetic and cellular models to further our understanding why motor neurons are vulnerable to damage, with the ultimate aim of finding new therapies. Rachael Marsden qualified as a nurse in 1987. For almost 18 years she worked at Ritchie Russell House - a young disabled unit, where she gained extensive experience in the management of complex disability. Her work on the care pathways and experience of people with disabilities in hospital has been published in the British Medical Journal and elsewhere. Her role as coordinator of the MND Care Centre in Oxford, initially a 2-year secondment, has been so challenging both personally and professionally that Rachael has continued. She has recently completed her BA (Hons) degree in Rehabilitation at Oxford Brookes University and is currently studying for an MSc in Rehabilitation Medicine.
Inhaltsangabe
1: What is motor neuron disease? 2: The cause of motor neuron disease 3: The individual patient journey 4: Specific treatments, sympton control and the maintenance of well being 5: Living with motor neuron disease 6: Special situations in motor neuron disease 7: Participating in research 8: Decision making and remaining in control 9: Caring for someone with motor neuron disease 10: Useful information
1: What is motor neuron disease? 2: The cause of motor neuron disease 3: The individual patient journey 4: Specific treatments, sympton control and the maintenance of well being 5: Living with motor neuron disease 6: Special situations in motor neuron disease 7: Participating in research 8: Decision making and remaining in control 9: Caring for someone with motor neuron disease 10: Useful information
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