Nursing Care of Children and Young People with Long-Term Conditions

Herausgegeben:Brimble, Mandy; McNee, Peter

• Broschiertes Buch

Produktbeschreibung

The second edition of Nursing Care of Children and Young People with Long Term Conditions remains the only nursing-specific text on the care of paediatric patients with chronic illness. Written to meet the needs of nursing students and professionals alike, this comprehensive volume provides authoritative and up-to-date information on the context, theory, and practice of delivering holistic care to children and families in a range of health and social care settings.

Contributions from a team of experienced academics, educators, and practitioners offer valuable insight into the impact of chronic illness on children and parents, the practical implications of meeting their physical, psychological, and social needs, empowering them to be 'experts' in their care, and many more vital aspects of long-term paediatric care. This edition features new and revised content reflecting contemporary guidelines and evidence-based practice, including updated clinical case studies and a new chapter examining the impact of having a sibling with a long-term condition. Emphasising a multi-disciplinary approach to managing chronic illness, this important resource:
_ Provides numerous case studies and activities illustrating the application of theoretical principles and current evidence in nursing practice
_ Investigates the genetic basis of chronic illness and the differing onsets of long-term conditions
_ Discusses current political, economic, and social policies that are influencing healthcare for children and bringing challenges to managers and practitioners
_ Examines both classic and contemporary theories of grief, loss, coping, and adaptation Explores ethical, legal, and professional aspects of nursing children and young people with chronic illness
_ Addresses evolving nursing roles, the importance of acute emergency care, and the planning and delivery of effective transition from child to adult services

Nursing Care of Children and Young People with Long Term Conditions is required reading for student and registered children's nurses, as well as for practitioners in related health and social care disciplines.

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Produktdetails

• Verlag: Wiley & Sons / Wiley-Blackwell
• Artikelnr. des Verlages: 1W119653110
• 2. Aufl.
• Seitenzahl: 304
• Erscheinungstermin: 21. Januar 2021
• Englisch
• Abmessung: 170mm x 243mm x 20mm
• Gewicht: 526g
• ISBN-13: 9781119653110
• ISBN-10: 1119653118
• Artikelnr.: 60104255

Autorenporträt

MANDY BRIMBLE, Senior Lecturer, Children and Young People's Nursing, School of Healthcare Sciences, Cardiff University, Cardiff, UK. She has worked as a Children's Nurse in general medicine and day surgery, and as the research and education lead in a children's hospice. PETER MCNEE, Senior Lecturer, Children and Young People's Nursing, School of Healthcare Sciences, Cardiff University, Cardiff, UK. His main areas of teaching include the acquisition of clinical skills, paediatric critical care, and acute clinical care.

Inhaltsangabe

Contributors xiii

Introduction xvii

1 The Definition and Aetiology of Long-Term Conditions 1
Siân Bill and Angharad Dwynwen Barklam

Introduction 1

Aim of the chapter 1

Intended learning outcomes 2

Genetic knowledge 2

The need for genetic knowledge 3

The ethical, legal and social implications in the screening, testing and recording of genetic information 4

The determinants of genetic disease 5

Chromosomal abnormalities 6

Chromosomal nomenclature 8

Single gene (Mendelian) disorders 8

Autosomal recessive inheritance 9

Autosomal dominant inheritance 11

X-linked recessive inheritance 11

X-linked dominant inheritance 12

Inherited variations 12

Antenatal period 15

The neonatal period 17

Post-neonatal period 19

Adolescent period 22

Conclusion 23

Useful websites 24

References 25

2 Context of Care and Service Delivery 31
Peter McNee

Introduction 31

Aim of the chapter 31

Intended learning outcomes 31

Context of change 32

Political influences 32

Economic influences 33

Social influences 34

New models of service delivery 35

Modernising workforce 36

Increasing patient expectations and engagement 38

Locally based commissioning 39

Staffing implications 40

Staff education and competence 40

Meeting parental needs 42

Innovative practices - new roles 44

Telemedicine 45

Key worker role 45

Mental health issues 47

Multiagency working 47

Multidisciplinary team (MDT)/Interprofessional working (IPW) 48

Nursing implications, challenges and opportunities in MDT/IPW working 49

Conclusion 49

Acknowledgement 50

Useful websites 50

References 50

3 Impact upon the Child and Parents 55
Dawn Daniel and Mandy Brimble

Introduction 55

Aim of the chapter 55

Intended learning outcomes 56

Theories of grief, loss and change 56

Initial impact 60

Type 1 diabetes 60

Impact on parents 61

Impact on the child/young person with a long-term illness 62

Continuing care 65

Coping, adaptation and change 66

Theories of stress and coping 67

Coping strategies 68

Normalisation 69

Conclusion 74

Acknowledgement 75

Useful websites 75

References 75

4 Impact On Siblings 81
Amie Hodges, Daniel Kelly, and Julia Tod

Introduction 81

Aim of the chapter 81

Intended learning outcomes 82

The sibling relationship 82

Sibling identity 83

Sibling boundaries 83

Sibling interaction 84

Parental influence on the sibling relationship 85

The impact of a long-term condition on the sibling 86

A new diagnosis 86

Changes in family life for the sibling 87

Emotional labour 88

Sibling empathy and maturity 88

Siblings as carers 89

Young carers and carers' assessment 90

Recognising the unmet needs of siblings 91

Conclusion 93

Useful websites 93

References 94

5 A Holistic Approach to Meeting Physical, Social and Psychological Needs 97
Amie Hodges and Julia Tod

Introduction 97

Aim of the chapter 97

Intended learning outcomes 98