[This] is a story of love, hope, and healing. There are 18 chapters¿ñcovering intimate aspects of a young life ending and how those who remain behind can grieve in such a way that they can go on living. ¿ñThis book is a collection of clinical wisdom, theoretical knowledge, and models of care that can continue to tell the story and change cultures of care. As a palliative care nurse I am honored to write this Foreword and to be included in these pages with the authors who are truly pioneers in perinatal and pediatric bereavement." ¿¿Betty Ferrell, PhD, MA, RN, FAAN, FPCN, CHPN From the Foreword…mehr
[This] is a story of love, hope, and healing. There are 18 chapters¿ñcovering intimate aspects of a young life ending and how those who remain behind can grieve in such a way that they can go on living. ¿ñThis book is a collection of clinical wisdom, theoretical knowledge, and models of care that can continue to tell the story and change cultures of care. As a palliative care nurse I am honored to write this Foreword and to be included in these pages with the authors who are truly pioneers in perinatal and pediatric bereavement." ¿¿Betty Ferrell, PhD, MA, RN, FAAN, FPCN, CHPN From the Foreword This is a definitive, state-of-the-art resource on the vital pieces of perinatal and pediatric palliative care. Culling the most important new evidence-based research and findings from scholars and practitioners worldwide, it links theoretical knowledge and clinical practice to fill a gap in current information. The text is distinguished by its provision of different and even competing perspectives that address the complexities of the tragic human experience of perinatal, neonatal, and pediatric death and its focus on the nurses and other health care providers who provide care to those involved. Contributors disseminate new theoretical approaches and reexamine current concepts in light of new research. They discuss the theoretical underpinnings of perinatal and pediatric bereavement, examine current thought on the dimensions of loss, deliver evidence-based clinical interventions, and offer the perspective of grieving families regarding their experiences and needs. The book provides both novice and experienced scholars of perinatal and pediatric bereavement with a strong foundation of current knowledge. With clinical interventions derived from research, the book enhances the expertise of clinicians caring for bereaved women and their families. It includes case studies, interview excerpts, graphics, and review questions to illustrate key points, and summaries demonstrating how theory is translated to clinical practice and informs research. Chapters provide objectives, references, and suggestions for additional study. The book is also a valuable study aid for students preparing for the Pediatric Loss Certification (NBCHPN) exam. KEY FEATURES: Provides high-level but accessible information from renowned scholars in perinatal and pediatric loss Disseminates the newest theoretical frameworks that can be used to create interventions and develop research. Includes case studies demonstrating how theory is applicable to research and practice Facilitates critical thinking with different and sometimes competing perspectives Serves as a valuable resource for Pediatric Loss Certification (NBCHPN) preparationHinweis: Dieser Artikel kann nur an eine deutsche Lieferadresse ausgeliefert werden.
Foreword Betty R. Ferrell, PhD, MA, RN, FAAN, FPCN, CHPN Preface SECTION I: PERINATAL BEREAVEMENT Kristen M. Swanson 1: My Absent Child: Cultural and Theoretical Considerations of Bereavement When a Child Dies Patricia Moyle Wright, Rana Limbo, and Beth Perry Black Addressing Culture: A First Step in Bereavement Care Continuing Bonds: Re-Examining How Attachments Are Maintained After Death Posttraumatic Growth in Response to Loss Concepts Related to Bereavement Theories Conclusion 2: Applying Theoretical Frameworks to Research in Perinatal Bereavement Sarah Kye Price and Dalia El-Khoury Attachment Theory Psychodynamic Theory Interpersonal Theory Cognitive Stress Theory Feminist Theory Emerging Perspectives: Trauma-Informed and Strengths-Based Approaches to Research Conclusion Case Study Focus Questions 3: Caregiving as a Theoretical Framework in Perinatal Palliative Care Rana Limbo, Anthony Lathrop, and Jane Heustis Brief Historical Overview Identifying Families in Need of Services Layered, Progressive News Versus Sudden, Unexpected Realization PPC Research The Importance of Caregiving The Internal Working Model of Caregiving Caregiving in Bereaved Parents Clinical Guidelines: Caregiving in Perinatal Palliative Care Birth and Advance Care Planning Beginning the Journey With the Family The Role of the PPC Team Support During the Pregnancy Documentation Conclusion Case Study Focus Questions Resources 4: When an Expected Baby Dies: Maternal–Fetal Attachment in Context of Loss Beth Perry Black Theoretical Roots of Attachment and Bonding Describing and Defining Women’s Relationship to the Developing Fetus Narratives From Three Expectant Families With a Severe Fetal Diagnosis Conclusion Case Study Focus Questions 5: The Pushing On Theory of Maternal Perinatal Bereavement Patricia Moyle Wright Pushing On The Process of Maternal Perinatal Bereavement Comparison With Other Models Clinical Implications of the POT Discussion Conclusion Case Study Focus Questions 6: When the Unthinkable Happens: A Mindfulness Approach to Perinatal and Pediatric Death Joanne Cacciatore Mindfulness Approaches Meditation Concerns About the Mindfulness Approach to Traumatic Grief Conclusion Case Study Focus Questions 7: Complicated Grief and Perinatal Loss Patricia Moyle Wright Defining CG Grief and the DSM-5 CG and Perinatal Loss Treating CG Conclusion Case Study Focus Questions 8: Lesbians, Parenthood, and Reproductive Loss Danuta M. Wojnar LGBTQ Families in the United States Human Desire to Become a Parent Pregnancy Launching by Lesbian Couples Miscarriage Experiences of Lesbian Couples Conclusion Case Study Focus Questions 9: Early Pregnancy Loss During Adolescence Sara Rich Wheeler and Marlene G. S. Sefton Adolescent Growth and Development Integrated Theory of Bereavement Conclusion Case Study Focus Questions Appendix 9.1: Bereavement Resources Appendix 9.2: Tips for Talking With Adolescents Who Experienced a Pregnancy Loss 10: Understanding the Experience of Pregnancy Subsequent to a Perinatal Loss Denise Côté-Arsenault and Joann O’Leary Theoretical Perspectives of Pregnancy Characteristics of Pregnancy After Loss Interventions for Supporting Parents Conclusion Case Study Focus Questions SECTION II: PEDIATRIC BEREAVEMENT Mary Muscari 11: Conceptual Approaches to Understanding Parental Grief After the Death of a Child Margaret Shandor Miles Definitions of Grief Historical Literature About Parental Grief Conceptualization Models of Grief Parental Grief Models Discussion Toward Conceptualizing the Grief of Parents Conclusion Case Study Focus Questions 12: Theoretical Perspectives on Pediatric Palliative Care Rose Steele and Kimberley Widger Evolution of Pediatric Palliative Care Standards and Principles of Practice Models of Pediatric Palliative Care Pediatric Palliative Care Specialization Conclusion Case Study Focus Questions 13: Hope, Hopefulness, and Pediatric Palliative Care Douglas L. Hill and Chris Feudtner Theories of Hope and Hopeful Patterns of Thinking Hope in Health and Health Care Pediatric Palliative Care Future Directions Conclusion Case Study Focus Questions 14: Grieving the Traumatic Death of a Child Wendy G. Lichtenthal, Geoffrey W. Corner, Corinne Sweeney, and Kailey E. Roberts Psychological Responses to the Traumatic Loss of a Child Theoretical Models of Adjustment Cause of Death: Does It Matter? Physical Health and Mortality Risk Factors Supporting Traumatically Bereaved Parents Conclusion Case Study Focus Questions 15: Remembering the “Forgotten Bereaved”: Understanding and Caring for Siblings of Completed Suicide Victims Rebecca Kabatchnick and Beth Perry Black Completed Suicide and Its Aftermath: Background Reviewing the Literature on Siblings of Completed Suicide Victims Interventions Toward No Longer Shedding Tears Alone Conclusion Acknowledgment Case Study Focus Questions 16: Bereavement in Young Children With Siblings in Pediatric Palliative Care Betty Davies, Camara van Breemen, Susan Poitras, and Eric Stephanson The Long-Term Nature of PPC Anticipatory Grief The Model: Shadows in the Sun Community Bereavement Resources Conclusion Case Study Focus Questions 17: Supporting Grieving Children Andy McNiel and Donna L. Schuurman Definition of Terms How Children Understand and Process Death Understanding How Death Impacts Children’s Lives What Grieving Children Need Talking to Children About Death Talking to Children About the Impending Death of Someone Close to Them Sharing the News of Death With Children Children’s Involvement in Funerals and Rituals Cultural Issues Impacting Grieving Children, Teens, and Families Conclusion Case Study Focus Questions 18: Moments Matter: Exploring the Evidence of Caring for Grieving Families and Self Rana Limbo and Kathie Kobler Background Relationship-Based Care Professionals Caring for Bereaved Parents Caregiver Suffering Conclusion Case Study Focus Questions Resources Index
Foreword Betty R. Ferrell, PhD, MA, RN, FAAN, FPCN, CHPN Preface SECTION I: PERINATAL BEREAVEMENT Kristen M. Swanson 1: My Absent Child: Cultural and Theoretical Considerations of Bereavement When a Child Dies Patricia Moyle Wright, Rana Limbo, and Beth Perry Black Addressing Culture: A First Step in Bereavement Care Continuing Bonds: Re-Examining How Attachments Are Maintained After Death Posttraumatic Growth in Response to Loss Concepts Related to Bereavement Theories Conclusion 2: Applying Theoretical Frameworks to Research in Perinatal Bereavement Sarah Kye Price and Dalia El-Khoury Attachment Theory Psychodynamic Theory Interpersonal Theory Cognitive Stress Theory Feminist Theory Emerging Perspectives: Trauma-Informed and Strengths-Based Approaches to Research Conclusion Case Study Focus Questions 3: Caregiving as a Theoretical Framework in Perinatal Palliative Care Rana Limbo, Anthony Lathrop, and Jane Heustis Brief Historical Overview Identifying Families in Need of Services Layered, Progressive News Versus Sudden, Unexpected Realization PPC Research The Importance of Caregiving The Internal Working Model of Caregiving Caregiving in Bereaved Parents Clinical Guidelines: Caregiving in Perinatal Palliative Care Birth and Advance Care Planning Beginning the Journey With the Family The Role of the PPC Team Support During the Pregnancy Documentation Conclusion Case Study Focus Questions Resources 4: When an Expected Baby Dies: Maternal–Fetal Attachment in Context of Loss Beth Perry Black Theoretical Roots of Attachment and Bonding Describing and Defining Women’s Relationship to the Developing Fetus Narratives From Three Expectant Families With a Severe Fetal Diagnosis Conclusion Case Study Focus Questions 5: The Pushing On Theory of Maternal Perinatal Bereavement Patricia Moyle Wright Pushing On The Process of Maternal Perinatal Bereavement Comparison With Other Models Clinical Implications of the POT Discussion Conclusion Case Study Focus Questions 6: When the Unthinkable Happens: A Mindfulness Approach to Perinatal and Pediatric Death Joanne Cacciatore Mindfulness Approaches Meditation Concerns About the Mindfulness Approach to Traumatic Grief Conclusion Case Study Focus Questions 7: Complicated Grief and Perinatal Loss Patricia Moyle Wright Defining CG Grief and the DSM-5 CG and Perinatal Loss Treating CG Conclusion Case Study Focus Questions 8: Lesbians, Parenthood, and Reproductive Loss Danuta M. Wojnar LGBTQ Families in the United States Human Desire to Become a Parent Pregnancy Launching by Lesbian Couples Miscarriage Experiences of Lesbian Couples Conclusion Case Study Focus Questions 9: Early Pregnancy Loss During Adolescence Sara Rich Wheeler and Marlene G. S. Sefton Adolescent Growth and Development Integrated Theory of Bereavement Conclusion Case Study Focus Questions Appendix 9.1: Bereavement Resources Appendix 9.2: Tips for Talking With Adolescents Who Experienced a Pregnancy Loss 10: Understanding the Experience of Pregnancy Subsequent to a Perinatal Loss Denise Côté-Arsenault and Joann O’Leary Theoretical Perspectives of Pregnancy Characteristics of Pregnancy After Loss Interventions for Supporting Parents Conclusion Case Study Focus Questions SECTION II: PEDIATRIC BEREAVEMENT Mary Muscari 11: Conceptual Approaches to Understanding Parental Grief After the Death of a Child Margaret Shandor Miles Definitions of Grief Historical Literature About Parental Grief Conceptualization Models of Grief Parental Grief Models Discussion Toward Conceptualizing the Grief of Parents Conclusion Case Study Focus Questions 12: Theoretical Perspectives on Pediatric Palliative Care Rose Steele and Kimberley Widger Evolution of Pediatric Palliative Care Standards and Principles of Practice Models of Pediatric Palliative Care Pediatric Palliative Care Specialization Conclusion Case Study Focus Questions 13: Hope, Hopefulness, and Pediatric Palliative Care Douglas L. Hill and Chris Feudtner Theories of Hope and Hopeful Patterns of Thinking Hope in Health and Health Care Pediatric Palliative Care Future Directions Conclusion Case Study Focus Questions 14: Grieving the Traumatic Death of a Child Wendy G. Lichtenthal, Geoffrey W. Corner, Corinne Sweeney, and Kailey E. Roberts Psychological Responses to the Traumatic Loss of a Child Theoretical Models of Adjustment Cause of Death: Does It Matter? Physical Health and Mortality Risk Factors Supporting Traumatically Bereaved Parents Conclusion Case Study Focus Questions 15: Remembering the “Forgotten Bereaved”: Understanding and Caring for Siblings of Completed Suicide Victims Rebecca Kabatchnick and Beth Perry Black Completed Suicide and Its Aftermath: Background Reviewing the Literature on Siblings of Completed Suicide Victims Interventions Toward No Longer Shedding Tears Alone Conclusion Acknowledgment Case Study Focus Questions 16: Bereavement in Young Children With Siblings in Pediatric Palliative Care Betty Davies, Camara van Breemen, Susan Poitras, and Eric Stephanson The Long-Term Nature of PPC Anticipatory Grief The Model: Shadows in the Sun Community Bereavement Resources Conclusion Case Study Focus Questions 17: Supporting Grieving Children Andy McNiel and Donna L. Schuurman Definition of Terms How Children Understand and Process Death Understanding How Death Impacts Children’s Lives What Grieving Children Need Talking to Children About Death Talking to Children About the Impending Death of Someone Close to Them Sharing the News of Death With Children Children’s Involvement in Funerals and Rituals Cultural Issues Impacting Grieving Children, Teens, and Families Conclusion Case Study Focus Questions 18: Moments Matter: Exploring the Evidence of Caring for Grieving Families and Self Rana Limbo and Kathie Kobler Background Relationship-Based Care Professionals Caring for Bereaved Parents Caregiver Suffering Conclusion Case Study Focus Questions Resources Index
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