Rebecca Bitenc (Germany Albert-Ludwigs-Universitat Freiburg)
Reconsidering Dementia Narratives
Empathy, Identity and Care
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Rebecca Bitenc (Germany Albert-Ludwigs-Universitat Freiburg)
Reconsidering Dementia Narratives
Empathy, Identity and Care
- Broschiertes Buch
Reconsidering Dementia Narratives explores the role of narrative in developing new ways of understanding, interacting with, and caring for people with dementia.
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Reconsidering Dementia Narratives explores the role of narrative in developing new ways of understanding, interacting with, and caring for people with dementia.
Produktdetails
- Produktdetails
- Routledge Advances in the Medical Humanities
- Verlag: Taylor & Francis Ltd
- Seitenzahl: 272
- Erscheinungstermin: 31. Mai 2023
- Englisch
- Abmessung: 154mm x 235mm x 18mm
- Gewicht: 430g
- ISBN-13: 9781032570624
- ISBN-10: 1032570628
- Artikelnr.: 69114113
- Routledge Advances in the Medical Humanities
- Verlag: Taylor & Francis Ltd
- Seitenzahl: 272
- Erscheinungstermin: 31. Mai 2023
- Englisch
- Abmessung: 154mm x 235mm x 18mm
- Gewicht: 430g
- ISBN-13: 9781032570624
- ISBN-10: 1032570628
- Artikelnr.: 69114113
Rebecca A. Bitenc completed her PhD on 'Dementia Narratives in Contemporary Literature, Life-Writing and Film' at Durham University, UK. Her research interests include critical medical humanities, narratology, and narrative ethics. She is a member of the Dementia and Cultural Narratives Network and the Northern Network for Medical Humanities Research. She has an M.A. in English, French and Psychology from Albert-Ludwigs-Universität, Germany.
Acknowledgements
Preface
List of Illustrations
Introduction: Reconsidering Dementia Narratives
Two Starting Points
Why Narrative?
Biomedicine and the Cultural Meaning of Dementia
A Brief History of Dementia
Demography and Demonization
Reconsidering Dementia: Reparative Moves
The Alzheimer's 'Epidemic': Care, Cost and Social Justice
Literary Dementia Studies and the Medical Humanities
Illness Narratives: Countering Master Narratives and Exploring the Experience of Illness
Outline of Chapters
Part I Storytelling, Experience and Empathy
Chapter 1 Narrating Experiences of Dementia: Embodied Selves, Embodied Communication
Embodied Selves, Embodied Communication
Inside Views: Life Writing by People with Early-Onset Dementia
Memory
Language
Perception, Movement and the Senses
Emotions and Cognition
Time
The Social World: Intimate Relationships and Strangers
The Experience of Flow in Dementia
From the Caregiver's Perspective: Intersubjectivity in David Sieveking's Documentary Vergiss Mein Nicht
Viewing Symptoms of Dementia
The Communicating Body in Film
Embodied Selves and Relational Selves
Conclusion
Chapter 2 From the Outside in? Experience and Empathy in Fictional Dementia Narratives
Still Alice: From Fiction to Film
Experiencing Dementia/Experimenting with the Novel
Out of Mind
House Mother Normal
The Unconsoled
Concluding Reflections on Narrative Empathy
Part II Life Writing, Self-Writing and Creating Identities
Chapter 3 Life Writing at the Limits: Narrative Identity and Counter-Narratives in Dementia
Narrative Identity in Dementia: Friend or Foe?
Reconsidering Master and Counter-Narratives
The Problem of Counter-Narratives in Dementia: Reading First-Person Accounts by People with Dementia
Coherence in 'Broken' Counter-Narratives: 'Mrs Mill' and Other Stories
Janet's Story: Confabulation, Continuity, and Agency
Counter-Narratives in Context: The Editor's Role
Conclusion
Chapter 4 Relational Identity in (Filial) Caregivers' Memoirs
The Aesthetics, Ethics, and Politics of Caregivers' Memoirs
Gender, Genre and the Self: Rethinking Relational Identity in Dementia
My Father's Brain
Do You Remember Me? A Father, a Daughter, and a Search for the Self
Tangles: A Story about Alzheimer's, My Mother, and Me
Conclusion
Part III Narrating Dementia/Rethinking Care
Chapter 5 Care-Writing Reconsidered: Towards a New Practice of Dementia Care
Exploring Caregivers' Dilemmas
Care or Coercion? Autonomy in Dementia
'Bad Grooming': Intimate Care in Dementia
'No Good Choices': Institutionalisation in Dementia
Imagining Alternative Approaches in Dementia Care
Reconsidering Confabulation
The Power of Music
From Control to Letting Go: Being With vs. Symptom Management
Challenging Care Practice
Conclusion
Chapter 6 Making Readers Care: Bioethics and the Novel
Ethics and the Novel: Countering, Stereotyping and Disturbing
Scar Tissue: Biomedicine and the Hermeneutics of Selfhood
Narrative and Neuroimaging: Raising Epistemological Questions
House Mother Normal: Disturbing Care
Exploring Bioethics: 'Living Through' as 'Thinking Through'
Still Alice: (Precedent) Autonomy and Suicide in Dementia
Mode, Medium and the Suicide Plot
Have the Men Had Enough? Gender and the Economies of Care
Conclusion
Dementia Narratives and Beyond
Index
Preface
List of Illustrations
Introduction: Reconsidering Dementia Narratives
Two Starting Points
Why Narrative?
Biomedicine and the Cultural Meaning of Dementia
A Brief History of Dementia
Demography and Demonization
Reconsidering Dementia: Reparative Moves
The Alzheimer's 'Epidemic': Care, Cost and Social Justice
Literary Dementia Studies and the Medical Humanities
Illness Narratives: Countering Master Narratives and Exploring the Experience of Illness
Outline of Chapters
Part I Storytelling, Experience and Empathy
Chapter 1 Narrating Experiences of Dementia: Embodied Selves, Embodied Communication
Embodied Selves, Embodied Communication
Inside Views: Life Writing by People with Early-Onset Dementia
Memory
Language
Perception, Movement and the Senses
Emotions and Cognition
Time
The Social World: Intimate Relationships and Strangers
The Experience of Flow in Dementia
From the Caregiver's Perspective: Intersubjectivity in David Sieveking's Documentary Vergiss Mein Nicht
Viewing Symptoms of Dementia
The Communicating Body in Film
Embodied Selves and Relational Selves
Conclusion
Chapter 2 From the Outside in? Experience and Empathy in Fictional Dementia Narratives
Still Alice: From Fiction to Film
Experiencing Dementia/Experimenting with the Novel
Out of Mind
House Mother Normal
The Unconsoled
Concluding Reflections on Narrative Empathy
Part II Life Writing, Self-Writing and Creating Identities
Chapter 3 Life Writing at the Limits: Narrative Identity and Counter-Narratives in Dementia
Narrative Identity in Dementia: Friend or Foe?
Reconsidering Master and Counter-Narratives
The Problem of Counter-Narratives in Dementia: Reading First-Person Accounts by People with Dementia
Coherence in 'Broken' Counter-Narratives: 'Mrs Mill' and Other Stories
Janet's Story: Confabulation, Continuity, and Agency
Counter-Narratives in Context: The Editor's Role
Conclusion
Chapter 4 Relational Identity in (Filial) Caregivers' Memoirs
The Aesthetics, Ethics, and Politics of Caregivers' Memoirs
Gender, Genre and the Self: Rethinking Relational Identity in Dementia
My Father's Brain
Do You Remember Me? A Father, a Daughter, and a Search for the Self
Tangles: A Story about Alzheimer's, My Mother, and Me
Conclusion
Part III Narrating Dementia/Rethinking Care
Chapter 5 Care-Writing Reconsidered: Towards a New Practice of Dementia Care
Exploring Caregivers' Dilemmas
Care or Coercion? Autonomy in Dementia
'Bad Grooming': Intimate Care in Dementia
'No Good Choices': Institutionalisation in Dementia
Imagining Alternative Approaches in Dementia Care
Reconsidering Confabulation
The Power of Music
From Control to Letting Go: Being With vs. Symptom Management
Challenging Care Practice
Conclusion
Chapter 6 Making Readers Care: Bioethics and the Novel
Ethics and the Novel: Countering, Stereotyping and Disturbing
Scar Tissue: Biomedicine and the Hermeneutics of Selfhood
Narrative and Neuroimaging: Raising Epistemological Questions
House Mother Normal: Disturbing Care
Exploring Bioethics: 'Living Through' as 'Thinking Through'
Still Alice: (Precedent) Autonomy and Suicide in Dementia
Mode, Medium and the Suicide Plot
Have the Men Had Enough? Gender and the Economies of Care
Conclusion
Dementia Narratives and Beyond
Index
Acknowledgements
Preface
List of Illustrations
Introduction: Reconsidering Dementia Narratives
Two Starting Points
Why Narrative?
Biomedicine and the Cultural Meaning of Dementia
A Brief History of Dementia
Demography and Demonization
Reconsidering Dementia: Reparative Moves
The Alzheimer's 'Epidemic': Care, Cost and Social Justice
Literary Dementia Studies and the Medical Humanities
Illness Narratives: Countering Master Narratives and Exploring the Experience of Illness
Outline of Chapters
Part I Storytelling, Experience and Empathy
Chapter 1 Narrating Experiences of Dementia: Embodied Selves, Embodied Communication
Embodied Selves, Embodied Communication
Inside Views: Life Writing by People with Early-Onset Dementia
Memory
Language
Perception, Movement and the Senses
Emotions and Cognition
Time
The Social World: Intimate Relationships and Strangers
The Experience of Flow in Dementia
From the Caregiver's Perspective: Intersubjectivity in David Sieveking's Documentary Vergiss Mein Nicht
Viewing Symptoms of Dementia
The Communicating Body in Film
Embodied Selves and Relational Selves
Conclusion
Chapter 2 From the Outside in? Experience and Empathy in Fictional Dementia Narratives
Still Alice: From Fiction to Film
Experiencing Dementia/Experimenting with the Novel
Out of Mind
House Mother Normal
The Unconsoled
Concluding Reflections on Narrative Empathy
Part II Life Writing, Self-Writing and Creating Identities
Chapter 3 Life Writing at the Limits: Narrative Identity and Counter-Narratives in Dementia
Narrative Identity in Dementia: Friend or Foe?
Reconsidering Master and Counter-Narratives
The Problem of Counter-Narratives in Dementia: Reading First-Person Accounts by People with Dementia
Coherence in 'Broken' Counter-Narratives: 'Mrs Mill' and Other Stories
Janet's Story: Confabulation, Continuity, and Agency
Counter-Narratives in Context: The Editor's Role
Conclusion
Chapter 4 Relational Identity in (Filial) Caregivers' Memoirs
The Aesthetics, Ethics, and Politics of Caregivers' Memoirs
Gender, Genre and the Self: Rethinking Relational Identity in Dementia
My Father's Brain
Do You Remember Me? A Father, a Daughter, and a Search for the Self
Tangles: A Story about Alzheimer's, My Mother, and Me
Conclusion
Part III Narrating Dementia/Rethinking Care
Chapter 5 Care-Writing Reconsidered: Towards a New Practice of Dementia Care
Exploring Caregivers' Dilemmas
Care or Coercion? Autonomy in Dementia
'Bad Grooming': Intimate Care in Dementia
'No Good Choices': Institutionalisation in Dementia
Imagining Alternative Approaches in Dementia Care
Reconsidering Confabulation
The Power of Music
From Control to Letting Go: Being With vs. Symptom Management
Challenging Care Practice
Conclusion
Chapter 6 Making Readers Care: Bioethics and the Novel
Ethics and the Novel: Countering, Stereotyping and Disturbing
Scar Tissue: Biomedicine and the Hermeneutics of Selfhood
Narrative and Neuroimaging: Raising Epistemological Questions
House Mother Normal: Disturbing Care
Exploring Bioethics: 'Living Through' as 'Thinking Through'
Still Alice: (Precedent) Autonomy and Suicide in Dementia
Mode, Medium and the Suicide Plot
Have the Men Had Enough? Gender and the Economies of Care
Conclusion
Dementia Narratives and Beyond
Index
Preface
List of Illustrations
Introduction: Reconsidering Dementia Narratives
Two Starting Points
Why Narrative?
Biomedicine and the Cultural Meaning of Dementia
A Brief History of Dementia
Demography and Demonization
Reconsidering Dementia: Reparative Moves
The Alzheimer's 'Epidemic': Care, Cost and Social Justice
Literary Dementia Studies and the Medical Humanities
Illness Narratives: Countering Master Narratives and Exploring the Experience of Illness
Outline of Chapters
Part I Storytelling, Experience and Empathy
Chapter 1 Narrating Experiences of Dementia: Embodied Selves, Embodied Communication
Embodied Selves, Embodied Communication
Inside Views: Life Writing by People with Early-Onset Dementia
Memory
Language
Perception, Movement and the Senses
Emotions and Cognition
Time
The Social World: Intimate Relationships and Strangers
The Experience of Flow in Dementia
From the Caregiver's Perspective: Intersubjectivity in David Sieveking's Documentary Vergiss Mein Nicht
Viewing Symptoms of Dementia
The Communicating Body in Film
Embodied Selves and Relational Selves
Conclusion
Chapter 2 From the Outside in? Experience and Empathy in Fictional Dementia Narratives
Still Alice: From Fiction to Film
Experiencing Dementia/Experimenting with the Novel
Out of Mind
House Mother Normal
The Unconsoled
Concluding Reflections on Narrative Empathy
Part II Life Writing, Self-Writing and Creating Identities
Chapter 3 Life Writing at the Limits: Narrative Identity and Counter-Narratives in Dementia
Narrative Identity in Dementia: Friend or Foe?
Reconsidering Master and Counter-Narratives
The Problem of Counter-Narratives in Dementia: Reading First-Person Accounts by People with Dementia
Coherence in 'Broken' Counter-Narratives: 'Mrs Mill' and Other Stories
Janet's Story: Confabulation, Continuity, and Agency
Counter-Narratives in Context: The Editor's Role
Conclusion
Chapter 4 Relational Identity in (Filial) Caregivers' Memoirs
The Aesthetics, Ethics, and Politics of Caregivers' Memoirs
Gender, Genre and the Self: Rethinking Relational Identity in Dementia
My Father's Brain
Do You Remember Me? A Father, a Daughter, and a Search for the Self
Tangles: A Story about Alzheimer's, My Mother, and Me
Conclusion
Part III Narrating Dementia/Rethinking Care
Chapter 5 Care-Writing Reconsidered: Towards a New Practice of Dementia Care
Exploring Caregivers' Dilemmas
Care or Coercion? Autonomy in Dementia
'Bad Grooming': Intimate Care in Dementia
'No Good Choices': Institutionalisation in Dementia
Imagining Alternative Approaches in Dementia Care
Reconsidering Confabulation
The Power of Music
From Control to Letting Go: Being With vs. Symptom Management
Challenging Care Practice
Conclusion
Chapter 6 Making Readers Care: Bioethics and the Novel
Ethics and the Novel: Countering, Stereotyping and Disturbing
Scar Tissue: Biomedicine and the Hermeneutics of Selfhood
Narrative and Neuroimaging: Raising Epistemological Questions
House Mother Normal: Disturbing Care
Exploring Bioethics: 'Living Through' as 'Thinking Through'
Still Alice: (Precedent) Autonomy and Suicide in Dementia
Mode, Medium and the Suicide Plot
Have the Men Had Enough? Gender and the Economies of Care
Conclusion
Dementia Narratives and Beyond
Index