Saving Henry: A Mother's Journey - Strongin, Laurie
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Saving Henry is the eye-opening and inspiring story of how far a family will go to save the life of their child. Laurie Strongin's son Henry was born with a heart condition that was operable, but which proved to be a precursor for a rare, almost-always fatal illness: Fanconi anemia. Deciding to pursue every avenue that might provide a cure, Laurie and her husband signed on for a brand new procedure that combined in vitro fertilization with genetic testing to produce a baby without the disease, who could be a stem cell donor for Henry. As Laurie puts it: "I believe in love and science, nothing…mehr

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Produktbeschreibung
Saving Henry is the eye-opening and inspiring story of how far a family will go to save the life of their child. Laurie Strongin's son Henry was born with a heart condition that was operable, but which proved to be a precursor for a rare, almost-always fatal illness: Fanconi anemia. Deciding to pursue every avenue that might provide a cure, Laurie and her husband signed on for a brand new procedure that combined in vitro fertilization with genetic testing to produce a baby without the disease, who could be a stem cell donor for Henry. As Laurie puts it: "I believe in love and science, nothing more and nothing less." More than anything, Saving Henry is a love story. It chronicles a mother's love for her child, and a community's love for a family. Henry's life provides the inspiration for a national non-profit organization that is leading the way on patient engagement and reinventing the pediatric patient experience.
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Autorenporträt
For 30 years, Laurie Strongin has helped draw attention and resources to issues of emerging national significance. In 1996, Laurie became drawn through personal experience into the frontlines of a breakthrough medical procedure that held the promise of saving her son, among countless other children. Turning her advocacy and media skills to that issue, Laurie participated in national medical policy panels (alongside Newt Gingrich and Dr. Bernadine Healy, among others); worked with then-House Democratic Leader Nancy Pelosi and Congresswoman Diana DeGette (D-CO) to urge Senate passage of the Stem Cell Research Enhancement Act; secured coverage of the issue on ABC's "Nightline" and in a Sunday New York Times magazine cover story; authored Vetoing Henry, a Washington Post op-ed criticizing President Bush's 2006 veto of federal funding for human embryonic stem cell research; and advocated for parental perspectives on NBC, the CBS Early Show, and MSNBC. In 2009, when President Obama lifted the ban on federal funding for stem cell research, Laurie was one of a few dozen honored guests. Laurie's subsequent memoir, Saving Henry, has been featured on Good Morning America, The Diane Rehm Show, The Bob Edwards Show, The Dr. Oz Show, and BBC; and featured in USA Today and The Washington Post. Since its publication, Laurie has headlined over 60 speaking engagements across the U.S. Laurie's leadership has been recognized by numerous institutions. She has received Children's National's Chairman's Award, Georgetown Pediatrics' Flame of Hope Award, Children's Charities Foundation's Star for Children Award and the Center for Nonprofit Advancement's 2016 EXCEL Award. Laurie was featured as a "Heroes Among Us" in People magazine in 2016. In addition, in 2015-2016, she served on the Institute of Medicine's Committee on the Ethical and Social Policy Considerations of Novel Techniques for Prevention of Maternal Transmission of Mitochondrial DNA Diseases. She serves on the board of directors of the National Marrow Donor Program, and on the Association of Child Life Professional's Advisory Council.