Carolyn Adams, Felicity Flack, Judy Allen

Sharing Linked Data for Health Research

Toward Better Decision Making

• Broschiertes Buch

Produktbeschreibung

This book will benefit researchers and research institutions by explaining the regulatory environment for access to government held data for research. The book will also be valuable to government policy makers and decision-makers around the world by providing comparative examples of global best practice to guide reform.

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Produktdetails

• Verlag: Cambridge University Press
• Seitenzahl: 277
• Erscheinungstermin: 13. Februar 2025
• Englisch
• ISBN-13: 9781108445368
• ISBN-10: 1108445365
• Artikelnr.: 72106532

Autorenporträt

Carolyn Adams is a Senior Lecturer in the Law School at Macquarie University. She has three decades of experience working in the fields of administrative law, human rights and privacy in senior policy positions at federal, state and territory levels in Australia, at the Australian Law Reform Commission, and in academia. She has been a member of the Macquarie University Human Research Ethics Committee (Humanities and Social Sciences) since 2015. She was a member of the Population Health Research Network (PHRN) Ethics, Privacy and Consumer Engagement Advisory Group.

Inhaltsangabe

Part I. Context for decision making
1. Research using linked data
2. Individual, collective, and public interests
3. Social licence
Part II. Frameworks for decision making
4. Human rights
5. Research ethics
6. Law
Part III. Practice and process of decision making
7. Existing practice and processes
8. Better practice and processes.