The research ethics system was created without the help of people who know what it is like to be a research subject. This is a serious omission. Experts have overlooked ethical issues that matter to subjects. Silent Partners moves subjects to the forefront, giving them a voice in research ethics.
The research ethics system was created without the help of people who know what it is like to be a research subject. This is a serious omission. Experts have overlooked ethical issues that matter to subjects. Silent Partners moves subjects to the forefront, giving them a voice in research ethics.
Rebecca Dresser has taught medical and law students about legal and ethical issues in biomedical research, end-of-life care, genetics, and related topics since 1983. From 2002-2009, she was a member of the President's Council on Bioethics and from 2011-2015, a member of the National Institutes of Health Recombinant DNA Advisory Committee. She is the author of When Science Offers Salvation (2001), editor of Malignant (2012), and co-editor of The Human Use of Animals (1998, 2nd ed. 2008) all published by Oxford University Press.
Inhaltsangabe
Contents Preface 1 Subject Perspectives: The Missing Element in Research Ethics 2 Personal Knowledge and Study Participation 3 The Everyday Ethics of Human Research 4 The Hidden World of Subjects: Rule-Breaking in Clinical Trials 5 Participants as Partners in Genetic Research 6 Terminally Ill Patients and the "Right to Try" Experimental Drugs 7 Embedded Ethics in Developing Country Research 8 Research Subjects as Literary Subjects 9 How to Hear Subjects Index
Contents Preface 1 Subject Perspectives: The Missing Element in Research Ethics 2 Personal Knowledge and Study Participation 3 The Everyday Ethics of Human Research 4 The Hidden World of Subjects: Rule-Breaking in Clinical Trials 5 Participants as Partners in Genetic Research 6 Terminally Ill Patients and the "Right to Try" Experimental Drugs 7 Embedded Ethics in Developing Country Research 8 Research Subjects as Literary Subjects 9 How to Hear Subjects Index
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