The research ethics system was created without the help of people who know what it is like to be a research subject. This is a serious omission. Experts have overlooked ethical issues that matter to subjects. Silent Partners moves subjects to the forefront, giving them a voice in research ethics.
The research ethics system was created without the help of people who know what it is like to be a research subject. This is a serious omission. Experts have overlooked ethical issues that matter to subjects. Silent Partners moves subjects to the forefront, giving them a voice in research ethics.Hinweis: Dieser Artikel kann nur an eine deutsche Lieferadresse ausgeliefert werden.
Rebecca Dresser has taught medical and law students about legal and ethical issues in biomedical research, end-of-life care, genetics, and related topics since 1983. From 2002-2009, she was a member of the President's Council on Bioethics and from 2011-2015, a member of the National Institutes of Health Recombinant DNA Advisory Committee. She is the author of When Science Offers Salvation (2001), editor of Malignant (2012), and co-editor of The Human Use of Animals (1998, 2nd ed. 2008) all published by Oxford University Press.
Inhaltsangabe
Contents Preface 1 Subject Perspectives: The Missing Element in Research Ethics 2 Personal Knowledge and Study Participation 3 The Everyday Ethics of Human Research 4 The Hidden World of Subjects: Rule-Breaking in Clinical Trials 5 Participants as Partners in Genetic Research 6 Terminally Ill Patients and the "Right to Try" Experimental Drugs 7 Embedded Ethics in Developing Country Research 8 Research Subjects as Literary Subjects 9 How to Hear Subjects Index
Contents Preface 1 Subject Perspectives: The Missing Element in Research Ethics 2 Personal Knowledge and Study Participation 3 The Everyday Ethics of Human Research 4 The Hidden World of Subjects: Rule-Breaking in Clinical Trials 5 Participants as Partners in Genetic Research 6 Terminally Ill Patients and the "Right to Try" Experimental Drugs 7 Embedded Ethics in Developing Country Research 8 Research Subjects as Literary Subjects 9 How to Hear Subjects Index
Es gelten unsere Allgemeinen Geschäftsbedingungen: www.buecher.de/agb
Impressum
www.buecher.de ist ein Internetauftritt der buecher.de internetstores GmbH
Geschäftsführung: Monica Sawhney | Roland Kölbl | Günter Hilger
Sitz der Gesellschaft: Batheyer Straße 115 - 117, 58099 Hagen
Postanschrift: Bürgermeister-Wegele-Str. 12, 86167 Augsburg
Amtsgericht Hagen HRB 13257
Steuernummer: 321/5800/1497
USt-IdNr: DE450055826