Olana is a twelve-year-old girl who has just been cured from sickle cell disease, a blood disorder that affects the red blood cell. Twelve years ago, Olana was diagnosed with Sickle Cell Disease. After multiple complications due to this condition, she underwent a bone marrow transplant, curing her from sickle cell disease. This news was celebrated by her whole extended family. After all these years, Olana decided to tell her story through different tales. This is the first tale of many tales Olana wants to share with her friends and family. Olana wants you to know that she is writing more…mehr
Olana is a twelve-year-old girl who has just been cured from sickle cell disease, a blood disorder that affects the red blood cell. Twelve years ago, Olana was diagnosed with Sickle Cell Disease. After multiple complications due to this condition, she underwent a bone marrow transplant, curing her from sickle cell disease. This news was celebrated by her whole extended family. After all these years, Olana decided to tell her story through different tales. This is the first tale of many tales Olana wants to share with her friends and family. Olana wants you to know that she is writing more tales which will be released in due course. For now, enjoy this first reflection!
Agnes is an entrepreneur, the creator of different Olana accessories and the Olana doll, a comfort doll for children living with a chronic illness. A global health advocate and consultant specialising in Sickle Cell Disease (SCD) & Mental Health, Agnes is also an author and book publisher with over four books under her company Olana's World Publishing House. Agnes is the creator of different initiatives to enhance sickle cell awareness around the world. Her world changed when her daughter was diagnosed with sickle cell anaemia, starting with changing her career from the Business world to becoming a Registered Nurse. Agnes founded Australian Sickle Cell Advocacy Inc, the only sickle cell organisation predominantly supporting people impacted by SCD in Australia. Agnes is also the initiator of the first-ever multi author book containing23 real-life stories from people impacted by SCD from over 20 countries. The book The Many Lives and Faces of Sickle Cell- A Global Collaboration was published in June 2022. Today Agnes' daughter has been cured after being the first child to receive a Bone Marrow Transplant to cure SCD in Australia. Her hope is that one day there will a cure for SCD for all Sickle Cell Warriors. Agnes holds a Diploma of Accounting, Bachelor of Business Administration (Edith Cowan University) and a Master of Nursing from University of Sydney. Agnes is currently pursuing a Doctor of Philosophy (PhD) specialising in a topic on sickle cell disease in Australia.
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