Matti Häyry is Professor of Bioethics and Philosophy of Law at the University of Manchester.
Inhaltsangabe
Introduction Vilhjálmur Árnason Part I. Background: 1. On human genetic databases Gardar Árnason 2. American principles, European values, and the mezzanine rules of ethical genetic data banking Matti Häyry and Tuija Takala 3. Languages of privacy Salvör Nordal Part II. Social Concerns: 4. A sociological perspective: public perceptions of privacy and their trust in institutions managing and regulating genetic databases Kjell E. Eriksson, Margrét L. Gudmundsdóttir, Külliki Korts and Sue Weldon 5. Estonia Külliki Korts 6. Iceland Margrét Lilja Gudmundsdóttir and Salvör Nordal 7. Sweden Kjell E. Eriksson 8. United Kingdom Sue Weldon 9. Public discourses on human genetic databases Piia Tammpuu Part III. Legal Issues: 10. Regulating human genetic databases in Europe Jane Kaye 11. Consent and population genetic databases Hördur Helgi Helgason 12. Third party's interests in population genetic databases Lotta Wendel 13. Transforming principles of biolaw into national legislation Ants Nõmper 14. Governance of population genetic databases Susan M. C. Gibbons 15. The legal jigsaw governing population genetic databases Jane Kaye Part IV. Ethical Questions: 16. Introduction Vilhjálmur Árnason 17. Pursuing equality: questions of social justice and population genomics Sarah Wilson and Ruth Chadwick 18. Benefit-sharing and biobanks Kadri Simm 19. Genetic discrimination Lena Halldenius 20. Privacy Salvör Nordal 21. Trust Margit Sutrop 22. Consent Sigurdur Kristinsson and Vilhjálmur Árnason Part V. Political Considerations: 23. Impact of biobanks on ethical frameworks Ruth Chadwick and Mark Cutter 24. Genetics, rhetoric and policy Gardar Árnason 25. Genetic databases and governance Rainer Kattel 26. Conclusion: bioethical analysis of the results Matti Häyry and Tuija Takala.
Introduction Vilhjálmur Árnason Part I. Background: 1. On human genetic databases Gardar Árnason 2. American principles, European values, and the mezzanine rules of ethical genetic data banking Matti Häyry and Tuija Takala 3. Languages of privacy Salvör Nordal Part II. Social Concerns: 4. A sociological perspective: public perceptions of privacy and their trust in institutions managing and regulating genetic databases Kjell E. Eriksson, Margrét L. Gudmundsdóttir, Külliki Korts and Sue Weldon 5. Estonia Külliki Korts 6. Iceland Margrét Lilja Gudmundsdóttir and Salvör Nordal 7. Sweden Kjell E. Eriksson 8. United Kingdom Sue Weldon 9. Public discourses on human genetic databases Piia Tammpuu Part III. Legal Issues: 10. Regulating human genetic databases in Europe Jane Kaye 11. Consent and population genetic databases Hördur Helgi Helgason 12. Third party's interests in population genetic databases Lotta Wendel 13. Transforming principles of biolaw into national legislation Ants Nõmper 14. Governance of population genetic databases Susan M. C. Gibbons 15. The legal jigsaw governing population genetic databases Jane Kaye Part IV. Ethical Questions: 16. Introduction Vilhjálmur Árnason 17. Pursuing equality: questions of social justice and population genomics Sarah Wilson and Ruth Chadwick 18. Benefit-sharing and biobanks Kadri Simm 19. Genetic discrimination Lena Halldenius 20. Privacy Salvör Nordal 21. Trust Margit Sutrop 22. Consent Sigurdur Kristinsson and Vilhjálmur Árnason Part V. Political Considerations: 23. Impact of biobanks on ethical frameworks Ruth Chadwick and Mark Cutter 24. Genetics, rhetoric and policy Gardar Árnason 25. Genetic databases and governance Rainer Kattel 26. Conclusion: bioethical analysis of the results Matti Häyry and Tuija Takala.
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