The Governance of Genetic Information

Who Decides?
Herausgeber: Mullen, Caroline; Widdows, Heather

• Broschiertes Buch

Produktbeschreibung

This volume suggests alternative ethical frameworks and models of regulation relating to the governance of genetic information.

Produktdetails

• Verlag: Cambridge University Press
• Seitenzahl: 248
• Erscheinungstermin: 21. August 2013
• Englisch
• Abmessung: 229mm x 152mm x 14mm
• Gewicht: 365g
• ISBN-13: 9781107625426
• ISBN-10: 1107625424
• Artikelnr.: 40055714

Inhaltsangabe

Introduction Heather Widdows and Caroline Mullen; Section I. Problematising
Governance of Genetic Information: 1. The medium and the message: tissue
samples, genetic information and data protection legislation Neil C.
Manson; 2. Me, myself, I: against narcissism in the governance of genetic
information Søren Holm; 3. Decisions, consent and expectations of the
individual Caroline Mullen; Section II. Ethical Frameworks of Governance:
4. Constructing communal models of governance: collectives of individuals
or distinct ethical loci? Heather Widdows; 5. Rights, responsibility and
stewardship: beyond consent Roger Brownsword; 6. Who decides what?
Relational ethics, genetics and well-being Sarah Wilson; Section III.
Redesigning Governance: 7. Involving publics in biobank governance: moving
beyond existing approaches Kathryn G. Hunter and Graeme T. Laurie; 8.
Genetic information and public opinion Andrew Edgar; 9. Harmonisation and
standardisation in ethics and governance: Conceptual and practical
challenges Ruth Chadwick and Heather Strange.