This volume, edited by bioethicists Hilde Lindemann, Marian Verkerk, and Janice McLaughlin, develops an ethic of the family as it pertains to health care, an ethic that is distinct from health care ethics, feminist ethics, or an ethic of care. It theorizes relationships characterized by ongoing intimacy and partiality among people who are not interchangeable, and remains centered on the practices of responsibility arising from these relationships. This volume comprises contributions from bioethicists and scholars with backgrounds in sociology, philosophy, nursing, and health care ethics.
This volume, edited by bioethicists Hilde Lindemann, Marian Verkerk, and Janice McLaughlin, develops an ethic of the family as it pertains to health care, an ethic that is distinct from health care ethics, feminist ethics, or an ethic of care. It theorizes relationships characterized by ongoing intimacy and partiality among people who are not interchangeable, and remains centered on the practices of responsibility arising from these relationships. This volume comprises contributions from bioethicists and scholars with backgrounds in sociology, philosophy, nursing, and health care ethics.Hinweis: Dieser Artikel kann nur an eine deutsche Lieferadresse ausgeliefert werden.
Hilde Lindemann is Emerita Professor of Philosophy at Michigan State University. A Fellow of the Hastings Center and a past president of the American Society for Bioethics and Humanities, her ongoing research interests are in feminist bioethics, feminist ethics, the ethics of families, and the social construction of persons and their identities. She is the former editor of The Hastings Center Report as well as of Hypatia: A Journal of Feminist Philosophy. Marian Verkerk is Full Professor Ethics of Care at the University Medical Centre of Groningen (UMCG) and the University of Groningen. She is interested in exploring how questions of morality and ethics are embedded in relational perspectives and experiences of care. She was previously program leader of an international research consortium on Ethics of Families. Since 2017 she has served as project leader on Patient Engagement at the UMCG. Janice McLaughlin is Professor of Sociology at Newcastle University. Her research interests focus on childhood disability and the examination of its surrounding social and institutional worlds, including family. Though a sociologist, she draws from associated disciplines such as anthropology and bioethics, with a strong emphasis on empirical qualitative research. Her most recent book (with Edmund Coleman-Fountain and Emma Clavering) is Disabled Childhoods: Monitoring Differences and Emerging Identities (Routledge, 2018).
Inhaltsangabe
* Introduction: Hilde Lindemann, Janice McLaughlin, and Marian Verkerk * Chapter 1: Why Families Matter, Hilde Lindemann * Case Study: Lesbian Parents' Search for "The Right Way" to Disclose Donor Conception to Their Children, Veerle Prevost * Chapter 2: Recognizing Family, Janice McLaughlin * Case Study: The Family Imperative in Genetic Testing, Lorraine Cowley * Case Study: What Counts as a Family-And Who Is to Decide? Margareta Hydén * Chapter 3: Negotiating Responsibilities, Marian A. Verkerk * Case Study: Paternal Responsibility for Children and Pediatric Hospital Policies in Romania, Daniela Cuta * Case Study: Family Care-Giving as a Problematic Category, Jacqueline Chin * Chapter 4: Health Care Decisions, Ulrik Kihlbom and Christian Munthe * Case Study: Family-Centeredness as Resource and Complication in Outpatient Care with Weak Adherence, Using Adolescent Diabetes Care as a Case in Point, Andre Herlitz and Christian Munthe * Case Study: Annie's Problem, Jackie Leach Scully * Chapter 5: Justice, Intimacy, and Autonomy * Jamie Lindemann Nelson and Simon Woods * Case Study: Young Carers, Gideon Calder * Case Study: Autism, Family Life, and Epistemic Injustice: A Case Study, Richard Ashcroft
* Introduction: Hilde Lindemann, Janice McLaughlin, and Marian Verkerk * Chapter 1: Why Families Matter, Hilde Lindemann * Case Study: Lesbian Parents' Search for "The Right Way" to Disclose Donor Conception to Their Children, Veerle Prevost * Chapter 2: Recognizing Family, Janice McLaughlin * Case Study: The Family Imperative in Genetic Testing, Lorraine Cowley * Case Study: What Counts as a Family-And Who Is to Decide? Margareta Hydén * Chapter 3: Negotiating Responsibilities, Marian A. Verkerk * Case Study: Paternal Responsibility for Children and Pediatric Hospital Policies in Romania, Daniela Cuta * Case Study: Family Care-Giving as a Problematic Category, Jacqueline Chin * Chapter 4: Health Care Decisions, Ulrik Kihlbom and Christian Munthe * Case Study: Family-Centeredness as Resource and Complication in Outpatient Care with Weak Adherence, Using Adolescent Diabetes Care as a Case in Point, Andre Herlitz and Christian Munthe * Case Study: Annie's Problem, Jackie Leach Scully * Chapter 5: Justice, Intimacy, and Autonomy * Jamie Lindemann Nelson and Simon Woods * Case Study: Young Carers, Gideon Calder * Case Study: Autism, Family Life, and Epistemic Injustice: A Case Study, Richard Ashcroft
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