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What does the everyday reality of being disabled mean for those involved? Bringing together a range of qualitative methodologies, interviews and ethnographies in a global context, this collection highlights the mundane interactions and everyday occurrences in the lives of people with disabilities across the life-course. It will provide an excellent resource for disability studies, health and wellbeing, illness, and healthcare.
What does the everyday reality of being disabled mean for those involved? Bringing together a range of qualitative methodologies, interviews and ethnographies in a global context, this collection highlights the mundane interactions and everyday occurrences in the lives of people with disabilities across the life-course. It will provide an excellent resource for disability studies, health and wellbeing, illness, and healthcare.
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Autorenporträt
Gareth M. Thomas is a Lecturer in the School of Social Sciences at Cardiff University, UK. He is a sociologist interested in medicine, disability, stigma, reproduction, and place. His first research monograph - Down's Syndrome Screening and Reproductive Politics: Care, Choice, and Disability in the Prenatal Clinic - was published by Routledge in March 2017. Dikaios Sakellariou is a Senior Lecturer in the School of Healthcare Sciences at Cardiff University, UK. He is interested in health inequalities, experiences of disability and disablement, and the intersubjective nature of care practices. He has co-authored and co-edited the volumes A Political Practice of Occupational Therapy and Occupational Therapies without Borders (with Nick Pollard and Frank Kronenberg), and Politics of Occupation-Centred Practice (with Nick Pollard).
Inhaltsangabe
List of figures; List of contributors; Acknowledgements; Part I. Disability, Normalcy, and the Everyday -Chapter 1. Introduction: disability, normalcy, and the everyday -Gareth M. Thomas and Dikaios Sakellariou; Chapter 2. Keeping up appearances: family carers and people with dementia negotiating normalcy through dress practice -Christina Buse and Julia Twigg; Part II: Youth, Normalcy, and Disability Futures Chapter 3. The everyday worlds of disabled children -Tillie Curran, Kirsty Liddiard, and Katherine Runswick-Cole; Chapter 4. Pursuit of ordinariness: dynamics of conforming and resisting in disabled young people's embodied practices -Janice McLaughlin and Edmund Coleman-Fountain; Chapter 5. Worlding the 'new normal' for young adults with disabilities -Faye Ginsburg and Rayna Rapp; Part III: Doing Care, Creating Living Chapter 6. Who's disabled, Babe? Carving out a good life among the normal and everyday - Helen Errington, Karen Soldatic, and Louisa Smith; Chapter 7. 'I employ a crew that can do life with me': a young woman's creative self-management of support workers -Nikki Wedgewood, Louisa Smith, and Russell Shuttleworth; Chapter 8. (Re)negotiating normal every day: phenomenological uncertainty in Parkinson's disease -Narelle Warren and Darshini Ayton; Part IV: Global Disability Politics Chapter 9. Ethical (dis)enchantment, afflictive kinship, and Ebola exceptionalism -Maria Berghs; Chapter 10. Disability and healthcare in everyday life - Hannah Kuper, Goli Hashemi, and Mary Wickenden; Index
List of figures; List of contributors; Acknowledgements; Part I. Disability, Normalcy, and the Everyday -Chapter 1. Introduction: disability, normalcy, and the everyday -Gareth M. Thomas and Dikaios Sakellariou; Chapter 2. Keeping up appearances: family carers and people with dementia negotiating normalcy through dress practice -Christina Buse and Julia Twigg; Part II: Youth, Normalcy, and Disability Futures Chapter 3. The everyday worlds of disabled children -Tillie Curran, Kirsty Liddiard, and Katherine Runswick-Cole; Chapter 4. Pursuit of ordinariness: dynamics of conforming and resisting in disabled young people's embodied practices -Janice McLaughlin and Edmund Coleman-Fountain; Chapter 5. Worlding the 'new normal' for young adults with disabilities -Faye Ginsburg and Rayna Rapp; Part III: Doing Care, Creating Living Chapter 6. Who's disabled, Babe? Carving out a good life among the normal and everyday - Helen Errington, Karen Soldatic, and Louisa Smith; Chapter 7. 'I employ a crew that can do life with me': a young woman's creative self-management of support workers -Nikki Wedgewood, Louisa Smith, and Russell Shuttleworth; Chapter 8. (Re)negotiating normal every day: phenomenological uncertainty in Parkinson's disease -Narelle Warren and Darshini Ayton; Part IV: Global Disability Politics Chapter 9. Ethical (dis)enchantment, afflictive kinship, and Ebola exceptionalism -Maria Berghs; Chapter 10. Disability and healthcare in everyday life - Hannah Kuper, Goli Hashemi, and Mary Wickenden; Index
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