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Firmly grounded in empirical data, this book critically engages with the relational, moral and ethical issues surrounding genetic testing in contemporary society. Competing accounts of autonomy, responsibility and blame - by families, by professionals and in the public sphere - are analysed rigorously within a discourse-rhetorical framework, paying particular attention to the situated management of risks of knowing and risks of disclosure.

Produktbeschreibung
Firmly grounded in empirical data, this book critically engages with the relational, moral and ethical issues surrounding genetic testing in contemporary society. Competing accounts of autonomy, responsibility and blame - by families, by professionals and in the public sphere - are analysed rigorously within a discourse-rhetorical framework, paying particular attention to the situated management of risks of knowing and risks of disclosure.

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Autorenporträt
Michael Arribas-Ayllon is Lecturer in Biological and Cognitive Psychology at Cardiff University. His research interests include histories and futures of biological knowledge, the social shaping of genetic testing, the politics of personalised medicine and the discourse ethics of genetic counselling and risk communication.

Srikant Sarangi is Professor of Language and Communication and Director of the Health Communication Research Centre at Cardiff University. His research interests are in discourse analysis and applied linguistics, language and identity in public life, and institutional/professional discourse studies. He is author/editor of 12 books, guest-editor of five journal special issues and has published over 200 journal articles and book chapters.

Angus Clarke is Professor in Clinical Genetics in Cardiff University. He has interests in Rett syndrome and ectodermal dysplasia, as well as genetic screening, the genetic counselling process and the social and ethical issues raised by advances in human genetics. He also teaches and works as a clinician. He represents the Chief Medical Officer for Wales on the Human Genetics Commission. He has co-authored and edited six books, including Genetics, Society and Clinical Practice (jointly with Professor Peter Harper).