At the age of seventeen, in April 2015, Hayley tragically lost her battle to be the longest survivor of progeria, succumbing to pneumonia in the arms of her mother. This book tells Hayley's story in her own words, continuing from the bestselling Old Before My Time. She reflects on the pains and perks of growing up with progeria - from the heartbreak of being told she will never walk again to the delight of passing her exams and starting college. Hayley considers mood swings, marriage, music, and what it's like to be 'famous' and is heartbreakingly positive about a future that wasn't to be.
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