Isabelle Schnadig

My Little Brother is a Trooper: The Story of a Child With a Dual Diagnosis: Down Syndrome and Hirschsprung Disease (eBook, ePUB)

• Format: ePub

Produktbeschreibung

Lily shares the story of her little brother Peter, who has a dual diagnosis of Hirschsprung Disease and Down syndrome. Lily tells us more about life with these diagnoses and how the family has worked together to give Peter a happy, healthy, and safe home.

Raising a child who has a hard time communicating his or her feelings (such as a child with Down syndrome) adds to the difficulty of coping with any complex medical condition such as Hirschprung Disease. Both conditions combined represent multiple challenges to the child and their family. Those dealing with similar situations will relate to such challenges. This book concludes with a letter addressed to adult caregivers in which the author shares her personal story and experience with her son, who has both conditions, in the hopes of helping others.

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Produktdetails

• Verlag: SDPPublishing
• Altersempfehlung: ab 9 Jahre
• Erscheinungstermin: 2. Januar 2025
• Englisch
• ISBN-13: 9798988543985
• Artikelnr.: 72679344

Autorenporträt

Eric and Isabelle Schnadig are a husband and wife book-writing and illustrating team. they are also the proud parents of four wonderful children: Claire, Paul, Nathalie, and Adrien, and are co-founders of REACH, a not-for-profit dedicated to research, education, and awareness for patients and families with Hirschsprung disease. They work and live in Concord, Massachusetts.

About REACH:
REACH stands for Research, Education, and Awareness, for Children with Hirschsprung Disease. It is a not-for-profit organization founded in 2011 by parents and physicians committed to improving the lives of children and families with Hirschsprung disease. If you would like to learn more or help, please contact us at: [e-mail] and follow us on Facebook at www.facebook.com/reachhd/ and Instagram at www.instagram.com/reach_hd/.
Our website is www.reachhd.org.