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The protagonist of this book is called Roberta Maria, a four years old girl who has lived with a very rare genetic pathology since birth. Through her message, which her father and her family try to tell, many co-protagonists are revealed in the story, representing all people with disabilities and some extras, which by directing the lives of the protagonists, automatically become unwitting directors. The story begins a few weeks before Roberta's birth and, retracing the months marked by hospitalizations, relationships with health workers and institutions, victories and defeats, and it ends,…mehr

Produktbeschreibung
The protagonist of this book is called Roberta Maria, a four years old girl who has lived with a very rare genetic pathology since birth.
Through her message, which her father and her family try to tell, many co-protagonists are revealed in the story, representing all people with disabilities and some extras, which by directing the lives of the protagonists, automatically become unwitting directors.
The story begins a few weeks before Roberta's birth and, retracing the months marked by hospitalizations, relationships with health workers and institutions, victories and defeats, and it ends, albeit with a future to be imagined, with a thought of hope that verges on the utopia. The narrative includes a first section focused on the purely health part, a central portion that is integrated with the first, elements that from individuals aim to become a common heritage, and a final segment, which describes the life of a family that lives daily with disability. , during the period of the health emergency due to the covid-19 pandemic.