Right to Know and the Right Not to Know (eBook, ePUB)

Genetic Privacy and Responsibility
Redaktion: Chadwick, Ruth

• Format: ePub

Produktbeschreibung

The privacy concerns discussed in the 1990s in relation to the New Genetics failed to anticipate the relevant issues for individuals, families, geneticists and society. Consumers, for example, can now buy their personal genetic information and share it online. The challenges facing genetic privacy have evolved as new biotechnologies have developed, and personal privacy is increasingly challenged by the irrepressible flow of electronic data between the personal and public spheres and by surveillance for terrorism and security risks. This book considers the right to know and the right not to know about your own and others' genomes. It discusses new privacy concerns and developments in ethical thinking, with the greater emphasis on solidarity and equity. The multidisciplinary approach covers current topics such as biobanks and forensic databases, DIY testing, group rights and accountability, the food we eat and the role of the press and the new digital media.

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Produktdetails

• Verlag: Cambridge University Press
• Erscheinungstermin: 4. September 2014
• Englisch
• ISBN-13: 9781316055014
• Artikelnr.: 49268425

Inhaltsangabe

Introduction: the right to know and the right not to know: seventeen years
on Darren Shickle; Part I. Philosophical and Legal Issues: 1. The
philosophy of the right to know and the right not to know Ruth Chadwick; 2.
Autonomy Jorgen Husted; 3. Privacy and the right not to know: a plea for
conceptual clarity Graeme Laurie; Part II. Issues in Genetics: 4. Biobanks
and feedback: the right to know what other people know Kadri Simm; 5.
Suspects, victims and others: producing and sharing forensic genetic
knowledge Robin Williams and Matthias Weinroth; 6. Empowered by choice?
Mairi Levitt; 7. DIY: the right to know your own genome Barbara Prainsack;
8. Genomics, inconvenient truths, and accountability Jeantine Lunshof and
Ruth Chadwick; Part III. Emerging Issues: 9. The right to know and the
right not to know in the era of neoliberal biopolitics and bioeconomy Henk
ten Have; 10. The parental love argument against 'designing' babies: the
harm in knowing that one has been selected or enhanced Anca Gheaus; 11. The
inescapability of knowing and inability to not know in the digital society
Richard Watermeyer; 12. The press and the public interest Joachim Allgaier;
13. The food we eat: the right to be informed and the duty to inform
Michiel Korthals.