Carolyn Adams

Sharing Linked Data for Health Research (eBook, ePUB)

Toward Better Decision Making

• Format: ePub

Produktbeschreibung

Health research around the world relies on access to data, and much of the most valuable, reliable, and comprehensive data collections are held by governments. These collections, which contain data on whole populations, are a powerful tool in the hands of researchers, especially when they are linked and analyzed, and can help to address "e;wicked problems"e; in health and emerging global threats such as COVID-19. At the same time, these data collections contain sensitive information that must only be used in ways that respect the values, interests, and rights of individuals and their communities. Sharing Linked Data for Health Research provides a template for allowing research access to government data collections in a regulatory environment designed to build social license while supporting the research enterprise.

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Produktdetails

• Verlag: Cambridge University Press
• Erscheinungstermin: 9. Juni 2022
• Englisch
• ISBN-13: 9781108619912
• Artikelnr.: 66178696

Autorenporträt

Carolyn Adams, originally from Houston, Texas, has lived in Beaverton, Oregon, since 2017. From childhood, her passion has been reading and writing poetry, and as an adult, she has cultivated a love of photography and art. While living in Houston, she was active in the art and literary communities of Houston, Austin, and other parts of Texas for many years, coordinating and performing in numerous readings, festivals, literary events, and art exhibitions. In 2013, she was a finalist for Houston Poet Laureate. She received her undergraduate degree in Humanities from the University of Houston in 2016. She has been nominated for a Pushcart prize and for Best of the Net. Since her move to Oregon, she has connected with poets in her new home and continues her involvement in the local scene, as well as taking frequent trips into the beautiful natural environment of her new home state. Her poetry, art, and photography have appeared in Caveat Lector, Steam Ticket, Bryant Literary Review, The Weight of Addition: An Anthology of Texas Poetry, Common Ground Review, Beatnik Cowboy, Kansas City Voices, San Pedro River Review, and Cimarron Review, among others. She has assisted in editing and publishing the literary journals Curbside Review, Ardent, Lily Literary Review, Mad Hatters Review, Mojave River Review and VoiceCatcher. Her poetry e-chapbook Beautiful Strangers was published in 2006 by Lily Press, and her art e-chapbook, What Do you See?, published in 2007, is available free of charge from the e-zine Right Hand Pointing. She has also published two chapbooks, An Ocean of Names in 2011, and The Things You've Left Behind in 2016.

Inhaltsangabe

Part I. Context for decision making
1. Research using linked data
2. Individual, collective, and public interests
3. Social licence
Part II. Frameworks for decision making
4. Human rights
5. Research ethics
6. Law
Part III. Practice and process of decision making
7. Existing practice and processes
8. Better practice and processes.