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Social policy is often constructed and implemented by people who have little experience of its impact as a service user, but there has been a growing interest in greater public, patient and service user involvement in social policy as both political activity and academic discipline. Social Policy First Hand is the first comprehensive international social policy text from a participatory perspective and presents a new service user-led social policy that addresses the current challenges in welfare provision. A companion volume to Peter Beresford's bestselling All our welfare, it introduces the…mehr
Social policy is often constructed and implemented by people who have little experience of its impact as a service user, but there has been a growing interest in greater public, patient and service user involvement in social policy as both political activity and academic discipline. Social Policy First Hand is the first comprehensive international social policy text from a participatory perspective and presents a new service user-led social policy that addresses the current challenges in welfare provision. A companion volume to Peter Beresford's bestselling All our welfare, it introduces the voices of different groups of service users, starting from their lived experience. With an impressive list of contributors, this important volume fills a gap in looking at social policy using participatory and inclusive approaches and the use of experiential knowledge in its construction. It will challenge traditional state and market-led approaches to welfare.
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Autorenporträt
Peter is Professor of Citizen Participation at the University of Essex and Co-Chair of Shaping Our Lives, the user led organisation and network. He has authored and edited more than 20 books and many journal articles as well as writing regular columns for the Guardian and the professional press. He has a longstanding track record of work in the field of participation and citizen involvement as academic, service user, researcher, educator and activist. Sarah is Associate Professor of Mental Health Research at Middlesex University and Vice-chair of the National Survivor User Network. She holds Honorary Social Policy and Social Care posts at the universities of Birmingham and York, and is a Fellow of the Royal Society of Arts. Sarah has written on her own experiences a long-term user of mental health services as well as general mental health and social care practice and policy.
Inhaltsangabe
Foreword ~ Baroness Ruth Lister Introduction ~ Peter Beresford and Sarah Carr Part I: Service users and social policy: an introduction Challenging Injustice: the importance of collective ownership of social policy ~ Danny Dorling Participation and solidarity in a changing welfare state ~ Peter Taylor-Gooby Social policy in developing countries: A post-colonial critique and participatory inquiry ~ Sweta Rajan-Rankin Advancing sustainability: developing participatory social policy in the context of environmental disasters ~ Margaret Alston Social policy and disability ~ Colin Cameron A case study of children's participation in health policy and practice ~ Louca-Mai Brady, Felicity Hathway and Emily Roberts Who owns co-production? ~ Sarah Carr Part II: Critiquing and reconceiving Beveridge's 'five giant evils': Key areas of British post-war social policy from a lived experience perspective Rethinking disabled people's rights to work and contribute ~ Jane Young Talking policy as a patient ~ Anya de Iongh 'We don't deal with people we deal with bricks and mortar': a lived experience perspective on UK health and housing policy ~ Alison Cameron Education (ignorance) addressing inclusive education: the issues and its importance from a participatory perspective ~ Tara Flood and Navin Kikabhai 'For work, we came here to find work': migrant Roma employment and the labour of language ~ Colin Clark Part III: The contribution of service user knowledges Disability policy and lived experience: reflections from regional Australia ~ Kathy Boxall, Adam Johnson, Lawrence Mitting, Suzanne Simpson, Stefan Zwickl, Judith Zwickl, Shae Kermit, Luke and Caroline Renewing epistemologies: service user knowledge ~ Diana Rose Pornography, feminist epistemology and changing public policy ~ Ruth Beresford Making social policy internationally: a participatory research perspective ~ Nicola Yeates and Ana B. Amaya Part IV: An inclusive life course and developmental approach to social policy Disabled children's lives: an inclusive life course and developmental approach to social policy ~ Mary Wickenden Troubled Youth and Troubling Social Policy: Mental Health From a Mad Studies Perspective ~ Lucy Costa Disability: an inclusive life course and developmental approach to social policy ~ Emmeline Burdett Independent living from a Black Disabled Woman's perspective ~ Michelle Daley Food poverty and the policy context in Ireland ~ Deirdre O'Connor Implementing race equality policies in British health and social care: a perspective from experience ~ Hári Sewell Participatory approaches to social policy in relation to ageing ~ Sarah Lonbay Death, dying and digital stories ~ Lisa Williams, Merryn Gott, Tess Moeke-Maxwell, Stella Black, Shuchi Kothari, Sarina Pearson, Peter James Simpson, Tessa Morgan, Marianne Grbin, Matua Rawiri Wharemate and Whaea Whio Hansen Part V: Transforming social policy People acting collectively can be powerful ~ Jennie Fleming Their participation and ours: competing visions of empowerment ~ Iain Ferguson A participatory approach to professional practice ~ Suzy Croft Dreams of justice ~ Tina Minkowitz Sustainable-participatory social policy ~ Marilyn Palmer Participatory social policy in a large EU research project ~ Joe Greener and Michael Lavalette, with Rose Devereaux and members of SUGAH Part VI: Campaigning and change Section One: Approaches to activism 'What Is strong, now what is wrong' An interview with Clenton Farquharson MBE Participatory social policy and social change: exploring the role of social entrepreneurship linked to forms of social and micro enterprises in the field of social care ~ Barbara Fawcett Public duty, whistleblowing and scandal: influences on public policy ~ Kay Sheldon Visual: Making the case for single sex mental health wards ~ Kay Sheldon 'Informed gender practice in acute mental health': when policy makes sense ~ Nicky Lambert #JusticeforLB: in search of truth, accountability and justice ~ George Julian and Sara Ryan Section Two: The role of online platforms and social media Guerilla policy: new platforms for making policy from below ~ Michael Harris A Magna Carta for learning disabled people ~ Kaliya Franklin and Gary Bourlet Pat's Petition: The emerging role of social media and the internet ~ Pat Onions and others Part VII: Breaking down barriers Section One: Inclusion and difference in the formulation and operation of social policy "LGBT History Month is a thing!" The story of an equal rights campaign ~ Sue Sanders Section Two: user-led approaches to social policy Transforming professional training and education - a gap mending approach: The PowerUs European partnership ~ Helen Casey Grassroots tackling policy: the making of the 'Spartacus Report' ~ Sam Barnett-Cormack Involvement for influence: developing the 4Pi Involvement Standards ~ Sarah Yiannoullou and Alison Faulkner Part VIII: Participatory research and evaluation From expert to service user: challenging how lived experience is demeaned ~ Michele Moore Participatory methodologies involving marginalised perspectives ~ Charlotte Williams Developing the evidence to challenge 'welfare reform': the road to 'Cash Not Care' ~ Mo Stewart Service user-controlled research for evidence-based policy making ~ Alison Faulkner Participatory citizenship, gender and human trafficking in Nepal ~ Diane Richardson, Nina Laurie, Meena Poudel, Shakti Samuha and Janet Townsend Experiential knowledge in mental health policy and legislation: can we ever change the agenda? ~ Jasna Russo Conclusion ~ Peter Beresford and Sarah Carr
Foreword ~ Baroness Ruth Lister Introduction ~ Peter Beresford and Sarah Carr Part I: Service users and social policy: an introduction Challenging Injustice: the importance of collective ownership of social policy ~ Danny Dorling Participation and solidarity in a changing welfare state ~ Peter Taylor-Gooby Social policy in developing countries: A post-colonial critique and participatory inquiry ~ Sweta Rajan-Rankin Advancing sustainability: developing participatory social policy in the context of environmental disasters ~ Margaret Alston Social policy and disability ~ Colin Cameron A case study of children's participation in health policy and practice ~ Louca-Mai Brady, Felicity Hathway and Emily Roberts Who owns co-production? ~ Sarah Carr Part II: Critiquing and reconceiving Beveridge's 'five giant evils': Key areas of British post-war social policy from a lived experience perspective Rethinking disabled people's rights to work and contribute ~ Jane Young Talking policy as a patient ~ Anya de Iongh 'We don't deal with people we deal with bricks and mortar': a lived experience perspective on UK health and housing policy ~ Alison Cameron Education (ignorance) addressing inclusive education: the issues and its importance from a participatory perspective ~ Tara Flood and Navin Kikabhai 'For work, we came here to find work': migrant Roma employment and the labour of language ~ Colin Clark Part III: The contribution of service user knowledges Disability policy and lived experience: reflections from regional Australia ~ Kathy Boxall, Adam Johnson, Lawrence Mitting, Suzanne Simpson, Stefan Zwickl, Judith Zwickl, Shae Kermit, Luke and Caroline Renewing epistemologies: service user knowledge ~ Diana Rose Pornography, feminist epistemology and changing public policy ~ Ruth Beresford Making social policy internationally: a participatory research perspective ~ Nicola Yeates and Ana B. Amaya Part IV: An inclusive life course and developmental approach to social policy Disabled children's lives: an inclusive life course and developmental approach to social policy ~ Mary Wickenden Troubled Youth and Troubling Social Policy: Mental Health From a Mad Studies Perspective ~ Lucy Costa Disability: an inclusive life course and developmental approach to social policy ~ Emmeline Burdett Independent living from a Black Disabled Woman's perspective ~ Michelle Daley Food poverty and the policy context in Ireland ~ Deirdre O'Connor Implementing race equality policies in British health and social care: a perspective from experience ~ Hári Sewell Participatory approaches to social policy in relation to ageing ~ Sarah Lonbay Death, dying and digital stories ~ Lisa Williams, Merryn Gott, Tess Moeke-Maxwell, Stella Black, Shuchi Kothari, Sarina Pearson, Peter James Simpson, Tessa Morgan, Marianne Grbin, Matua Rawiri Wharemate and Whaea Whio Hansen Part V: Transforming social policy People acting collectively can be powerful ~ Jennie Fleming Their participation and ours: competing visions of empowerment ~ Iain Ferguson A participatory approach to professional practice ~ Suzy Croft Dreams of justice ~ Tina Minkowitz Sustainable-participatory social policy ~ Marilyn Palmer Participatory social policy in a large EU research project ~ Joe Greener and Michael Lavalette, with Rose Devereaux and members of SUGAH Part VI: Campaigning and change Section One: Approaches to activism 'What Is strong, now what is wrong' An interview with Clenton Farquharson MBE Participatory social policy and social change: exploring the role of social entrepreneurship linked to forms of social and micro enterprises in the field of social care ~ Barbara Fawcett Public duty, whistleblowing and scandal: influences on public policy ~ Kay Sheldon Visual: Making the case for single sex mental health wards ~ Kay Sheldon 'Informed gender practice in acute mental health': when policy makes sense ~ Nicky Lambert #JusticeforLB: in search of truth, accountability and justice ~ George Julian and Sara Ryan Section Two: The role of online platforms and social media Guerilla policy: new platforms for making policy from below ~ Michael Harris A Magna Carta for learning disabled people ~ Kaliya Franklin and Gary Bourlet Pat's Petition: The emerging role of social media and the internet ~ Pat Onions and others Part VII: Breaking down barriers Section One: Inclusion and difference in the formulation and operation of social policy "LGBT History Month is a thing!" The story of an equal rights campaign ~ Sue Sanders Section Two: user-led approaches to social policy Transforming professional training and education - a gap mending approach: The PowerUs European partnership ~ Helen Casey Grassroots tackling policy: the making of the 'Spartacus Report' ~ Sam Barnett-Cormack Involvement for influence: developing the 4Pi Involvement Standards ~ Sarah Yiannoullou and Alison Faulkner Part VIII: Participatory research and evaluation From expert to service user: challenging how lived experience is demeaned ~ Michele Moore Participatory methodologies involving marginalised perspectives ~ Charlotte Williams Developing the evidence to challenge 'welfare reform': the road to 'Cash Not Care' ~ Mo Stewart Service user-controlled research for evidence-based policy making ~ Alison Faulkner Participatory citizenship, gender and human trafficking in Nepal ~ Diane Richardson, Nina Laurie, Meena Poudel, Shakti Samuha and Janet Townsend Experiential knowledge in mental health policy and legislation: can we ever change the agenda? ~ Jasna Russo Conclusion ~ Peter Beresford and Sarah Carr
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