Joëlle Vailly

The Birth of a Genetics Policy (eBook, ePUB)

Social Issues of Newborn Screening

• Format: ePub

Produktbeschreibung

Based on a five-year research project and winner of the Prix 'Le Monde' for academic research in France, The Birth of a Genetics Policy analyses the three dimensions - scientific, political and moral - of the social issues raised by a policy of screening for the genetic disease of cystic fibrosis amongst babies. Drawing on extensive interview material and observational research, it explores the conditions under which a screening policy is decided upon and implemented, the types of political logic underlying it, and the effects it has on norms and values.

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Produktdetails

• Verlag: Taylor & Francis
• Seitenzahl: 240
• Erscheinungstermin: 23. März 2016
• Englisch
• ISBN-13: 9781317040415
• Artikelnr.: 44871010

Autorenporträt

Joëlle Vailly is Senior Researcher at the National Institute for Health and Medical Research (Inserm) and at the research center 'Interdisciplinary Research Institute on Social Issues' (Iris), France.

Inhaltsangabe

Introduction
Chapter 1 The Birth of a Screening Policy (Brittany-France)
Chapter 2 On Scientific Grounds
Chapter 3 Governing
Chapter 4 Extending Abnormality
Chapter 5 Living with the Disease
Chapter 6 Maintaining a Quality Life
Chapter 7 Conclusion