Maureen D. M. D. Mayes

The Scleroderma Book (eBook, ePUB)

A Guide for Patients and Families

• Format: ePub

Produktbeschreibung

The Scleroderma Book has long been considered the leading source of information for patients suffering with this disease. Now comes the Second Edition of this highly respected volume, extensively revised by Maureen Mayes, M.D., the leading authority in this field. Writing specifically for patients and their families, Dr. Mayes draws on her extensive experience treating scleroderma to provide up-to-date, practical information that will help patients manage their symptoms and improve their quality of life. Dr. Mayes begins with an easily accessible description of the basic facts, distinguishing between the many manifestations of the disease, ranging from localized scleroderma (small patches of hardened skin, most common in children, which tend to clear up over time) to systemic scleroderma, which can attack the lungs, the kidneys, and the blood vessels, and can be life threatening. Equally important, she offers sympathetic and reassuring advice on matters that often concern patients, such as the best course of action for those who want children, what to do if the disease affects your sex life, and what you can do to help your doctor treat your illness more effectively. The book concludes with a good humored, frank discussion about how to cope, day in and day out, with an uncertain future--how to be a "person living with" scleroderma, not a "victim suffering from" it. The new edition has updated chapters on the genetics of scleroderma and on new treatments for complications of this disease. Touching on virtually every aspect of this disorder, The Scleroderma Book provides a reliable source of information and reassurance for patients of any age and no matter how severe their form of the disease. Endorsed by the leading national advocate group, The Scleroderma Foundation

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Produktdetails

• Verlag: Oxford University Press
• Erscheinungstermin: 1. Mai 2005
• Englisch
• ISBN-13: 9780199883493
• Artikelnr.: 42507944

Autorenporträt

Maureen Mayes, M.D. is Professor of Medicine at the University of Texas Houston Medical School, where she directs the Scleroderma Clinic. She is a past president and director of the National Board of Directors for the United Scleroderma Foundation, and serves on its Medical Advisory Board.

Inhaltsangabe

* Part 1: Introduction to terms and types of scleroderma
* 1: What is scleroderma?
* 2: Localized scleroderma: Limited, localized, diffuse, generalized,
systemic and not-so-systemic: What's in a name?
* 3: Systemic scleroderma - diffuse
* 4: Systemic scleroderma - limited
* Part 2: Epidemiology: Who gets scleroderma and why?
* 5: Genetic features of scleroderma: Did you get it from your parents?
Can you give it to your kids?
* 6: Epidemiology of scleroderma: Number of patients, occupational
links and environmental connections
* Part 3: How scleroderma affects the body
* 7: Raynaud's phenomenon, skin involvement and finger sores
* 8: Scleroderma and the kidneys
* 9: Scleroderma and the gastrointestinal tract
* 10: Scleroderma and the lungs
* 11: Scleroderma and the heart
* 12: Scleroderma and joints, tendons, muscles and nerves
* 13: Systemic scleroderma and pregnancy
* 14: Scleroderma and sexuality
* 15: Overlap syndromes and sclerodermalike conditions
* Part 4: Coping with scleroderma
* 16: You and your doctor
* 17: Living an unpredictable life, facing an uncertain future
* Appendix 1: Criteria for the classification of systemic scleroderma
* Appendix 2: Scleroderma support groups and resource materials