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THE NEW YORK TIMES BESTSELLER
With a new chapter detailing the events that have taken place since Ronan's passing in February 2013.
Like all mothers, Emily Rapp had ambitious plans for her son, Ronan. He would be smart, loyal, physically fearless, level-headed but fun. He would be good at crossword puzzles like his father. He would be an avid skier like his mother. Rapp would speak to him in foreign languages and give him the best education.
But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative
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THE NEW YORK TIMES BESTSELLER
With a new chapter detailing the events that have taken place since Ronan's passing in February 2013.

Like all mothers, Emily Rapp had ambitious plans for her son, Ronan. He would be smart, loyal, physically fearless, level-headed but fun. He would be good at crossword puzzles like his father. He would be an avid skier like his mother. Rapp would speak to him in foreign languages and give him the best education.

But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder. Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months. Rapp and her husband were forced to re-evaluate everything they thought they knew about raising a family. They would have to learn to live with their child in the moment; to find happiness in the midst of sorrow; to parent without a future.

The Still Point of the Turning World is the story of a mother's journey through grief and beyond it. Rapp's response to her son's diagnosis was a belief that she needed to 'make my world big' - to make sense of her family's situation through art, literature, philosophy, theology and myth. Drawing on a broad range of thinkers and writers, from C.S. Lewis to Sylvia Plath, Hegel to Mary Shelley's Frankenstein, Rapp learns what wisdom there is to be gained from parenting a terminally ill child. In luminous, exquisitely moving prose, she re-examines our most fundamental assumptions about what it means to be a good parent, to be a success, and to live a meaningful life.

Emily Rapp Black's follow up memoir, Sanctuary, will publish in January 2021.


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Autorenporträt
A former Fulbright scholar and graduate of Harvard Divinity School, Emily Rapp is the author of Poster Child: A Memoir. Her writing has appeared in the New York Times, Salon and Slate among other pubblications. She is the recipient of a Rona Jaffe Writers' Award, a James A. Michener Fellowship at the University of Texas-Austin, and the Philip Roth Writer-in-Residence fellowship at Bucknell University.
She is currently Associate Professor of Creative Writing at the University of California-Riverside, where she also teaches medical narratives in the School of Medicine. Her follow up memoir, Sanctuary, will be published in 2021.
For more information on Emily, visit her website, http://emilyrapp.com.