Caring for Family Members Affected by Huntington''s Disease - Lowit, Alison
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This study focuses on the issues faced by spousal carers of Huntington's Disease (HD) sufferers, and explores the carer role in HD and defines the resources that are used by (or would be useful to) carers. The study uses unstructured, qualitative interviews of carers caring for their spouses in their own home. Topics explored during the interviews included: carers perspective on their care-giving role and how that role had changed their lives, carers motivations for caring and their doubts and problems, carers plans for caring for future generations of HD relatives and facilitating factors and…mehr

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Produktbeschreibung
This study focuses on the issues faced by spousal carers of Huntington's Disease (HD) sufferers, and explores the carer role in HD and defines the resources that are used by (or would be useful to) carers. The study uses unstructured, qualitative interviews of carers caring for their spouses in their own home. Topics explored during the interviews included: carers perspective on their care-giving role and how that role had changed their lives, carers motivations for caring and their doubts and problems, carers plans for caring for future generations of HD relatives and facilitating factors and barriers to providing effective care. Spousal carers provide a very valuable, cost-effective service that mainly draws upon their own resources.
Autorenporträt
Alison Lowit, MSc. has worked for the past six years as a Researcher in Public Health, Mental Health and the Voluntary Sector; she is currently finishing her PhD. and working at the University of Aberdeen for the Institute of Applied Health Sciences. Alison lives in Aberdeen, Scotland with her husband and three children.