Fairren McLemore
Broschiertes Buch

Shining Through

My Journey with Incontinentia Pigmenti

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Shining Through: My Journey with incontinentia pigmenti is a heartwarming children's book about an eight-year-old little girl named Miah who was born with a rare skin condition that has impacted her life. It talks about her physical symptoms and the tests she gets regularly, and it also describes her developmental delays. This condition occurs mostly in females and is lethal in males. It is passed from mother to daughter but if passed to male, the pregnancy is likely to end in a miscarriage. Her mother does not have this gene and her a father cannot pass it to her. How was she born with it? Th...