Joseph J. Fins

Rights Come to Mind (eBook, PDF)

Brain Injury, Ethics, and the Struggle for Consciousness

• Format: PDF

Produktbeschreibung

Through the sobering story of Maggie Worthen and her mother, Nancy, this book tells of one family's struggle with severe brain injury and how developments in neuroscience call for a reconsideration of what society owes patients at the edge of consciousness. Drawing upon over fifty in-depth family interviews, the history of severe brain injury from Quinlan to Schiavo, and his participation in landmark clinical trials, such as the first use of deep brain stimulation in the minimally conscious state, Joseph J. Fins captures the paradox of medical and societal neglect even as advances in neuroscience suggest new ways to mend the broken brain. Responding to the dire care provided to these marginalized patients, after heroically being saved, Fins places society's obligations to patients with severe injury within the historical legacy of the civil and disability rights movements, offering a stirring synthesis of public policy and physician advocacy.

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Produktdetails

• Verlag: Cambridge University Press
• Erscheinungstermin: 6. August 2015
• Englisch
• ISBN-13: 9781316308233
• Artikelnr.: 52966731

Autorenporträt

Joseph J. Fins, MD, MACP is the E. William Davis, Jr, MD Professor of Medical Ethics and Chief of the Division of Medical Ethics at Weill Cornell Medical College, where he also serves as Professor of Medicine, Professor of Health Care Policy and Research, and Professor of Medicine in Psychiatry. He is the founding chair of the Ethics Committee of New York-Presbyterian Weill Cornell Medical Center where he is an attending physician and Director of Medical Ethics. Dr Fins co-directs the Consortium for the Advanced Study of Brain Injury (CASBI) and is an adjunct faculty member and senior attending physician at the Rockefeller University and Rockefeller University Hospital. The author of over 250 publications, Fins is a co-author of the landmark 2007 Nature paper describing the first use of deep brain stimulation in the minimally conscious state. He is an elected Member of the Institute of Medicine of the National Academy of Sciences, a Fellow of the American Academy of Arts and Sciences and an Academico de Honor of the Royal National Academy of Medicine of Spain.

Inhaltsangabe

1. Decisions
2. The injury
3. Coming to terms with brain injury
4. The origins of the vegetative state
5. A shift since Quinlan
6. Maggie's wishes
7. Something happened in Arkansas
8. From PVS to MCS
9. Leaving the hospital
10. Heather's story
11. Neuroimaging and neuroscience in the public mind
12. Contractures and contradictions: medical necessity and the injured brain
13. Minds, monuments, and moments
14. Heads and hearts, toil and tears
15. What do families want?
16. Deep brain stimulation in MCS
17. Mending our brains, minding our ethics
18. It's still freedom
19. Maggie's in town
20. When consciousness becomes prosthetic
21. The rights of mind
22. A call for advocacy.