Provides parents with the tools to support children who experience medical trauma Afraid of the Doctor is the first book written for parents to equip them with the knowledge and skills to support their children through medical challenges on a day-to-day basis, and specifically with medical trauma-experiences in healthcare that can profoundly affect a child's response and willingness to even go to the doctor. The challenge of medical trauma is often under-recognized and overlooked in the healthcare system, leaving parents to learn about it and manage it on their own. This book helps parents…mehr
Provides parents with the tools to support children who experience medical trauma Afraid of the Doctor is the first book written for parents to equip them with the knowledge and skills to support their children through medical challenges on a day-to-day basis, and specifically with medical trauma-experiences in healthcare that can profoundly affect a child's response and willingness to even go to the doctor. The challenge of medical trauma is often under-recognized and overlooked in the healthcare system, leaving parents to learn about it and manage it on their own. This book helps parents understand medical trauma and learn strategies to reduce and even prevent it, empowering them to better care for their child's emotional and physical health. Afraid of the Doctor integrates character stories throughout the book to illustrate the signs and symptoms of medical trauma and the roles parents and caregivers play in supporting their child through medical challenges. Readers will find twelve distinct strategies they can implement to help prevent and reduce medical trauma and otherwise support their child while facing medical interventions or a chronic condition. With compassion and empathy, Meghan Marsac and Melissa Hogan offer parents the tools they need to choose the strategies that will work best for their children and their families.
Meghan L. Marsac, PhD, is a pediatric psychologist with expertise in helping children and families adjust to and deal with medical conditions. She is currently the Acting Chief of Psychology in the Department of Pediatrics at the University of Kentucky. She also leads medical trauma training for healthcare professionals through the national Center for Pediatric Traumatic Stress and is the lead creator of the Cellie Coping Kit for children with medical conditions. She lives in Lexington, Kentucky. Melissa J. Hogan, JD, is a parent to a child with a rare, genetic disease who has faced a countless number of surgeries, specialists, and as a result, medical trauma. In addition to caregiving and advocating for her son's needs, she is a practicing attorney, specializing in the area of abuse and trauma. She also founded the leading research and advocacy foundation in Hunter syndrome, Project Alive, which has raised millions of dollars for research. She lives outside Nashville, Tennessee.
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Acknowledgements How to Use This Book Preface PART 1 THE REALITY OF MEDICAL TRAUMA Chapter 1: Where Love Meets Medicine Chapter 2: Parenting Through Medical Challenges Chapter 3: The Medical Journey PART 2 MEDICAL TRAUMA 101 Chapter 4: What Exactly Is Medical Trauma? Chapter 5: How Do I Know if My Child has Medical Trauma? Chapter 6: What Isn't Medical Trauma? Chapter 7: Medical Sprints Versus Medical Marathons Chapter 8: Your Family and the Health Care System PART 3 WHO ARE YOU? Chapter 9: You Are a Person, Then a Parent Chapter 10: You Are a Caregiver Chapter 11: You Are the Leader of Your Child's Medical Team Chapter 12: You Are a C.O.A.C.H. PART 4 STRATEGIES FOR PREVENTING AND REDUCING MEDICAL TRAUMA Chapter 13: General Strategies: Parenting Children with Medical Conditions Chapter 14: Planning Ahead: "Planning Makes... Better" Chapter 15: Communication: "Let's Talk About It" Chapter 16: Consistency: "Knowing What to Expect" Chapter 17: Behavior Charts: "Not Bribing, Rewarding" Chapter 18: Additional Visual Supports: "Creative Preparation" Chapter 19: Desensitization: "Let's Get Used to It" Chapter 20: Medical Play: "Children Learn Through Play" Chapter 21: Adapting the Environment: "Make Yourself at Home" Chapter 22: Timing: "6 am or 6 pm?" Chapter 23: Distraction: "Squirrel!" Chapter 24: Reinforcement: "Walk the Line" Chapter 25: Body Control: "Mind-Body Connection" Chapter 26: Switching Strategies: "If at First You Don't Succeed, Try Again" PART 5 SPECIAL POPULATIONS Chapter 27: Children with Cognitive Impairment Chapter 28: Children Who Are Nonverbal or Who Have Communication Needs Chapter 29: Very Young Children PART 6 CAN PARENTS DEVELOP MEDICAL TRAUMA TOO? Chapter 30: Medical Trauma in Parents Chapter 31: What's "Wrong" With Me? Chapter 32: How Can I Support Myself? PART 7 WRAPPING UP Chapter 33: Seeking More Help Chapter 34: Epilogue Additional Resources Bibliography Notes Index About the Authors
Acknowledgements How to Use This Book Preface PART 1 THE REALITY OF MEDICAL TRAUMA Chapter 1: Where Love Meets Medicine Chapter 2: Parenting Through Medical Challenges Chapter 3: The Medical Journey PART 2 MEDICAL TRAUMA 101 Chapter 4: What Exactly Is Medical Trauma? Chapter 5: How Do I Know if My Child has Medical Trauma? Chapter 6: What Isn't Medical Trauma? Chapter 7: Medical Sprints Versus Medical Marathons Chapter 8: Your Family and the Health Care System PART 3 WHO ARE YOU? Chapter 9: You Are a Person, Then a Parent Chapter 10: You Are a Caregiver Chapter 11: You Are the Leader of Your Child's Medical Team Chapter 12: You Are a C.O.A.C.H. PART 4 STRATEGIES FOR PREVENTING AND REDUCING MEDICAL TRAUMA Chapter 13: General Strategies: Parenting Children with Medical Conditions Chapter 14: Planning Ahead: "Planning Makes... Better" Chapter 15: Communication: "Let's Talk About It" Chapter 16: Consistency: "Knowing What to Expect" Chapter 17: Behavior Charts: "Not Bribing, Rewarding" Chapter 18: Additional Visual Supports: "Creative Preparation" Chapter 19: Desensitization: "Let's Get Used to It" Chapter 20: Medical Play: "Children Learn Through Play" Chapter 21: Adapting the Environment: "Make Yourself at Home" Chapter 22: Timing: "6 am or 6 pm?" Chapter 23: Distraction: "Squirrel!" Chapter 24: Reinforcement: "Walk the Line" Chapter 25: Body Control: "Mind-Body Connection" Chapter 26: Switching Strategies: "If at First You Don't Succeed, Try Again" PART 5 SPECIAL POPULATIONS Chapter 27: Children with Cognitive Impairment Chapter 28: Children Who Are Nonverbal or Who Have Communication Needs Chapter 29: Very Young Children PART 6 CAN PARENTS DEVELOP MEDICAL TRAUMA TOO? Chapter 30: Medical Trauma in Parents Chapter 31: What's "Wrong" With Me? Chapter 32: How Can I Support Myself? PART 7 WRAPPING UP Chapter 33: Seeking More Help Chapter 34: Epilogue Additional Resources Bibliography Notes Index About the Authors
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