The Missing Petals on Chromosome Four - Brignoni, N B
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>The Missing Petals on Chromosome Four is a raw, powerful, and achingly beautiful in this intimate collection of poems. That details one mother's emotional rollercoaster through the unexpected landscape of raising a child with Wolf-Hirschhorn Syndrome. The author transforms her family's challenges into a powerful story of love, resilience, and unexpected joy in dark times. From the first moments of diagnosis through the halls of hospitals, therapy sessions, and hard to hear medical news. These poems are written to illuminate the strength found in both mother and child. And help readers…mehr

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>The Missing Petals on Chromosome Four is a raw, powerful, and achingly beautiful in this intimate collection of poems. That details one mother's emotional rollercoaster through the unexpected landscape of raising a child with Wolf-Hirschhorn Syndrome. The author transforms her family's challenges into a powerful story of love, resilience, and unexpected joy in dark times. From the first moments of diagnosis through the halls of hospitals, therapy sessions, and hard to hear medical news. These poems are written to illuminate the strength found in both mother and child. And help readers understand rare diseases with a glossary at the end and resources. Each poem pulses with authenticity - capturing the fear of uncertain diagnoses. Along with the anxiety of sleepless nights watching for seizures. But also the pure joy of small victories that others might take for granted. But this is more than just a story in poetry's form it is also about seeing disability or medical challenges as a strength. It's an anthem for all parents who have found themselves on an unexpected path, a reminder that perfection comes in many form. Through metaphors of flowers blooming against all odds and petals that may be missing but make the bloom no less beautiful, the author shares a narrative that will resonate with anyone who has ever felt different or faced seemingly insurmountable obstacles medically and mentally. Written in the difficult moments between hospital visits and therapy sessions, these poems offer: - Hope and solidarity for families navigating rare genetic disorders - Insight for medical professionals seeking to understand the family experience - Inspiration for anyone facing life's unexpected challenges >Whether you're a parent, medical professional, or someone seeking to understand the extraordinary journey of special needs families, this collection will open your heart to new definitions of strength, beauty, and love. Join this warrior and mother as they discover that sometimes the most beautiful gardens grow in unexpected places, and that missing petals often make the most remarkable blooms of all. Perfect for readers who appreciate: - Intimate family memoirs in the form of poetry - Medical narratives - Poetry that speaks to the human condition - Stories of hope and resilience - Parents of children with WHS or Epilepsy - Literature about rare diseases and special needs parenting
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