Keep Your Chin Up (3rd Ed): Everything You Never Knew You'd Need To Know About Pierre-Robin Sequence (eBook, ePUB)
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Jess is a writer, public health worker, and mother to a little boy who was born with Pierre-Robin Sequence. Upon his diagnosis, Jess and her husband, like many other parents, turned to the internet to search for answers. The information they found was largely outdated and based on worst-case scenarios, which only frightened and confused them even more. With a background in health science and a desire to help, Jess resolved to put together a book to guide other PRS families through the journey.With information and research drawn from both personal experience and 150+ medical sources, photos, an...
Jess is a writer, public health worker, and mother to a little boy who was born with Pierre-Robin Sequence. Upon his diagnosis, Jess and her husband, like many other parents, turned to the internet to search for answers. The information they found was largely outdated and based on worst-case scenarios, which only frightened and confused them even more. With a background in health science and a desire to help, Jess resolved to put together a book to guide other PRS families through the journey.
With information and research drawn from both personal experience and 150+ medical sources, photos, and interviews with more than twenty PRS families, Keep Your Chin Up is a guide to PRS written for parents, by a parent. This third edition revisits several families featured in the first edition, including updates three and a half years later, giving families a longer-term view on a PRS diagnosis.
Praise for Keep Your Chin Up
It provides an extensive and thorough understanding of PRS without being overwhelming, while also providing relatable insight into the experiences you may have as a parent of a newborn with PRS while the NICU.
- Shannon, PRS mom, USA
This book is what every parent with Pierre Robin Sequence should be presented with upon diagnosis. It is so helpful to see other families' progress and healing.
- Kelly, PRS mom, USA
This book is exactly what new PRS parents and families need to read. Showing [Jess's] own journey and providing all details, even the frustrating ones is exactly what is needed.
- Kiera, PRS mom, Canada
As a parent of a child with Pierre-Robin Sequence and it being so rare I found there was so little Information when I had Aria and had to learn a lot on my own .... So excited [this book is] now out.
- Alisha, PRS mum, Australia
With information and research drawn from both personal experience and 150+ medical sources, photos, and interviews with more than twenty PRS families, Keep Your Chin Up is a guide to PRS written for parents, by a parent. This third edition revisits several families featured in the first edition, including updates three and a half years later, giving families a longer-term view on a PRS diagnosis.
Praise for Keep Your Chin Up
It provides an extensive and thorough understanding of PRS without being overwhelming, while also providing relatable insight into the experiences you may have as a parent of a newborn with PRS while the NICU.
- Shannon, PRS mom, USA
This book is what every parent with Pierre Robin Sequence should be presented with upon diagnosis. It is so helpful to see other families' progress and healing.
- Kelly, PRS mom, USA
This book is exactly what new PRS parents and families need to read. Showing [Jess's] own journey and providing all details, even the frustrating ones is exactly what is needed.
- Kiera, PRS mom, Canada
As a parent of a child with Pierre-Robin Sequence and it being so rare I found there was so little Information when I had Aria and had to learn a lot on my own .... So excited [this book is] now out.
- Alisha, PRS mum, Australia
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